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Bagira

Confused

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Hello everyone, My name is Kristina and i am 21 years old.I am so happy that i found this site because there are so little information about Cushing's, especially real people stories. If not internet or tv i still wouldn't know what is happening with me for a quite long time.

Hm i don't know where to start, as a kid i always was very thin, and everything started changing when i was 11 or 12 years old i started to gain more and more weight, and after few years was diagnosed with hypothyroidism, i took medicine and lost my weight , but when i was 15 everything started changing again but much worse, i was always hyperactive, happy, enthusiastic, always got best grades and ect... i was always depressed, always asleep, feeling dizzy, everyday felt exhaustion, i even started missing schoool , didn't even went where because i didn't had energy to get up from bed and get dressed, and also with +66lbs i really didn't wanted to show my face anywhere. And everyday everything get worse and worse, because of all this lack of energy and motivation i quit law studies, and then other studies, i don;t have energy to do simple house chores, my muscles always hurts, my head everyday hurts, i can't sleep, i still get on weight every week almost, i have 800 kcal diet, and do some exercises, and weight still puts on... my hair is so ugly, my skin is very dry i got eczema that my skin doctor can't cure, i broke my kneecap with very light impact i have many many other problems, and when i saw this on house md and mystery diagnosis i started my reseach on internet and library, i took very hard road that my endro would write prescriptions for all blood tests and MRT and now i am waiting for results and am very be anxious and have still many many questions.

 

I know that all cases are different but maybe someone could share, if after treatment or surgery, how hard is to loose weight, and not feel tired all the time? what to expect?

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Hi Kristina and welcome to the boards. It sounds like you have been through a lot and I hope your tests will give you the answers you need. Everybody is different of course but it seems as though younger people with Cushing's lose weight a lot more easily after successful tumor removal than anybody else. Being tired in the weeks after surgery is pretty typical as well but it can also take a while to be able to sleep through the night again. People with successful tumor removal don't seem to suffer from the kind of fatigue people with full-blown Cushing's experience. Many people need to keep an eye on their hormones after surgery and replace whichever ones might become deficient (including growth hormone). We will try to answer any other questions you might have. Good luck with everything and please keep us posted as to how things go.

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Thank you very much for answers i will have to wait for my results to know what is causing cushings :)

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