staticnrg Posted January 10, 2008 Report Share Posted January 10, 2008 Ok.... Reminder...tomorrow's show!! We need folks to call in!! UPCOMING SHOW: 1/10/2008 6:30 PM Cushing's Members CushingsHelp set reminder Date / Time: 1/10/2008 6:30 PM Category: Health Call-in Number: (646) 200-0162 Robin Smith (staticnrg) hosts as Cushing's message board members call in to tell about their fight for diagnosis and treatment. Robin will open the show with a brief explanation of what Cushing's is and what the symptoms are. Link to comment Share on other sites More sharing options...
Over 2000 Posts ADDflower Posted January 10, 2008 Over 2000 Posts Report Share Posted January 10, 2008 Call in? and what? Cry??? I don't think I'm the best candidate... anyone else? Link to comment Share on other sites More sharing options...
staticnrg Posted January 10, 2008 Author Report Share Posted January 10, 2008 Call in? and what? Cry??? I don't think I'm the best candidate... anyone else? Ami, you are a wonderful candidate. Your story is very important. This is about the disease....the journey..... about the diagnosis....about what we go through, varied as it is. It's not about sweet and nice and sugar-coating anything. Love and hugs.... Robin Link to comment Share on other sites More sharing options...
msmith3033 Posted January 10, 2008 Report Share Posted January 10, 2008 I'M NOT UP TO CALLING IN, SORRY. MY DIAGNOSIS WAS RELATIVELY QUICK AND PAINLESS, IT'S JUST THE RECOVERY THAT I'M HAVING TROUBLE WITH. CAN'T WAIT TO HEAR OTHERS STORIES. HUGS, - MELINDA Link to comment Share on other sites More sharing options...
medcats10 Posted January 10, 2008 Report Share Posted January 10, 2008 I don't even have a diagnosis yet, is it ok for me to call in? I have been dealing with this for 8 years, and am finally going to see Dr. F in one week. I feel like I am standing on a precipice, and I am not sure if I will make the summit or fall to my death! And 6:30 in what time zone? Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club Llama3234 Posted January 10, 2008 Member of the 1000 Post Club Report Share Posted January 10, 2008 Alicia, 6:30 in the Eastern Time Zone. I believe that I'll try calling in. -Jessie Link to comment Share on other sites More sharing options...
Over 2000 Posts Jo MacRaild Posted January 10, 2008 Over 2000 Posts Report Share Posted January 10, 2008 Hi Robin, I'd love to, but were at the hospital tomorrow night...Cant even listen, no puters......... Link to comment Share on other sites More sharing options...
medcats10 Posted January 10, 2008 Report Share Posted January 10, 2008 Sorry then, I'll still be at work. I usually don't leave there until 6:00 mountain time. Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club persephone Posted January 10, 2008 Member of the 1000 Post Club Report Share Posted January 10, 2008 Robin! I'd call in if I had a diagnosis! Then again, maybe I wouldn't, I get nervous over the phone and am pretty brain fogged 99 percent of the time so it's hard to find words. In the future though, I'll definitely call in and help out. This is such a fabulous idea!!!! Love to you, Nic Link to comment Share on other sites More sharing options...
Over 2000 Posts Lisa-A Posted January 10, 2008 Over 2000 Posts Report Share Posted January 10, 2008 I will certainly listen, I may call in if I get the nerve and I have something clear to talk about. I am more of a Multi Endo, Suspected Cyclical Cushings, put on steroids, can't test, now I have Addison's kind of Cushie?! I do not exactly fit in the norm of anything anymore! Lisa Link to comment Share on other sites More sharing options...
staticnrg Posted January 10, 2008 Author Report Share Posted January 10, 2008 Ladies (and lurking gentlemen), it's not about the diagnosis....it's about the journey. We'll just have a chat about us..... don't be nervous or shy. You can use your name or not.... (no last names needed, anyhow!)..... You can tell about how you were treated by a doctor (no names, please), how your life has changed, what symptoms you have, etc..etc.... Please don't leave me "alone" on there for 30"!!! ARGH!!! BBL.... XOXO Robin Link to comment Share on other sites More sharing options...
Over 2000 Posts Lisa-A Posted January 10, 2008 Over 2000 Posts Report Share Posted January 10, 2008 I will be listening and we will not leave you hanging, no way! Big hugs to you for doing this! Lisa Link to comment Share on other sites More sharing options...
Over 2000 Posts sharonk Posted January 10, 2008 Over 2000 Posts Report Share Posted January 10, 2008 rOBIN, HON, THANKS FOR DOING THIS! Hopefully, it will point some listeners to take a needed step towards help. Hugs! Link to comment Share on other sites More sharing options...
