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BrendaW

Long-time Board Member
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Everything posted by BrendaW

  1. Thanks Mary! Sounds like the large will work afterall!
  2. Normal size for me, please. (Do they come in X-large? Big-wristed Cushie here!)
  3. Great article, Mary. It's so nice to have validation of something I already believed. My asthma, COPD, and sleep apnea didn't show up until AFTER I was in a car accident and all the hormonal symptoms 'just appeared'. I kind of figured there was a connection - this article goes into my file called: "See - told ya!"
  4. Thanks everyone! I'm just so thrilled that this article has the potential to help several of you. (I'll be taking it to my doctor as well). In fact, by sharing this I actually proved myself wrong. After I read it, I thought: 'Hey, I should share this with my Cushie pals!'. This thought was immediately followed by: 'But then again, they've probably read something like this a hundred times. The folks who've been at this longer than me will just be bored.' But I ultimately decided that if the article could help even ONE person, then I should just go ahead and post it. **Note to myself and others: Don't assume that everyone has already seen an article, video, TV show, etc. Share, share, share! The more we educate ourselves, the better equipped we will be to educate others. Brenda
  5. Cushings Awareness Day has not been adopted here in Canada (yet...), but I'm celebrating with all of you anyway, and making sure everyone I know is aware of it! Happy CAD to all Cushies and those that love them! Brenda PS: Shouldn't we have some sort of ritual for our special day? Let's see...Christmas has trees and stockings, Valentines has hearts and chocolates....ummm...Any suggestions?
  6. Hi Mary, Thanks for posting this. I read StaceyJenn's interesting bio - what a journey! I won't be around for the original VoiceChat, but I'll be listening to the archive version. Kudos to you and StaceyJenn for sharing! Brenda
  7. Just came a cross this fascinating article. I've been on anti-depressants for a while now, and they kinda/sorta help, but I always felt that they weren't quite the right medication for what I was feeling. When I read this article, the clouds cleared and I had one of those 'Ah-HAH' moments. This makes so much sense! Here's the abstract: Increasingly, patients with pituitary disease are evaluatedand treated at cancer centers. In many ways, these patientsresemble patients with other malignant brain tumors. Althoughthe majority of pituitary adenomas are benign, the physical,emotional, and cognitive changes that these patients experienceon their well-being is malignant. Pituitary disease causes avariety of physical illnesses resulting from the alterationsin the hypothalamic-pituitary-end organ axis. In addition, patientswith pituitary diseases may experience many emotional problems,including depression, anxiety, behavioral disturbances, andpersonality changes, above and beyond the many reactions thesepatients may have to the myriad of adjustments that they mustmake in their lives. There is a growing understanding that pituitarypatients may experience these emotional problems as a resultof long-term effects that the pituitary tumor itself, treatment,and/or hormonal changes have on the hypothalamic-pituitary-endorgan axis. The authors present a series of cases, in whichpatients with pituitary disease were diagnosed and treated fordepression and showed little response to the treatment for depression.When the diagnosis of apathy syndrome was considered and treatmentimplemented, the patients? condition improved. A reviewof the literature on apathy, hypothalamic-pituitary-end organaxis dysfunction, and treatment for apathy syndrome is included. You can read the full article here: http://neuro.psychiatryonline.org/cgi/content/full/17/2/159 Enjoy! Brenda
  8. Hi Mary, Just watched the video - very cool! It's just incredible how compact everything is in there. I can see why they have to do the surgery through a microscope. Thanks so much for sharing this - I've bookmarked it! Brenda
  9. Hi Mary, Thanks so much for sharing this. It's only too bad that we don't have a way to FORCE all endo's to sit and watch this video, and to read all the excellent material that you and others have collected over the years. Wouldn't that be great? Brenda
  10. Thanks for sharing this. It is encouraging to know that there IS research out there that IS finding some answers (slowly...slowly...) Brenda
  11. http://www.medicalnewstoday.com/articles/90154.php This is an excellent article that not only describes this type of surgery (endoscopic) and its seemingly effortless recovery, but offers fairly clear explanations of several areas of concern for Cushing's patients. For example, the difference between Cushing's Disease and Cushing's Syndrome, why the levels of Cortisol in our bodies can mean a rise or fall in aches and pains, and a brief description/recommendation of LA's prestigious Cedars-Sinai Medical Center. Brenda
  12. Saw this article this morning, which presents an interesting form of alternative healing for those who might be interested. It also mentions a good pituitary doctor in the UK, for our Cushies across the pond. http://www.telegraph.co.uk/health/main.jht...arkinson105.xml Brenda
  13. Melissa - this is SO great! I've downloaded all of them. It so happens I've got an Endo appointment tomorrow...guess what I'll be reading in the waiting room! Thanks for sharing! Brenda
  14. Well, once again, the big boys in the white coats stick together, and the patient gets the shaft: http://www.mddailyrecord.com/article.cfm?i...9&type=UTTM Brenda
  15. OK, I totally get that as a Cushie my powers of concentration and memory are somewhat less than reliable. But c'mon...forgetting to get food for my family?! And yet, that's exactly what I did! Since my husband (and caregiver) was hospitalized for a month back in May, we've been ordering every week from 'Meals-on-Wheels'. Neither of us is well enough to shop or cook, so the once-a-week delivery of frozen meals is how we're managing. The kids don't care, as long as there's food on the table. It's not exactly gourmet, but it's certainly a step above "Swanson's Tin Foil Dinners" (dating myself!). The routine is simple - order on Monday, take delivery on Friday. It goes in the deep freeze, we nuke 'em as we need 'em. Simple. Unless you have Cushings. I had to place an emergency, late-night-and-a-day-late call to the Coordinator, and I'm hoping she'll be understanding. Otherwise, it'll be soup and pizza for the next week. ARGH!! Is it just me, or do all Cushies forget the simple day-to-day stuff? I can understand forgetting the hair appointment I made a week ago, or the documentary I really wanted to see on Thursday (or was it Tuesday?) - these are once-in-a-while things. I'm talking the really, really, simple, basic, falling-off-a-log, daily things...like eating...or showering...or.................what was I saying?
  16. BrendaW

