staticnrg Posted December 15, 2008 Report Share Posted December 15, 2008 Monday, December, 15, 2008 at 10:00 PM ET on Discovery Health Mystery Diagnosis The Girl Who Couldn't Wake Up After a terrifying car crash disrupts her life, 16 year-old Jennifer Julian is struck by a string of bizarre fainting spells; Cara Mae Lower is a happy and healthy 11year-old until one day she comes home from school complaining of a terrible headache. (Check your local listings for the time. It may vary from mine.) A must-read article, 'The girl who couldn't wake up', details the events after Jennifer Julian Jenkins was in a wreck which caused the pituitary to be separated from its stalk (infundibulum). She was misdiagnosed and mistreated for 5 long years. Quote Link to comment Share on other sites More sharing options...
staticnrg Posted December 15, 2008 Author Report Share Posted December 15, 2008 Also Tuesday, December, 16, 2008 at 02:00 AM ET on Discovery Health This is the gal who was in a wreck, pituitary was severed from the stalk, and no one could figure out what was wrong with her. Sounds like it will be good! Robin Quote Link to comment Share on other sites More sharing options...
twinkie Posted December 15, 2008 Report Share Posted December 15, 2008 Thanks for getting the word out Robin. love, melly in nv Quote Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club MelissaTX Posted December 15, 2008 Member of the 1000 Post Club Report Share Posted December 15, 2008 Thanks Robin. I just set it to record! Quote Link to comment Share on other sites More sharing options...
staticnrg Posted December 16, 2008 Author Report Share Posted December 16, 2008 On the east coast it is now on.... Quote Link to comment Share on other sites More sharing options...
staticnrg Posted December 16, 2008 Author Report Share Posted December 16, 2008 Wow...the second half about "Cara" is about pseudo-tumor cerebri..... (Doesn't she look Cushie to you?) Quote Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club happy41 Posted December 16, 2008 Member of the 1000 Post Club Report Share Posted December 16, 2008 I could really relate to the description of the intense sleepiness. That was exactly how I felt pre-op. Quote Link to comment Share on other sites More sharing options...
Over 2000 Posts kalimae7371 Posted December 16, 2008 Over 2000 Posts Report Share Posted December 16, 2008 I watched both segments! Both were great . . . . first about pituitary deficiencies and second on pseudo-tumor cerebri (intracranial hypertension). Thing I can't get past is how doctors just write people off and don't believe them! I'm so mad after watching the second segment that I could scream!!! That poor girl! Her parents had to be the ones to "go to bat" for her and they failed her. Thank goodness they found out what was wrong and fixed it just in the nick of time. Robin . . . . thanks for posting about this episode! That's the only reason I knew it was on!! Hugs Amy Quote Link to comment Share on other sites More sharing options...
justashell Posted December 16, 2008 Report Share Posted December 16, 2008 I woke up in time to watch it. It's surprising to me that so many doctors STILL missed it, when her symptoms were so dramatic! A couple of things I wasn't too keen on: 1) They never mentioned that this can be caused by other things. 2) Apparently, two pills "cure" this condition. At the end of the second case, I turned to my husband and said: "Those have been mentioned on the message boards too." As they shared the second gal's story, I kept telling my husband that it was interesting that all of this started around the time this girl started experiencing her first period. I would have liked a bit more of an explanation as to whether this was related to endocrine changes. Quote Link to comment Share on other sites More sharing options...
Over 2000 Posts da89165 Posted December 16, 2008 Over 2000 Posts Report Share Posted December 16, 2008 Thanks for posting about this Robin, I saw your post and caught it just in time. At the end of each segment when they ask the treating doc, "why did it take so long for a doctor to figure this out"..........they both literally said the same thing...."well, there were lots of non-specific symptoms that could have happened to anyone......blah! blah! blah!" A real, cover-your-fellow-docs-butts type response....boo!! I was infuriated when the doc said, "all you need to do is take these 2 little pills and you'll have your life back".......kill me now!!!!! I could have bonged those parents on the head in a big way!!!! Quote Link to comment Share on other sites More sharing options...
justashell Posted December 16, 2008 Report Share Posted December 16, 2008 Forget about bonging the parents in the head----we need to bong the doctors in the heads---they're the ones who're really screwing us over. Let them try and live with a pit. that's on the fritz! Quote Link to comment Share on other sites More sharing options...
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