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SusanM last won the day on October 15 2011

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    Knitting and designing knitwear, writing, public speaking and all needle arts (knitting, cross-stitch, etc.)

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  1. Sounds like work! On the other hand, it sounds like it will be very helpful to some. Just curiosity...what was this stopped before? Was there a problem?
  2. Thanks, MaryO. My apologies, I didn't go back to the original but read just what was in this thread.
  3. Melissa of TX, thanks for doing this work and pulling this list together. As I read through it, the list has a powerful impact to the reader. Having to have a list like this makes me sad (that any of us are sick), but doing so helps the world understand more about who we are. I elected not to participate for personal reasons, but encourage others to do so. One minor thought....pituitary adenomas are not the only thing that causes Cushings. Pituitary Hyperplasia is the rare form of this disease and thought you may want to update the definitions portion to include pituitary hyperplasia along with pituitary adenomas.
  4. There's a fine example of patient advocacy. Thanks to the help of your sisters, you found the answer. That's amazing!
  5. Best wishes that this is processed quickly and approved for you.
  6. Love the new boards! Love the look and feel of the new boards. It's easier to reply with the reply box at the bottom of the messages. Also wanted to add that I am flying through the messages. It is very quick! That's a bonus!
  7. No, hyperplasia is not a precursor to tumor formation. It is different at the cellular level.
  8. I wonder if this is also true for hyperplasia as well; the article doesn't say. Hyperplasia is a bit different than an adenoma but still causes Cushings.
  9. Thank you susan, every day i check in and it gives me the energy to fight! with out you and this heaven sent site i would still be on the GP tread mill, as far as encho heres there is only two in the state.....

    cheers and hope to talk soon Vicki xx

  10. Good idea for you to be interviewed. Look forward to listening.
  11. I worked for CIGNA for nearly 30 years prior to retiring. Their Phoenix set up has been in existence for more than a decade (probably 2 decades) and is not a new situation. It appears to have worked well for those in Phoenix. As for the United, it's interesting what they are doing. As with most things in life, there will be positives and negatives. The insurance industry is heavily regulated by each state and they will not be able to operate outside of those regulations. If there are problems reported in the 'quality' of care, the legal system can be invoked to take care of them. I wrote in another post the other day that if I had been in an HMO, I would not have been diagnosed. That is my greatest concern when I see items such as this. To me, this is going to be a watch and wait situation --- it will get large media attention if there are problems.
  12. http://www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/dr-daniel-kelly-md-0433d821

    Here's the information for Dr. Daniel Kelly who is a neurosurgeon out of Santa Monica. he is well known and respected.

    Good luck!

  13. Found this article today on Dr. F's website and think it is very helpful. It has quite a bit of research data which is interesting and many of us have contributed to that data! Enjoy. http://www.goodhormo...ushings-hmr.pdf Title: High Prevalence of Normal Tests Assessing Hypercortisolism in Subjects with Mild and Episodic Cushing ’ s Syndrome Suggests that the Paradigm for Diagnosis and Exclusion of Cushing ’ s Syndrome Requires Multiple Testing
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