MaryO
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Status Updates posted by MaryO
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Social media dominates most people's lives these days. You see what everyone you know is up to, but the problem is, most people only post about the highlights of their lives.
You don't get to see the low points, the every day struggles. You don't see what keeps them up at night with worry...
Read more at https://cushieblogger.com/2018/04/05/from-a-past-blogging-challenge-cushings-awareness-challenge-day-5/
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[Pseudo-Cushing's] Michigan woman nearly dies after herbal supplement found to be laced with steroids
The "pills were loaded with Dexamethasone … [which] is a medication. It’s a synthetic steroid, very potent, very long acting, and if we take it for quite some time, we develop what is called Cushing Syndrome,” said Dr. Barkan.
Higgins was diagnosed with Cushing Syndrome, and Barkan says she could have died if she hadn’t sought help.
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9 Tips For Safe Travel With Diabetes (or other conditions)
Many of these tips work for Cushing's patients on Growth Hormone, as well.
Read more at https://maryomedical.com/2017/05/19/9-tips-for-safe-travel-with-diabetes/
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Adventures with Human Growth Hormone: Travelling (Flying)
...I had the gel pack from the iCool frozen solid and put that in a small Rubbermaid lunch bag with 2 thin ice packs, 1 on top and 1 on the bottom. If you don't want to read all the way to the end, this system kept the growth hormone cold for the 20 hours going and returning but the 2 thin blocks had completely thawed. The inner iCool was mostly frozen and the growth hormone was still cool....
Read more at https://maryomedical.com/2017/10/15/adventures-with-human-growth-hormone-travelling-flying/
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All Types of Cushing's are NOT the Same
In the words of our dear friend and advocate, Robin Ess, 'There are many genetic varieties with quite a few discovered in the past couple of years. Plus, there are several types such as adrenal, ectopic, and pituitary. And so on'....Amazingly, some doctors do not realize that there are different varieties of Cushing's and that the symptoms can come from a different source.
Read more at http://www.cushings-info.com/index.php?title=All_Types_of_Cushing%27s_are_NOT_the_Same -
Another comment added to Stefanie, Pituitary Bio
I was also diagnosed in 2012 and has surgery in 2013. I continue on meds and have many health issues still. I haven’t had a full recovery and dramatic weight loss or anything. I’m now starting to regret surgery as it has left me very limited in what I can do. I was far more mobile before. I miss my life. I’ve lost everything since having surgery!..
Read more in the comments area of https://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/
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Bruising easily and gaining weight? Don't mistake high blood pressure for Cushing's!
Cushing's Syndrome is a hormonal disorder caused by prolonged exposure to the hormone cortisol - which can be caused by taking steroids. Cortisol regulates metabolism and immune response in the body.
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Caryl, Undiagnosed Bio
Caryl is from Philippines. She is not yet diagnosed with Cushing's but her OB-GYN told her she has PCOS. She has several other Cushing's symptoms.
Read more at https://cushingsbios.com/2018/12/31/caryl-undiagnosed-bio/
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Causes of Cushing’s Syndrome
Pituitary Tumors, Adrenal Tumors, and Other Cushing’s Syndrome Causes
Read more at https://cushieblog.com/2016/10/02/causes-of-cushings-syndrome/
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Comment added to Nicole, Undiagnosed Bio
Your case is every similar to mine. I wasn’t a dancer but I did play multiple sports in high school and played college basketball. I saw doctor Yuen at Swedish as well and many more doctors as well. I have never got my case or my symptoms solved. Over 4 years of doctors and testing. They found I had a pituitary tumor and mildly high cortisol in my 24 hour Urine test with high levels of testostine...
Read more in the comments at https://cushingsbios.com/2017/07/13/nicole-undiagnosed-bio/
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Comment added to Rachel, Undiagnosed Bio
Hi Rachel, I’m 27 and share very similar symptoms with you. I luckily have a great primary care doc who I can talk to about this during my next appt. I’d love to compare notes! Feel free to reach out.
