~SuziQ~ Posted October 18, 2005 Report Share Posted October 18, 2005 Cushing's Awareness Day A goal since Mary started the message boards in 2000. April 8th, Dr. Harvey Williams Cushing's birthday, our choice for a National Cushing's Awareness Day. We've never given up on this idea. First of all I want to say a big Thank You to Jayne, who has worked so hard toward this goal. Jayne wrote to her congresswoman and is in the congressional record. Jayne even wrote to the President. Jayne didn't work on this over the summer as she needed the summer to recover from her lung surgery. I'm happy to say she's feeling better. I know that many of you wrote to your congressmen. I have no idea who or how many of you did this with the exception of: Emily Shelton, who contacted her congressman's office last spring, and in turn, his office contacted me. Stephanie Womack Gilchrist, who sent me a copy of the letter she sent to her congressman. Here's what's been happening since the end of September. I talked with Emily Shelton and Jayne Kerns a couple of times about Cushing's Awareness Day about what we should do next. Cheryl Farrar began contact with her congressman's office. I talked with Emily's congressman's office and he requested a Cushing's Syndrome Fact Sheet. I combined Mary's, Jayne's and my information on the fact sheet and sent it to Emily. Emily added her ideas, formatted and completed the fact sheet. Then there were a few changes made by CUSH officers and we have a final copy. Over the first two weeks of October Cheryl had several contacts with her congressman's office. About time we finished the fact sheet Cheryl's Senator decided to do a Senate Resolution for Cushing's Awareness Day and shortly thereafter sent a "Dear Colleague" letter, requesting support. At the same time, Emily sent her Representative the Cushing's Syndrome Fact Sheet and his office is going to work on this in the House of Representatives. I also talked with Stephanie and she contacted her Representative's office again. They do have her letter in Washington DC and she was given a contact in her Representative's office in DC to write to so she did and mentioned the other Representative's who are willing to support this day. Yes!!! Quote Link to comment Share on other sites More sharing options...
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