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missaf

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Posts posted by missaf

  1. I can't imagine that anyone with Cushing's would want to chance passing this gene along.

     

    I wish there was a more candid discussion about this. Far too many women are wondering about the risks of passing Cushing's along in some form to their children. Some have chosen to adopt, others to not have any more children period (because of the fatigue of the disease), and other still choose to pursue live births.

     

    I personally can't wait to have my tubes tied and move on without worry. My son is already trending towards symptoms and I wouldn't wish this on my worst enemy, let alone a child...

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  2. Glad you found us, but sorry you had to find us!

     

    You are right to consider Cushing's. PCOS and Syndrome X mimic many symptoms of Cushing's but just like any syndrome, it's a catch-all phrase and needs to be investigated and ruled out before a final diagnosis is to be done.

     

    It sounds like you have an ally with this doctor who saw you in the hall. I would ask him who he would refer you to that would be able to help you. Finding a good endocrinologist willing to diagnose Cushing's or rule it out completely is half the battle.

  3. If the fact that saliva and serum are sometimes disproportionate in some subjects stops the production of a home saliva test kit, then I would have a problem. Otherwise, incremental improvements in the tools we have until we reach our ultimate goal are better than nothing.

  4. Just an update on this thread -- I'm applying for Benefits under the APPLICATION FOR BENEFITS FOR CERTAIN CHILDREN WITH DISABILITIES BORN OF VIETNAM AND CERTAIN KOREA SERVICE VETERANS.

     

    I'm willing to fight this long fight to recognize that my birth defects and health relate directly to my dad's AO exposure. I'm also willing to file for my son, who has listed defects from the list!

     

    http://www.vba.va.gov/pubs/forms/VBA-21-0304-ARE.pdf

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