Chief Cushie ~MaryO~ Posted July 12, 2008 Chief Cushie Report Share Posted July 12, 2008 Kate (Fairley). Kate (Fairley) has had symptoms since 1991. She has had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituiarism and a CSF leak. Kate writes in her message board signature: 1991 - Symptoms began Oct. 4, 2006 - Testing begins with Dr. F Dec. 24, 2006 - Dx of Episodic Cushing's Disease Jan. 5, 2007 - 1st pit surgery with Dr. J in P'burgh April 3, 2007 - Confirmation of path-proven ACTH-secreting adenoma June 18-22, 2007 - Testing with Dr. L for recurrence at Swedish in Seattle July 13, 2007 - Dx of Recurrence of Episodic Cushing's Disease July 26, 2007 - Dr. McC @ MD Anderson confirms existence of recurrent tumor on right side July 27, 2007 - 2nd pit surgery with Dr. J in P'burgh; removal of tumor from right side of pit Oct. 10, 2007 - CSF leak repair surgery March 2008 - recurrence suspected but cannot test due to cortisol-lowering narcotics for suspected osteonecrosis of left hip. Idiopathic Intracranial Hypertension, panhypopituiarism, CSF leak, and, for now.... No cure for me. Pituitary Cushings: Kate and Dr. Ted F. on National Geographic TV were featured on the National Geographic channel. The show, called the Science of Obesity, has a segment on Cushing's syndrome. Today, 127 million adult Americans are considered overweight, but few reach the extreme proportions of the exceptionally obese. What are the physical stresses of weighing more than 500 pounds and what steps can reverse it? NGC provides an understanding of what happens inside the bodies of these massive people & why a person can pack on hundreds more pounds than those with typical weight challenges. The show explores the genetics behind weight gain & medical advances available to help prevent it. I hope that all of you can watch this. Please consider contacting your local media about doing your story! There is still much work to do to increase Cushing's awareness. Discuss this TV show. More about Dr Ted F. See the video here Read Kate's articles: Kate's Family Letter Kate's Packing Suggestions For Surgery Kate's Pituitary Surgery Observations Attend Kate's Interview on July 17, 2008 Link to comment Share on other sites More sharing options...
Over 2000 Posts Valerie Posted July 13, 2008 Over 2000 Posts Report Share Posted July 13, 2008 Hi Mary, On what Channel and time is Kate's interview. I am on Pacific time and the stations are different out here. Let me know. Thanks, Valerie Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club Fairley Posted July 13, 2008 Member of the 1000 Post Club Report Share Posted July 13, 2008 Hi Mary, I would just like to add that I am gearing up for a BLA and radiation right after that as my tumor has been confirmed in the cavernous sinus now. I am looking forward to the interview, and hope that it will be helpful to everyone. Hugs, Kate Link to comment Share on other sites More sharing options...
mrsb91986 Posted July 13, 2008 Report Share Posted July 13, 2008 Kate sweetie, I look forward to listening to your interview! Any dates on your upcoming surgeries & radiation? Ginormous hugs kiddo, Mar Link to comment Share on other sites More sharing options...
Over 2000 Posts Valerie Posted July 14, 2008 Over 2000 Posts Report Share Posted July 14, 2008 Kate, I am so sorry about another surgery. I haven't been on the boards in so long, my own problems never seem to end. I will be sending good thoughts your way. Valerie Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted July 18, 2008 Author Chief Cushie Report Share Posted July 18, 2008 Great job, Kate! Thanks Link to comment Share on other sites More sharing options...
Over 2000 Posts philb Posted July 18, 2008 Over 2000 Posts Report Share Posted July 18, 2008 Good job Kate. Thank you Mary. Link to comment Share on other sites More sharing options...
Recommended Posts
Archived
This topic is now archived and is closed to further replies.