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msmith3033

ChattyCushie
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Everything posted by msmith3033

  1. Wow, that's crazy. So am I getting this right, even if something good happens, like a surprise party or something she can get put into shock?
  2. THAT'S WHAT I WAS THINKING AND NOW WOULD BE THE TIME TO DO SO. I MEAN RIGHT NOW THEY WANNA DO ANYTHING TO GET OUR VOTES FOR THEM TO BE PRESIDENT.
  3. WELL I READ YOUR POST BEFORE I TOOK A SHOWER AND WHILE I WAS IN THERE I GOT TO THINKING. AND WAS WONDERING IF ANYONE HAS THOUGHT ABOUT STARTING ONE OF THOSE EMAIL FORWARDING THINGS. SOME ONE WITH THE CREATIVITY AND COMPUTER SMARTS COULD DESIGN A COOL EMAIL THAT WE COULD FORWARD TO EVERYONE THAT WE KNOW AND THEY COULD DO THE SAME. THEY SAY THAT THERE IS SIX DEGREES OF SEPARATION BETWEEN PEOPLE SO WHO KNOWS WHO ALL WOULD GET TO SEE IT. IT COULD HAVE SOME PICTURES OF US AND HOW MUCH IT'S CHANGED US ALONG WITH SOME INFO AND THEM SOME TESTIMONIALS FROM US. I DON'T KNOW JUST A THOUGHT. ~MELI
  4. Maggie,

    Just stopping by to say hi.

    .:Melinda:.

  5. Dave,

    Please never stop posting, I look forward to your posts. You are always able to put a smile on my face, even on my bad day.

    Hugs,

    .:Melinda:.

  6. THANKS, I FOUND IT. NEXT STEP IS TO STAY UP LONG ENOUGH FOR IT.
  7. QUICK HELP! I DOWNLOADED ITUNES BUT NOW I NEED HELP FINDING THE PODCAST. WHAT'S IT UNDER? HUGS, - MELINDA
  8. I'M NOT UP TO CALLING IN, SORRY. MY DIAGNOSIS WAS RELATIVELY QUICK AND PAINLESS, IT'S JUST THE RECOVERY THAT I'M HAVING TROUBLE WITH. CAN'T WAIT TO HEAR OTHERS STORIES. HUGS, - MELINDA
  9. If you go to the first page of this topic and click on the blogradio thing it will take you right to the site. From there it's pretty self-explanatory.
  10. WHEN I WAS FIRST TESTED FOR CUSHING'S IN MICHIGAN I WOULD HAVE PAID ANYTHING FOR ONE. THEY JUST DON'T GET HOW HARD IT IS TO PEE IN A CUP WHEN YOU HAVE SO MUCH EXTRA WEIGHT IN YOUR STOMACH, IT'S HARD TO GET AROUND A LARGE TUMMY. OUT HERE AT OHSU THEY GIVE YOU ONE WHEN THEY GIVE YOU YOUR JUGS. IN FACT RIGHT NOW I HAVE ONE OF THOSE AND A COUPLE EMPTY JUGS IN MY CLOSET WAITING TO BE USED. FUN TIMES!!
  11. MELISSA - Thanks for sharing the information. I'm constantly looking for articles on Cushing's but I'm usually not very successful. My mom plans on reading them later when she makes breakfast. I'll probably read them tomorrow night during my insomnia. THANKS AGAIN.. -MELINDA
  12. Earlier this week I went to the doctors again. And I can honestly say that I actually left the doctors office with a smile. I had to meet with both Dr. Fleseriu and then the surgeon. First I met with Dr. Fleseriu. She informed me that I have Full-Blown Cushing's. Whatever that means I'm not quite sure. She wouldn't give me a script for sleep because she doesn't want me to be on very many medications prior to surgery. She also told me that I will HATE her after surgery along with the rest of the staff. And that I might even REGRET even having the surgery afterwards. I guess because of th
  13. Well I'm very proud of myself. I went in and had the CSS Procedure done without being knocked out. I was originally scheduled for an IPSS Procedure but then on Thursday they called and said that they wanted to do the CSS Procedure instead. They didn't say why exactly the change but who cares, at least I'm getting somewhere. The procedure itself wasn't all that bad. All I really felt was when they put the numbing stuff in my leg (which burned just a little) and then I could feel them moving the catheter around up until they got past my hip bone (yes I do still have one of those). Then I rea
  14. Once again I'm a victim of insomnia. Damn it I was really liking sleeping like NORMAL people. You know going to bed one day and waking up the next, but now I'm going to bed one day and waking up the same day. And that's only if I'm able to sleep at all because when this happens I only sleep a little bit and not very restful either. Since I've been keeping track of my sleeping patterns I've noticed that everyday it's getting later and later before I'm able to fall asleep and the amount of time I spend sleeping is decreasing. Yesterday I woke up at 2:30 in the afternoon and didn't go ba
  15. Yesterday was probably the worse Cushing's day I've ever experienced so far. It all started out with sleeping a lot. I pretty much spent the entire day asleep. Once I finally woke up I woke up with a terrible headache (scale 1 to 10 - probably a 9). And my entire body was so sore, I was literally unable to get out of bed. I tried unrepeatable to watch a movie but feel asleep each time. It was just a horrible day in general. It was so bad that my dad even brought me home dinner and brought it in my room for me because I was just unable to move about like usual. I'm not sure why I felt s
  16. I know that apart of this terrible disease is depression and I've learned to deal with that for the most part. But what am I suppose to do when I feel so secluded from everyone? In the beginning I was pretty much secluded from my friends and people that wanted to be around me but now I'm just secluded by everyone in general. In the beginning I was secluding myself by choice, well not exactly by choice but I had the opportunity to join in conversation and stuff like that with other human beings. And now that I've moved to my dads it's like I'm in an almost complete seclusion from every
  17. Well yesterday was my first trip to OHSU to meet with Dr. Maria Fiseriu. I really like her she is very nice and seems to know what she is doing. Anyhow, she said that all signs point to Cushing's but because it is such a rare and nasty disease she wants to re-run some tests on me. Yesterday, all she done was talked to me and done a physical like examination of what this terrible disease has done to me. And she had some lab work done. Last-night I had to take a pill at 11 and then had to go back up to OHSU this morning at 8 to have some more blood drawn. I should have had them take the
  18. MaryO, I think that the pins are a great idea. They look great. And I would be interested in buying one for myself. Hugs, -Melinda
  19. msmith3033

    Boredom

    Insomnia gets so boring. I keep running out of things to do, especially during the night. I don't want to wake everyone up by moving around the house too much so I pretty much stay in my room. All I do is color, read these posts, IM a couple of my friends, play games on here, etc... I really never thought that the internet would get to be so boring but it's all I really have to keep me occupied other than of course coloring. I'm starting to get tired of watching movies all night every night. This is just getting to be old really quick. I think my main problem is, is that I'm so ti
  20. Well today OHSU is suppose to call me to make the arrangements for me to start seeing them. I'm so excited after all of this time I'm actually getting somewhere with this whole disease. I hope they call before I fall asleep because once I'm asleep, I'm asleep. Insomnia still isn't very much fun though. But I think I've learned to accept it. Now it's just sort of coming natural to me staying up all night long and then going to bed during the day. I'd still rather it be the other way around, but I'd rather not be sick too. I've gotten nine fuzzy posters done already and am almost finished wi
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