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MelissaTX

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MelissaTX last won the day on February 9 2018

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About MelissaTX

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    http://cushingsmoxie.blogspot.com/
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  1. Hope, thank you for posting. I have never heard of this, but I will look into getting an octreocide scan after my two failed pituitary surgeries found two tumors but left me uncured. It seem like those two links point to a lot of single case studies of the one patient they saw. Now it is necessary to have one of those docs take the lead and write a paper discussing all of the cases and rooting out similarities and hopefully moving forward to a cure.
  2. I plan to update this list again for release on cushing's awareness on April 8, 2012. If you need to be added to the list, please start your post with the word NEW. If you need to be revise your entries on the list, please start your post with the word REVISE. Please try to write your entry in the same style as the list. Less editing for me. I'd appreciate the help bumping this up in the next six weeks so we can capture as many cushies as necessary.
  3. Hi there. Let me know if I can help, or email me at moxiemelissa@gmail.com. Visit my blog at http://cushingsmoxie.blogspot.com.

    Welcome.

    Melissa

  4. Hi there. Let me know if I can help, or email me at moxiemelissa@gmail.com. Visit my blog at http://cushingsmoxie.blogspot.com.

    Welcome.

    Melissa

  5. Hi there. Let me know if I can help, or email me at moxiemelissa@gmail.com. Visit my blog at http://cushingsmoxie.blogspot.com.

    Welcome.

    Melissa

  6. Of course, MaryO. Please post this far and wide! It is best if seen by many, I like the idea of linking to our bios. Mine is woefully outdated. I'll try to write a new one soon (add to the loooonnnnggg list). Also, what about linking to blogs? So, if someone sees someone who is near them, they can click through to the blog to read more. That is a lot more work for you, as you will be linking all those, but if we collect the information here, I can update my blog entry to include the hyperlinks, too. Also, I personally know quite a few folks who are not included on that list but
  7. Here is the full list, feel free to copy and paste it. Personalize it. This list is meant for all of us to share. CUSHIE WARRIORS: MEN, WOMEN & CHILDREN WHO BATTLE CUSHING?S NUMEROUS TIMES IN HOPES OF WINNING THE WAR Many of you only know one person with Cushing?s. It is difficult to understand or keep up with ?your person? as s/he seeks treatment. You have probably never known someone with Cushing?s before, right? You do know, however, that ?your person? talks about Cushing?s a lot or is pretty darned passionate about their Cushie friends. We lean on and help others even a
  8. Here is the full list, feel free to copy and paste it. Personalize it. This list is meant for all of us to share. CUSHIE WARRIORS: MEN, WOMEN & CHILDREN WHO BATTLE CUSHING?S NUMEROUS TIMES IN HOPES OF WINNING THE WAR Many of you only know one person with Cushing?s. It is difficult to understand or keep up with ?your person? as s/he seeks treatment. You have probably never known someone with Cushing?s before, right? You do know, however, that ?your person? talks about Cushing?s a lot or is pretty darned passionate about their Cushie friends. We lean on and help others even a
  9. OK. I posted this list on my blog. http://cushingsmoxie.blogspot.com/ dated today, April 8, 2011
  10. LAST CALL! If you want to join the list of folks looking for a cure with multiple surgeries, add your info now. I am putting the finishing touches on the 50 person list, and I'll be posting the link here so you can share with your friends and family, via email or facebook.
  11. Hi Melissa!

    Thank you so much for all you do to advocate and create awareness for us Cushies. I'm still waiting for DX, but have an appt with Dr. L on 4/14. I love your blog and picture progression. You inspired me to make my own and I was honestly shocked at how much I have changed. I'd love to add you as a friend on Facebook. My name is Treva Clay. I hope to get to "know...

  12. Yup. I will merge the lists closer to April 1st. I'll post it in both places so everyone can post to emails, blogs, FB, wherever.
  13. 24 listed in the facebook site. That's 40 of us. Can we get that number up to 50?
  14. 16 of us listed here. I'm going to check how many reported in on the FB side...
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