SuzieQ23

I don't know much about the cycles talked about. I do know that it has been 16 months since I had a pituitary tumor removed. I am still taking 25 mgs. of Cortef every day. That's the same dosage I started out on after the tumor was taken out. I have had my cortisol levels tested and I am supposed to cut back on the amount of hydocortisone I take but everytime I do even by 2.5 mgs. I get very achy and my muscles feel tired and weak. I think it would benefit to have a meter to help watch the levels more frequently to know how to ajdust the hydrocortisone. I don't like being on it and want to be able to stop it completely.

I have also noticed that when I need to adjust the cortisone, I also have blood sugar readings that fluctuate more. I am a diabetic, type 2, but since the tumor was removed, I no longer have to take any medication as that has inproved. I used to take 2 medications for high blood pressure too, and now take none, my blood pressure is great. That's another thing I can monitor at home, so why not have a way to monitor cortisol levels too?

My endocrinologist has been very supportive and if not for her I don't kow how long it would have taken to get the diagnosis and get the tumor removed. She is great, and I plan to ask her about this idea of a meter when I see her in a few weeks.

Hang in there and prayers for all. <---my hair is something like that, now that it is coming back in on my head and not on my face! Healing is a process! It doesn't happen overnight. About one year ago at this time I had it shaved, because it was so thin and I had too much pain to reach to take care of it. After physical therapy I can walk a mile a day, and wear my shoes and socks. Before that my feet were too swollen and painful!

I'm glad for this support site and the notices on Facebook.

I would like to find out where to get yellow and blue lapel pins, but don't see them with the t-shirts and other items for sale, thanks