MaryO

Jane is from California.  She  76 years old and was recently diagnosed with Cushing's Syndrome after years and years and years of suffering symptoms.

Read more at https://cushingsbios.com/2018/05/05/sjw-jane-w-adrenal-bio/

Jenn (StaceyJenn) was diagnosed with adrenal insufficiency, hypothyroidism, and a host of other ailments in 2001 (candidiasis, intestinal permeability, 22 latent food allergies). Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds...

Listen at https://cushieblogger.com/2018/04/14/interview-archive-jenn-steroid-induced-iatrogenic-cushings-patient/

Karen (Rooon55), February 21, 2008. Karen’s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries.

Read more at  https://cushieblogger.com/2018/04/07/interview-archive-with-karen-n-cyclical-cushings/

Karen’s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn’t advise Vermont’s Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing’s disease – another Cushing’s patient did.

Read more at https://cushieblogger.com/2017/04/12/karen-nolan-cyclic-cushings-part-2/

Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/17/interview-with-kate-fairley

Sadly, Kate was only 46 when she died on June 23, 2014.  Her bio and video can be found here: https://cushingsbios.com/2015/06/23/1623/

Katie’s short bio: Symptoms started in 2002 at age 22, or before. Jan. 2008 – 2 mm. area of differential enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 – DX – hypothalamic amenorrhea Mar. 2008 – DX – pituitary adenoma, hypogonadism – female. 

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/24/interview-with-katie-kvb927

Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/interview-with-jackie-samsmon-jordan (The URL appears incorrect due to last minute guest changes.)

Listen as Jayne Kerns and Robin Smith (staticnrg) hosted a Cushing’s Awareness Day Special Chat

Read more at https://cushieblogger.com/2018/04/08/special-cushings-awareness-day-archived-voice-chat/

Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/02/interview-with-monica-pituitary-survivor

Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.

Listen at https://cushieblogger.com/2018/04/11/interview-archive-cushings-diagnosis-and-symptoms-part-2/

Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-hosted Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/03/13/-cushings-diagnosis-and-symptoms-part-2

Louise from Washington   She has ACTH independent bilateral adrenal hyperplasia.

Read her bio at https://cushingsbios.com/2018/11/23/louise-adrenal-bio/

Love this picture that came up in one of the Cushing's Conference presentations.

See the slide at https://cushieblogger.com/2017/07/22/love-the-slide/

Mak is from California  She has been having a really rough couple years with a multitude of symptoms.  A  6mm microadenoma was found on her pituitary gland.

Read her bio at https://cushingsbios.com/2018/11/26/mak-m-pituitary-bio/

Mary Kelly O'Connor, you are an inspiration to so many! Thank you for all you have done and continue to do for our community!

More at https://cushieblogger.com/testimonial/autumn/

Mary O’Connor (MaryO) hosted an interview with Jayne, a Cushing’s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopic Cushing’s.

Read more at https://cushieblogger.com/2018/04/04/interview-archive-with-jayne-ectopic-cushings-patient/

Medical therapy has an important, albeit secondary, role in patients with Cushing’s syndrome. While medications are not currently used as definitive therapy of this condition, they can be very effective in controlling hypercortisolism in patients who fail surgery, those who are not surgical candidates, or those whose tumor location is unknown. Medical therapies can be particularly helpful to control hypercortisolism in patients with Cushing’s disease who underwent radiation therapy and are awaiting its salutary effects.

Read more at https://cushieblog.com/2016/12/04/medical-therapies-in-cushings-syndrome/

Michelle is from  Santa Monica, CA.   She is not yet diagnosed with Cushing's but gained 50 pounds with no change in activity or eating. She sent an article on Cyclical Cushing's to her doctor at the Mayo Clinic.

Read more at https://cushingsbios.com/2018/11/10/michelle-michelle-cyclical-cushings-bio/

Mika is from New South Wales, Australia.  She is not yet diagnosed with Cushing's but thinks she's close.

Read more at https://cushingsbios.com/2018/02/11/mika-undiagnosed-bio/

Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. 

Read more at https://cushieblogger.com/2018/04/13/interview-archive-monica-and-crystal-pituitary-buddies/

my dr did not tell me I had cushings but I have hashimotos, and I just started Korlym, does anyone know about weight loss, I am now taking 3 thyroid meds..

In the comments area of https://cushieblog.com/message-boards/

Myth: “Cushing’s is RARE”, “No one has Cushing’s!”, “It is literally impossible for you to have Cushing’s Disease!”

Read more at https://cushieblogger.com/2018/04/04/myths-and-facts-about-cushings-cushings-is-rare-no-one-has-cushings/

Myth: YOU are the problem and the reason for your cortisol levels. Having issues with too much or too little cortisol, the stress hormone, means that YOU are stressing too much or are too anxious. “YOU could control your levels if you would JUST calm down!”

Read the response at https://cushieblogger.com/2018/04/06/myths-and-facts-about-cushings-you-are-the-problem-and-the-reason/

Nicole is from Toronto, Canada  She is 37 years old and was diagnosed with Cushing's disease in May 2017 after suffering through a high risk pregnancy, early delivery and postpartum pain. She had a left adrenalectomy.

Read nore at https://cushingsbios.com/2019/02/10/nicole-s-nicoles-adrenal-bio/

No universally accepted glucocorticoid replacement dose exists for patients with adrenal insufficiency. 

Read more at https://cushieblog.com/2016/11/04/hydrocortisone-dosing-for-adrenal-insufficiency/