ltw

just ignore that comment from the nurse. I think most people with cushings would never get proper treatment if they weren't their own best advocate - and that includes the internet. I always think I will tell them I've studied this disease at length over many years and sleepless nights...how much have you?

One of the screening labs came back funky indicating possible myeloma, which is a cancer of the plasma cells gone wrong mainly in the bone marrow. I'll post about it soon...been pretty tired working on my GH stuff with attorney.

I think you just go to the forum/thread with your name and post a reply at the bottom with the new info. I thought that's how I did mine.

Hang on. If nothing else, know you aren't alone:) Maybe we will end up dragging each other to the end...whatever it takes until its resolved.