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MCF

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MCF last won the day on December 20 2011

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About MCF

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    Over 2000 Posts
  • Birthday November 25

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    Female
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    NY

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  1. My symptoms involve worse psoriasis, intense itching post meal, very heavy, thumping rapid heart beat post meals, weakness, dizziness, fatigue, spine and neck pain, dental and facial pain, all gone unless I slip up. Turns out their are tons of mast cells in the spinal column, hence my histamine induced pinched nerve neck pains that are gone now. As for FMS, that went away for me years ago when I switched to low carb, just about overnight. Gastric dysfunction is one of the top three symptoms of HIT and small intestine bacterial overgrowth often is a cause of HIT. My case seems to be diam
  2. Every single ache, pain in body, joint swellings, bloat disappeared once I began eating lower histamine. I was eating extremely high histamine, lots of high histamine veggies (check the list I posted) cooked slowly and kept unfrozen as leftovers, aged meats, braised for hours, kept unfrozen as leftovers, lots of tomatoes, pork and lamb, tons of fermented and soy based stuff in marinades and restaurant food. A great deal of shellfish and leftover fish bought unfrozen. A lot of stinky, aged cheeses. By eating only one or two ingredients per meal with nothing but salt, I identified lamb and p
  3. If is for me. This is not the same as food allergy, this is a reaction to the histamine content of foods, or foods that cause mast cells to release histamine, coupled with genetic or acquired deficiency of the enzyme that breaks down histamine in the normal gut: http://ajcn.nutrition.org/content/85/5/1185.long I've noticed that almost everyone on a histamine intolerance forum is diagnosed with Hashimoto's or "adrenal fatigue" or high cortisol and also have a lot of gut symptoms: "Histamine intolerance results from a disequilibrium of accumulated histamine and the capacity for hist
  4. Happy birthday to USSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSS........................! Thanks, MaryO! <*smooch*>
  5. Darlin, that's why I ALWAYS say, "those who are able" should donate. And I think it goes without saying that MaryO, by absorbing the expenses we don't cover, demonstrates it every year. Lots of us have been financially compromised by illness or unexpected life circumstances and still need the help, we all know it and understand.
  6. http://www.alltrials.net/2014/guest-post-people-with-rare-diseases-need-results-from-all-trial/ Guest Post: People with rare diseases need results from all trials 7th April 2014 By Rob Pleticha is the Online Community Manager of RareConnect.org, a EURORDIS project This is a personal opinion The International Rare Diseases Research Consortium plan to have 200 new rare diseases therapies by year 2020. In Europe a disease or disorder is defined as rare when it affects fewer than 1 in 2000 citizens.(1) Researchers studying rare diseases have difficulty gathering a sufficient number of peo
  7. http://www.healio.com/endocrinology/adrenal/news/online/%7B470d2ab6-ad4b-4b26-aa51-46822a0f261a%7D/higher-carbohydrate-intake-may-increase-intracellular-cortisol Higher carbohydrate intake may increase intracellular cortisol Stimson RH. J Clin Endocrinol Metab. 2013;doi:10.1210/jc.2013-2307. Macronutrients stimulated a postprandial rise in circulating cortisol in lean, healthy men, according to researchers in the United Kingdom. “These observations provide a novel insight into the complexity of circadian control ofglucocorticoid secretion,” researchers wrote.Plasma cortisol appeare
  8. The year is almost over and we've contributed only about 1/3 of the costs needed to support this site. There are plenty of folks without the means to contribute, but many folks who can spare a buck or ten. The archives on this site alone are priceless, there's nothing and nowhere that can help us save our own lives the way they have and will. If we keep the site up and running. Thanks to MaryO for not giving up on it and us.
  9. Thanks for the reminder, Robin and thanks MaryO, once again, for these boards and for keeping all this archived information online at great effort and expense. Off to Paypal you a donation right NOW.
  10. I signed the petition because I think too many people are gunea pigs for drugs whose risks are unreported until many have been injured. As one Harvard cardiologist said, "Drug companies own medicine." http://www.alltrials.net/ I It's time all clinical trial results are reported. Patients, researchers, pharmacists, doctors and regulators everywhere will benefit from publication of clinical trial results. Wherever you are in the world please sign the petition: Thousands of clinical trials have not reported their results; some have not even been registered. Information on what was do
  11. I agree, BDen. It's a gift to bariatric surgeons, lap band and obesity drug makers, quacks like Dean Ornish, who the Clinton's shoehorned in as paid treatment by the government and insurers. Obesity is a sign of myriad conditions and diseases, it is not a disease. It's a marker with multiple causes.
  12. Thanks for posting, I saw this somewhere yesterday but hadn't taken the time to read the summary descriptions.
  13. Actually, a lot of what's labeled recurrence is failure to attain surgical cure. Criteria and definitions of "cure" are kind of variable from surgeon to surgeon and they have an incentive to paint the rosiest picture of their own success rates. Over the years that I've been reading here and elsewhere, the cure rate from first surgeries is pretty low. That's not due to lack of surgical skill or care choosing surgeons, just the complex nature of HPA axis disorders and the lack of firm borders and definition of pituitary tumors as compared to other types of tumor. Then you have hyperplasia of
  14. I don't think the percentage is small at all. http://home.comcast.net/~staticnrg/Cushings/LongTermRemissionRates.pdf "Conclusions The overall remission rate of 56% (35/63) at 9·6 years follow-up is disappointing and merits some re-appraisal of the widely accepted principle that pituitary surgery must be the initial treatment of choice in pituitary-dependent Cushing’s syndrome. Following pituitary surgery, careful ongoing expert endocrine assessment is mandatory as the incidence of relapse increases with time and also with increasing rigour of the endocrine evaluation. A significant numb
  15. I also think you should have other androgens, and aldosterone and renin tested. You're high all the time, could be adrenal rather than pituitary if it is Cushing's. The multiple times normal on the tests you listed is highest at midnight, suggesting that you actually do have reversal of diurnal rhythm within consistently high results all day.
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