Over 2000 Posts rooon55 Posted January 14, 2008 Over 2000 Posts Report Share Posted January 14, 2008 I am interested in telling my story, Since my disease started possibly when I was a little girl ( 7) and I finally got a diagnosis in 2005. How do you do this? Can I make my appointment? I have cycling Cushings, Thyroid disease, GH deficiency, and Auto immune Alopecia. I believe I am cured after two Pituitary surgeries. Can we use Skype to call in? Fill me in. Hugs, Karen Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 14, 2008 Chief Cushie Report Share Posted January 14, 2008 Yes, you can use Skype This is from the website that holds these chats: Is this going to be a long distance call? All phone numbers are local to New York, USA. Therefore, if you are outside the local area, you will be making a long distance call when phoning in to listen to a show. However, many phone carriers provide unlimited long distance for a basic monthly fee. VoIP providers also provide low-cost unlimited long distance service. Free alternatives include streaming the show on your computer or using a computer-to-phone solution such as Skype. Hosts also have the option to activate a Click-To-Talk feature in their account which allows listeners with a microphone headset to join a show without calling your dial in number, and hence for free. I am not sure about that Click-To-Talk thing just because I haven't looked for it yet or used it. Probably works fine, though. We would love to have you as a guest. I was planning on setting up a form for people who wanted to be interviewed...and my computer crashed Since I don't have that form yet, here's what I'd like to know about possible guests: If there's a bio on the site, the URL If there isn't, please tell us a little bit about you, especially diagnosis, surgeries, meds, other treatments If there are questions you'd like to have asked, that you would like to talk about or if there are topics you want to avoid, We have the next 3 chats tentatively set up already so the next one would be Feb 14, if all works out well. Tentative Future Guests: Jayne, January 31, 2008. MaryO hosts an interview with Jayne, a Cushing's patient who had pituitary surgery and a bilateral adrenalectomy before finding the true source of her ectopic Cushing's. Jayne also had a miracle baby despite her illness, which usually makes women infertile. She was featured in her local paper. Read that article here: Baby boy is miracle to mother with Cushing's disease Alicia (medcats10), February 7, 2008. Tentative interview with Alicia, a Cushing's Message Board member who is still testing. This show will be at 7:30PM (note later time!) Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted January 14, 2008 Over 2000 Posts Report Share Posted January 14, 2008 Ok Mary, I'd like to try for an interview, but as you know skype is free, but a lot of calls get dropped. I would probably call in, unless you think the Skype will be fine. I don't have a Bio on the site (bad girl) but I would love to send a letter along giving all of my information. Where do I send that to? Also I would have loved to be on Feb 14th but that is my 21st Anniversary, I have to go to Albany NY for the weekend. Maybe the next show? Hugs, Karen Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 14, 2008 Chief Cushie Report Share Posted January 14, 2008 You can either PM me the information or email it to CushingsHelp@gmail.com Do you want to do it this Thursday, then? Right now, JudyColby is planning to call back but she might be able to wait until Feb 14. The website says that Skype is fine. I've never used it so I don't really know, though. Link to comment Share on other sites More sharing options...
Holly Posted January 15, 2008 Report Share Posted January 15, 2008 YES KAREN!! I wanna hear you talk!! Tell tell!! Link to comment Share on other sites More sharing options...
judycolby Posted January 15, 2008 Report Share Posted January 15, 2008 I can switch. I'm always home. Judy Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted January 15, 2008 Over 2000 Posts Report Share Posted January 15, 2008 I could do this Thursday, but didn't you say that Judy was on before and that she is going to return to finish her story? She really has a story to tell with two Children fighting the disease at the same time, and now am I wrong, but Dad has it too? That is a story. We can try skyping, this way I can see you all and you can see me too. If the Skype disconnects us at any time I can just dial you back up. I will get busy and e-mail my story to you. We can figure out when I could be on later. Hugs, Karen Thanks Holly for being interested in my story Link to comment Share on other sites More sharing options...
judycolby Posted January 15, 2008 Report Share Posted January 15, 2008 Okay, so who's on first!? Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted January 15, 2008 Over 2000 Posts Report Share Posted January 15, 2008 You made a funny...heeheee I really think it should be you, so you could finish your story. Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 15, 2008 Chief Cushie Report Share Posted January 15, 2008 I'd say Judy for this week since the listeners are already primed to hear the rest of her story in a couple days That will give you time to write up your whatever, Karen, and I still need something from Alicia... Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted January 15, 2008 Over 2000 Posts Report Share Posted January 15, 2008 Sounds great to me. I will try to listen this Thursday night. Knock um dead Judy. Ummmm or is that break a leg????? HUgs, Karen Link to comment Share on other sites More sharing options...
judycolby Posted January 17, 2008 Report Share Posted January 17, 2008 Sounds great to me. I will try to listen this Thursday night. Knock um dead Judy. Ummmm or is that break a leg????? HUgs, Karen I'll try, just don't laugh at me. Knock um dead Judy. as for this, well the righ doctors won't be listening!!!LOL Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted January 17, 2008 Over 2000 Posts Report Share Posted January 17, 2008 hee heeee Judy your funny. Right Doctors hee hee Don't be nervous, after all your just going to be talkinf to friends. keep that in mind. I would never laugh at you. I am going to try to listen tonight. I have to figure out how first Hear you soon, Karen Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted January 17, 2008 Chief Cushie Report Share Posted January 17, 2008 To listen, be sure that your computer speakers are turned on. Then, just click the BlogTalk microphone image in my signature to listen while the show is going on. If the show isn't going on, you can hear the archived past shows that way. Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted January 18, 2008 Over 2000 Posts Report Share Posted January 18, 2008 Judy, That was such a great show. Your voice at times tugged at my heart strings. I also thought I heard a Kitty Meowwww What a story you have to tell. Hugs, Karen Link to comment Share on other sites More sharing options...
judycolby Posted January 18, 2008 Report Share Posted January 18, 2008 Thanks Karen, I think Jess is ready to listen to it, I'm not sure I am yet!! The cats were walking around thw room I was in, so you probably heard them! Now I can't wait to hear you and some others!!! Judy Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted March 11, 2008 Chief Cushie Report Share Posted March 11, 2008 Part 2 coming up this Thursday. Please remember to call in - (646) 200-0162 Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted March 13, 2008 Chief Cushie Report Share Posted March 13, 2008 25 minutes until showtime! Please call in We still need more people for these shows, either to be interviewed or to just talk. The last people on the schedule are currently Monica and Crystal on March 27th. Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted March 14, 2008 Chief Cushie Report Share Posted March 14, 2008 The lastest episode from tonight is up at the Podcast page of this site, BlogTalkRadio or through iTunes Podcasts Enjoy! Later it will also be on the CushingsHelp Podcast Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted August 21, 2008 Chief Cushie Report Share Posted August 21, 2008 Call in tonight to talk to Robin and MaryO! The Call-In number is (646) 200-0162 Link to comment Share on other sites More sharing options...
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