Read the original bio at https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/
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Comment added to Stefanie, Pituitary Bio
I, too, was diagnosed with a pituitary tumor and subsequently had surgery to remove it. I still struggle day to day with many issues…word finding, comprehension, emotions. I also struggle with finding Cushings disease support groups in our area.
In the comments at https://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/
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Comparison of MRI techniques for detecting microadenomas in Cushing's disease
This study was a blinded assessment of pituitary MRI in patients with proven Cushing's disease.Read more at https://cushieblog.com/2017/04/29/comparison-of-mri-techniques-for-detecting-microadenomas-in-cushings-disease/
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Cushing's Disease or Syndrome?
Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.
Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F -
Cushing's Disease or Syndrome?
Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.
Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F -
Cushing's Disease or Syndrome?
Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.
Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F -
Cushing's Syndrome Eludes Treatment Paradigm or Standard Approach to Care
Results of two systematic reviews indicate that while surgery is the preferred treatment, many patients present with contraindications without an accepted management paradigm leaving clinicians to follow a patient-centric approach to care.
Read more at https://cushieblog.com/2018/07/07/cushings-syndrome-eludes-treatment-paradigm-or-standard-approach-to-care/
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Cushing’s Diagnosis and Symptoms, part 2
Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.
Listen at http://www.blogtalkradio.com/cushingshelp/2008/03/13/-cushings-diagnosis-and-symptoms-part-2
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Cushing’s Syndrome Treatments
You may need one treatment or a combination of these treatments to effectively treat your Cushing's syndrome. Your doctor will let you know what treatments for Cushing's syndrome you'll need.
Read more at https://cushieblog.com/2017/01/01/cushings-syndrome-treatments/
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Cushing’s Syndrome Treatments
You may need one treatment or a combination of these treatments to effectively treat your Cushing's syndrome. Your doctor will let you know what treatments for Cushing's syndrome you'll need.
Read more at https://cushieblog.com/2017/01/01/cushings-syndrome-treatments/
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DUH! Cushing's disease best treated by endocrinologist
I was told that I have Cushing's disease, which has caused diabetes, high blood pressure, hunger, weight gain and muscle loss. I was never sick before this, and I did not have any of those things. I am told I have a tumor on my right adrenal gland. I have been to numerous doctors, but most have not been too helpful.
Read more at https://cushieblog.com/2016/10/04/cushings-disease-best-treated-by-endocrinologist/
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How to avoid pitfalls in interpretation of adrenal imaging
A clear understanding of the pitfalls in the performance and interpretation of adrenal CT can help prevent incorrect and inappropriate investigations, award-winning researchers from a top London facility have found. It's essential to keep aware of the full range of pseudolesions and mimics, they said.
"Evaluation of adrenal tumor function is limited on imaging, but may be inferred from imaging findings," noted Dr. Gurinder Nandra and colleagues from the department of radiology at St. George's University Hospitals NHS Foundation Trust in an e-poster presentation that received a cum laude award at RSNA 2018 in Chicago.
Read more at https://cushieblog.com/2019/01/21/how-to-avoid-pitfalls-in-interpretation-of-adrenal-imaging/
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In Memory of Alena Renea Weeks Greenhill, March 30, 2007
It may not have been adrenal crisis, but it may have, as Renea, after her BLA, didn't need replacement. She hadn't taken hydro for some year(s), and yet her cortisol was always '0'. The doctors would just scratch their heads.Renea was 31.
Read more at https://cushingsbios.com/2015/03/30/in-memory-alena-renea-weeks-greenhill/
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In Memory of Erica Michelle “GaGa” Meno, a Cushie who died this day in 2015
Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
Read more at https://cushingsbios.com/2015/03/11/in-memory-erica-michelle-gaga-meno/
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In Memory: Erica Michelle “GaGa” Meno, March 6, 2015
Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
Read more at https://cushingsbios.com/2015/03/11/in-memory-erica-michelle-gaga-meno/
