MaryO

...I have been taking a lot of liquid Magnesium and minerals she suggested and I feel better. I had the same symptoms, plus polycystic ovaries, and migraines. This regime has helped me...

In the comments at https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/

...I too have Cushings. I have a recurrence of my tumor and I am currently taking medication. You are not alone.

In the comments area of https://cushingsbios.com/2018/04/03/tamara-k-pituitary-bio/

...My dermatologist took one look at me and suggested it was Cushing’s then immediately referred me to an endocrinologist. I have been lucky to have good doctors along the way. I’ve had my pituitary and adrenal glands removed as well as radiation treatment and participated in a drug study. Today I struggle mostly with fatigue, weak muscles, headaches and anxiety...

In the comments area of https://cushingsbios.com/2017/10/24/ren-undiagnosed-bio/

...My family doctor and husband think I am lazy, fat and crazy when they ship me off to a mental ward. I know I am physically sick but can’t convince the psychiatrist. He writes in his reports that I am a hypochondriac. My controlling, narcissistic husband tries to gaslight me into believing I am mentally ill. After he admits his affair, I leave him and find out I have Cushing’s Disease with a pituitary tumor and uterine cancer. I have sucessfull surgery to remove the tumor and cancer...

In the comments area of https://cushieblogger.com/2019/04/02/day-2-cushings-awareness-challenge-2019/

...My husband was diagnosed with Cushing’s disease Nov 2016 and was told the moon face (round swelling of face) and the purple striae (purple stretch marks) were classic symptoms of Cushing’s...

In the comments area of https://cushingsbios.com/2017/10/24/ren-undiagnosed-bio/

...My son the doctors call him a Zebra regarding his medical & now brain. Issues from cortisol damage . I’ve traveled 26,000 miles trying to battle this disease with him...

In the comments area of https://cushieblogger.com/2018/04/08/have-you-had-treatment-for-cushings/

...We lost a young woman with Cushing's to suicide in 2014. There are rumors now that another recent loss was suicide as well. In my mind, regardless of what the exact cause was, Cushing's is at fault.  Cushing's led them to their deaths just as surely as if it had struck the death blow itself. If that is hard for you to fathom, then please allow me to educate you briefly on this dastardly, "most morbid of diseases" and why I feel the way I do....

Read more at https://cushieblogger.com/2018/04/02/digging-deep-depression-anxiety-and-suicide/

...What I kept thinking was how much http://cushings-help.com was what got me through, all the information and the support from forum members kept me going. I was going to send you a message to thank you but decided it needed to be said publicly. Thank you so much, you saved my family.

Read more at https://cushieblogger.com/testimonial/judy-k-2/

...You may also have undiagnosed hypothyroid problem just because all thyroid hormone levels are within normal limit in the test. However, there are 6 different kind of thyroid disease with different mechanism... 

In the comments area of https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/

.The EPIC Foundation would like to recognize Mary Kelly O’Connor as a pioneer in the Cushing’s community as an advocate and life changer! Mary Kelly O’Connor is Person of the Month for May, 2018!...

Mary O wants to support, educate, and share! She has been able to provide support to an entire community of people on her own and with very little funding. She puts her heart and soul into this work because she cares deeply about this community! Mary O has been able to turn her adversity into an opportunity to walk in her purpose to change lives!

Mary Kelly O’Connor is definitely someone you should know! The EPIC Foundation proudly works in alliance with Mary Kelly O’Connor the founder of Cushing’s Help, a foundation dedicated to giving Cushing’s patients valuable information, a space to share their stories, and a place to connect with one another. To learn more information about Mary O and her work, you can go to her website at http://cushings-help.com/ Together, We are EPIC!

Read more at https://cushieblogger.com/2018/05/01/mary-kelly-oconnor-person-of-the-month-may-2018/

“We are pursuing a drug that has a very real potential to become the optimal agent of choice and a standard of care for these Cushing’s patients,” said Manohar Katakam Ph. D., CEO of SteroTherapeutics. "Our clinical trial will target multiple critical metabolic-related outcomes including the reduction of triglycerides, insulin resistance, weight loss, and the prevention and/or abrogation of hepatic steatosis and fibrosis.”