    Off we go...

    As this is my first posting, I thought perhaps a little history would be in order. Here's the 'me-in-a-nutshell' that I posted on my Facebook page: Previous to 2002 I was the stereotypical busy Mom. I worked full-time at a job I loved, commuted 3 hours a day, tried to raise my 3 youngin's the best way I could, took care of Hubby, and spent time with friends whenever possible. Then, in October of 2002, at age 39, everything fell apart. I was diagnosed with Polymyalgia Rheumatica and had to begin using a cane, but still managed to carry on pretty much as usual. In the summer of 2003 I was in a bad car accident, and sustained permanent injury to my back and shoulders/neck. The blame game is still being played out by lawyers, and I hope I will receive some sort of settlement soon. By May of 2004 I had to stop working due to the large ulcers that had developed on my legs. The doctor's exact words were, "You can keep working, or you can keep your legs, but you are not going to get to do both." September, 2004 I nearly died from Acute Renal Failure (my kidneys shut down). The doctors told my husband that if he'd waited another half hour to call the ambulance, I wouldn't have made it. (Yikes!) After several days in ICU on dialysis, I recovered and was sent home. I had been in hospital for 10 days. The doctors were unable to figure out why this happened, or whether it could happen again. Since then, I have been diagnosed with Empty Sella Syndrome and multiple endocrine deficiencies (which may or may not have resulted from the accident). In any case, the endocrine problems resulted in the diagnoses of Cushing's, Hypopituitarism, hypothyroidism, and quite likely HGH deficiency as well. Due to prolonged use of steroids (Prednisone) to treat the Polymyalgia Rheumatica, I have early onset Osteoporosis. The same process that leached the calcium from my bones has also caused my teeth to deteriorate, and my nails to become brittle. I have Asthma and COPD, and must use a CPAP machine when I sleep because I have severe OSA (obstructive sleep apnea). I am also chronically anemic. These combined conditions result in permanent pain (everything from the neck down), and a fatigue that cannot be put into simple terms. At the moment, the pain is fairly well managed thanks to the wonders of modern drugs. Due to the Osteoporosis, something as simple as banging my arm on the car door could result in a fracture. A fall would be downright catastrophic. I take meds to strengthen and protect my bones, and as long as I'm careful, I'm OK. The fatigue, however, is something I struggle with on a daily basis (I have been known to sleep 18-20 hours a day). To my fellow Cushies, I know that many of you will recognize yourself in these symptoms. I'm thinking that many things that have been compartmentalized by the doctors, may well be all attributed to the Cushings, if ever there is done sufficient research to really understand this disease. In any event - if I must go through this, I'm so glad to have found some good folk to share the journey. After watching this site for few weeks, I know that I have found a supportive and knowledgeable group, and I'm proud to be a part of it. It is my hope that as I get to know you better - and you, me - that the circle of support will only grow wider, and stronger.
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