Over 2000 Posts radtravler Posted January 10, 2008 Over 2000 Posts Report Share Posted January 10, 2008 I'll try. The time is a bit of a problem for me, so sorry if I don't get to call in, I'll try to rush home from work in time to listen to some, though. (After this week, I will be in class on Thursday nights, so this will be my last chance.) I am in Central time zone and do not get off uintil 5:00p. But I really appreciate what you are doing. You are brave and smart !! Thanks again, Denise Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 10, 2008 Chief Cushie Report Share Posted January 10, 2008 Please don't leave me "alone" on there for 30"!!! ARGH!!! Ummm Robin - you're not going to be alone if I'm there, are you? Link to comment Share on other sites More sharing options...
cushiemom Posted January 10, 2008 Report Share Posted January 10, 2008 I'm not diagonosed....but I will tune in....not so sure I do have cushing's anymore...my PCP is pointing me in the Hypothyroidism direction. Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 10, 2008 Chief Cushie Report Share Posted January 10, 2008 For future chats: Who are the 13 people who were willing to be interviewed??? Please let either Robin or me know so we can set a time / day. We can set these chats up to a year in advance and they don't have to be Thursday OR 6:30 PM eastern. They can be at a time that's convenient for YOU and we can make this work. So, please, if you're interested, let us know! Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 10, 2008 Chief Cushie Report Share Posted January 10, 2008 Hi Robin, I'd love to, but were at the hospital tomorrow night...Cant even listen, no puters......... Jo, the chat will be archived and available on this site, on the BlogTalk Site, on another podcast feed and through iTunes. If you have subscribed to the Cushie Podcast it will show up on your computer automatically after I've added it there, probably Friday To subscribe to the Cushie Podcast, just click here: http://www.itunes.com/podcast?id=271150820 and after you do, please be sure to give us a good review and 5 stars The more reviews and stars we have, the higher we go on the ratings and the more likely it will be that others searching will find us. Who knows? Maybe someone will learn that they have Cushing's by listening to one of these podcasts! Link to comment Share on other sites More sharing options...
staticnrg Posted January 10, 2008 Author Report Share Posted January 10, 2008 Ummm Robin - you're not going to be alone if I'm there, are you? Geez, Mary! Now they won't feel sorry for me and call in!! Of course not. I was trying to play on sympathies! Do I look sad enough, yet? Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club Llama3234 Posted January 10, 2008 Member of the 1000 Post Club Report Share Posted January 10, 2008 Do I look sad enough, yet? Robin, you're going to have to find another smiley before it will start looking sadder. -Jessie Link to comment Share on other sites More sharing options...
medcats10 Posted January 10, 2008 Report Share Posted January 10, 2008 I'm willing to be interviewed, but I live in AZ and at 6:30 eastern, I am still at work. If I had enough notice I could possibly make it home by 7:30 eastern. I will turnmy computer on at work Robin at try and listen today if I don't have any patients. Good luck!!!! Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 10, 2008 Chief Cushie Report Share Posted January 10, 2008 We can set these chats up to a year in advance and they don't have to be Thursday OR 6:30 PM eastern. They can be at a time that's convenient for YOU and we can make this work. So, please, if you're interested, let us know! Let me know a time that's good for you, Alicia, and I can set up the next one for that time! Rignt now, we have chats scheduled through January 24th but those can be edited to change the day or time. We can have one chat every day if we want Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club Llama3234 Posted January 10, 2008 Member of the 1000 Post Club Report Share Posted January 10, 2008 Will you guys say something when you guys are ready for somebody to call in or what? Because, maybe, I'll call in tonight, but I don't want to call in at the wrong time:) Link to comment Share on other sites More sharing options...
msmith3033 Posted January 10, 2008 Report Share Posted January 10, 2008 QUICK HELP! I DOWNLOADED ITUNES BUT NOW I NEED HELP FINDING THE PODCAST. WHAT'S IT UNDER? HUGS, - MELINDA Link to comment Share on other sites More sharing options...
judycolby Posted January 10, 2008 Report Share Posted January 10, 2008 For future chats: Who are the 13 people who were willing to be interviewed??? Please let either Robin or me know so we can set a time / day. We can set these chats up to a year in advance and they don't have to be Thursday OR 6:30 PM eastern. They can be at a time that's convenient for YOU and we can make this work. So, please, if you're interested, let us know! I might of been one of those 12 but if not I would be interested. But I don't always think very fast if I'm nervous, But then again it's not like I haven't lived thi for a couple of years. So, would you want me to call i sometime or set something up so I'll leave work in time to hear all of the show? Judy Link to comment Share on other sites More sharing options...
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