armymp Posted October 21, 2009 Report Share Posted October 21, 2009 I just had my blood work and UFC back and he said... well.. it LOOKS normal... Also said one test is good to rule out that anything is wrong. I was looking for some research or articles to show that sometimes it takes years to get diagnosed and that its not as easy as they are trying to make it out to be. Something to show that ONE test is not enough and that it is a complicated process. Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club happy41 Posted October 21, 2009 Member of the 1000 Post Club Report Share Posted October 21, 2009 http://jcem.endojournals.org/cgi/content/abstract/93/5/1526 Download the full version. But get a different doc. If you have to argue this hard, you need to see someone else. Link to comment Share on other sites More sharing options...
KJC Posted October 21, 2009 Report Share Posted October 21, 2009 http://www.endocrinetoday.com/view.aspx?rid=33057 The Difficulties of Cushing's Syndrome "Diagnosing and treating Cushing?s syndrome is sometimes just as difficult as it was 70 years ago." ?No test is 100% sensitive or specific,? Salvatori said. ?I always use two, sometimes three, screening tests.? However, Salvatori noted he feels the night-time salivary cortisol test is the most reliable and easy to obtain. This is where the frustrations run high. IMO don't waste too much time with doctors that are not educated about cushing's. Good Luck and be strong moving forward to get the proper testing. Kim Link to comment Share on other sites More sharing options...
rmaxwell Posted October 22, 2009 Report Share Posted October 22, 2009 The first endo. I saw did the same thing - ordered 1 24hour UFC which came back normal. She said "See... so you don't have Cushing's". Luckily I didn't believe her. I went to a better doctor who did many more tests and ordered a pitituary MRI - which found a tumor. I bet everyone on this board has a similiar story to tell. See a different doctor and don't give up! Link to comment Share on other sites More sharing options...
Over 2000 Posts JenS Posted October 22, 2009 Over 2000 Posts Report Share Posted October 22, 2009 Even the new guidelines that came out said three tests - and if clinical suspicion is high, continue to test, in the case if that rare cyclical thing... oooh. Find a new endo - that one has not a single clue. Not one. Link to comment Share on other sites More sharing options...
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