I'm going to make a very long story somewhat short here.... I have had all kinds of health issues over the last 10-12 years that has lead me to many Dr's, mis-diagnosis and giving up on figuring it out. Nov. 2018 my normal nausea and vomiting turned into turned into vomiting everything I ate or drank and by early Feb 2019 I ended up seeing my PCP. She sent me for an abdominal CT scan as well as to a Gastroenterologist. Blood work found nothing, gastric emptying study was only half completed because I got sick (but was normal). The CT scan however showed a 4.4CM adrenal adenoma on my left adrenal gland as well as a few small nodules in my left lung. I was sent for a follow up CT scan with contrast related to the adrenal nodule- adrenal mass 4.4cm HU13 washout 79%. I'm told this means that it's most likely not cancer or functioning. I really don't know anything and I move on. Still no relief to issues going on. I go to see an acupuncturist and during the consult they mentioned Cushings syndrome. I bring that up and my Dr blows me off. I requested a referral to an endocrinologist, and am told no. A few months pass with no change other than less control for diabetes. Dr. says I should see an endo, however the endocrinologist denied the referral. HMO's can be so horrible. So I appeal it, they decide to test my blood cortisol 8 am. It's normal. Appeal was denied, followed by two more appeals. The final appeal goes to an independent review board and they overturn HMO's ruling and I get to see an endo (this was just a couple weeks ago). Due to Covid they are only doing phone appointments so no exam, endo was nice but didn't really think too much of all my symptoms or anything. Kept referring back to radiology stating that it isn't cancer/functioning, but decides to run tests.
His notes related to tests, as well as results are below. He was honestly irritated when I asked questions (mainly on ACTH, I asked what is considered low. He said there is no low ACTH), he mentioned he went to school an additional 6 years to be an endo..blah blah blah. I am taking dexamethasone tonight, hoping that will help. Am I crazy to keep pursuing? Dr's and honestly family make me feel like I am losing it, making symptoms up. etc.
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Guest Amanda
I'm going to make a very long story somewhat short here.... I have had all kinds of health issues over the last 10-12 years that has lead me to many Dr's, mis-diagnosis and giving up on figuring it out. Nov. 2018 my normal nausea and vomiting turned into turned into vomiting everything I ate or drank and by early Feb 2019 I ended up seeing my PCP. She sent me for an abdominal CT scan as well as to a Gastroenterologist. Blood work found nothing, gastric emptying study was only half completed because I got sick (but was normal). The CT scan however showed a 4.4CM adrenal adenoma on my left adrenal gland as well as a few small nodules in my left lung. I was sent for a follow up CT scan with contrast related to the adrenal nodule- adrenal mass 4.4cm HU13 washout 79%. I'm told this means that it's most likely not cancer or functioning. I really don't know anything and I move on. Still no relief to issues going on. I go to see an acupuncturist and during the consult they mentioned Cushings syndrome. I bring that up and my Dr blows me off. I requested a referral to an endocrinologist, and am told no. A few months pass with no change other than less control for diabetes. Dr. says I should see an endo, however the endocrinologist denied the referral. HMO's can be so horrible. So I appeal it, they decide to test my blood cortisol 8 am. It's normal. Appeal was denied, followed by two more appeals. The final appeal goes to an independent review board and they overturn HMO's ruling and I get to see an endo (this was just a couple weeks ago). Due to Covid they are only doing phone appointments so no exam, endo was nice but didn't really think too much of all my symptoms or anything. Kept referring back to radiology stating that it isn't cancer/functioning, but decides to run tests.
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