My Story is almost word for word the same as you. I am 29 and have been dealling with this for over 7 years now. I finally got an MRI that showed my tumor on my pituitary. I took the bull by the horns and went on the internet and found a few different Hospitals and Clincs that specialize in Pituitary tumors and cushing's syndrome. Nearest to me is OHSU Oregon Health & Science University in Portland. You can print off a referal from your computer and take it to your endo. My Endo was actually excited about it. She hopes to learn more from the Specialist there. I have an appointment there in 2 weeks. Portland is over 8 hours away for me but after this battle it will be worth it. Good Luck.