Read more at https://cushieblog.com/2018/04/04/sterotherapeutics-receives-fda-orphan-drug-designation/

These findings highlight the significant burden associated with CD. As current treatment options may not fully reverse the burden of chronic hypercortisolism, there is a need for both improved diagnostic tools to reduce the time to diagnosis and effective therapy, particularly a targeted medical therapy.

Read more at https://cushieblog.com/2017/08/13/the-burden-of-cushings-disease-clinical-and-health-related-quality-of-life-aspects/

After Your Transsphenoidal (Pituitary) Surgery

After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

After Your Transsphenoidal (Pituitary) Surgery

After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

Comment added to Nicole, Undiagnosed Bio
 

I saw your case on searching against dexamethasone yours and others sound so similar to the person who I care for who has been so affected by what we see as steroid induced cushings..

In the comments area of https://cushingsbios.com/2017/07/13/nicole-undiagnosed-bio

Fact: UFC stands for Urinary Free Cortisol. In layman’s terms this test assesses cortisol by collecting urine for 24 hours. It was once thought that this was the gold standard and the end all and be all in terms of assessing Cushing’s in a patient. What we now know is that this is not necessarily true...

Read more at https://cushieblogger.com/2018/04/16/myths-and-facts-about-cushings-ufcs-are-the-gold-standard-for-cushings-testing/

Measuring TSH Levels Could Improve Diagnosis for Cushing’s Syndrome

Measuring the variation in thyroid stimulating hormone blood levels between midnight and morning may be better for diagnosing Cushing’s syndrome than current approaches, a study suggests. 

Read more at https://cushieblog.com/2018/06/30/measuring-tsh-levels-could-improve-diagnosis-for-cushings-syndrome/

Top Doctors and Hospitals Receiving Payments From Corcept, makers of Korlym

(Please note that I'm sharing this from the Cushings-Help.com message boards. You must be a logged-in member of that board to read the rest of this post. Log in or register at http://cushings.invisionzone.com )

Read more at http://cushings.invisionzone.com/topic/54309-is-your-doctor-being-paid-to-prescribe-korlym/

Top Doctors and Hospitals Receiving Payments From Corcept, makers of Korlym

(Please note that I'm sharing this from the Cushings-Help.com message boards. You must be a logged-in member of that board to read the rest of this post. Log in or register at http://cushings.invisionzone.com )

Read more at http://cushings.invisionzone.com/topic/54309-is-your-doctor-being-paid-to-prescribe-korlym/

A long-time member of the Cushing’s Help message boards, AutumnOMA , gave me permission to share info about these wonderful Cushing’s Awareness Stickers she has made

Read more at https://cushieblogger.com/2018/04/23/%F0%9F%A6%93-cushings-awareness-ribbon-stickers-are-here/

A shorter duration of adrenal insufficiency — when the adrenal gland is not working properly — after surgical removal of a pituitary tumor may predict recurrence in Cushing’s disease patients, a new study suggests.

Read more at https://cushieblog.com/2019/02/09/faster-adrenal-recovery-may-predict-cushings-disease-recurrence/

Adrenocortical carcinoma is a malignant tumor that develops in the cortex of the adrenal gland. It usually is identified by increased amounts of hormones that are produced by the adrenal glands, like cortisol.

This tumor type is very rare in children, representing fewer than two in every 1,000 pediatric tumors.

Read more at https://cushieblog.com/2018/05/05/rare-malignant-tumor-of-adrenal-gland-led-to-cushings-girls-death/

After I was finished with the Cushing's long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.

Read more at https://cushieblogger.com/2018/04/15/day-15-cushings-awareness-challenge-2018/

After I was finished with the Cushing's long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.

Read more at  https://cushieblogger.com/2019/04/14/day-14-cushings-awareness-challenge-2019/

After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.

Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op