MaryO
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Status Updates posted by MaryO
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Not only does the pituitary make its own hormones, but it also triggers hormone production in other glands. The pituitary is aided in its job by the hypothalamus. This part of the brain is situated above the pituitary, and sends messages to the gland on when to release or stimulate production of necessary hormones.
Read more at https://cushieblog.com/2016/12/31/the-pituitary-gland-small-but-mighty/
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One of my least favorite things about my life with chronic illness is having imaging appointments. Whether it's my yearly brain MRI, or a chest X-ray, the whole process is uncomfortable, and sometimes even painful...
Read more at https://cushieblogger.com/2018/04/03/from-a-past-blogging-challenge-cushings-awareness-challenge-day-3/
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Pam is from Ypsilanti, Michigan. She is the mother of an 18 year old daughter who she suspects has Cushing's.
Read more at https://cushingsbios.com/2018/05/04/pam-m-mapgirl23-undiagnosed-bio/
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Paraneoplastic esthesioneuroblastoma (ENB), a very rare type of nasal tumor, may sometimes produce excess adrenocorticotrophic hormone (ACTH), leading to symptoms of Cushing’s syndrome.
Read more at https://cushieblog.com/2018/04/04/rare-nasal-cancer-may-have-caused-cushings-syndrome/
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Part 1. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blogs and other topics of interest to Cushing’s Patients.
Listen at http://www.blogtalkradio.com/cushingshelp/2008/08/21/tentative-interview-with-joselle
Part 2. Robin and MaryO discuss the role of blogs in helping to spread the word about Cushing’s. They also discuss popular doctor blogs and other topics of interest to Cushing’s Patients, friends and family.
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Patients with different subtypes of Cushing’s syndrome (CS) have distinct plasma steroid profiles. This could be used as a test for diagnosis and classification, a German study says.
A quick diagnosis of CS is crucial so that doctors can promptly give therapy. However, diagnosing CS is often complicated by the multiple tests necessary not just to diagnose the disease but also to determine its particular subtype.Read more at https://cushieblog.com/2018/01/03/cushing-patients-could-be-diagnosed-subtyped-using-plasma-steroid-levels/
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Patients with different subtypes of Cushing’s syndrome (CS) have distinct plasma steroid profiles. This could be used as a test for diagnosis and classification, a German study says.
A quick diagnosis of CS is crucial so that doctors can promptly give therapy. However, diagnosing CS is often complicated by the multiple tests necessary not just to diagnose the disease but also to determine its particular subtype.Read more at https://cushieblog.com/2018/01/03/cushing-patients-could-be-diagnosed-subtyped-using-plasma-steroid-levels/
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Patty met with her neurosurgeon and ENT and had pituitary surgery June 2017.
Read more at https://cushingsbios.com/2018/04/30/patty-pituitary-bio/
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People sometimes ask me how I found out I had Cushing’s Disease. Theoretically, it was easy. In practice, it was very difficult.
Read more at https://cushieblogger.com/2018/04/27/day-27-cushings-awareness-challenge-2018/
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People with high cortisol levels have lower muscle mass and higher visceral fat deposits, putting them at a greater risk for cardiovascular disease, new research shows.
High levels of cortisol can result from a variety of reasons, including Cushing’s disease and adrenal tumors. Most adrenal tumors are found to be non-functioning, meaning they do not produce excess hormones. However, up to 47 percent of patients have mild autonomous cortisol excess (MACE).
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Pituitary Tumors, Adrenal Tumors, and Other Cushing’s Syndrome Causes
Read more at https://cushieblog.com/2016/10/02/causes-of-cushings-syndrome/
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Primary adrenal insufficiency (PAI) in children is an uncommon, but potentially fatal. The current symptoms include weakness, fatigue, anorexia, abdominal pain, weight loss, orthostatic hypotension, salt craving and characterized by hyperpigmentation.
Read more at https://cushieblog.com/2017/05/06/primary-adrenal-insufficiency-pai/
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Rachelle is from Phoenix, Arizona Her daughter-in-law has been told the tumor is inoperable and the only form of treatment is mifepristone (the abortion pill). After 5 rounds of IUI, they found out on 3/20 they are pregnant!
Read more at https://cushingsbios.com/2018/04/10/rachelle-l-rachelle-mother-in-law-of-pituitary-patient/
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Register now for the 10th Annual Johns Hopkins Pituitary Patient Day
Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m.
More info at https://cushieblogger.com/2018/05/18/tenth-annual-johns-hopkins-pituitary-patient-day/
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Relacorilant, an investigational therapy developed by Corcept Therapeutics, may effectively manage the effects of excess cortisol in patients with Cushing’s syndrome, interim data from an ongoing Phase 2 trial show.
In particular, the treatment significantly improved sugar tolerance and the levels of osteocalcin, a bone growth biomarker commonly suppressed by excess cortisol.
Read more at https://cushieblog.com/2018/05/12/relacorilant-effectively-manages-cortisol-effects-in-cushings-patients/
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Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said 'endocrine'. She didn't figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help. She had originally sought this PCP because she had been going to all sorts of doctors.
Read more at https://cushieblogger.com/2018/04/10/mary-oconnor-maryo-second-interview-archive-with-robin-smith-staticnrg/
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Robin had Cushing’s for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom Robin found in 2004 said “endocrine”. She didn’t figure it out, either, but at least Robin had a piece of the puzzle and Robin found www.cushings-help.com. Robin immediately went into denial and left for several months until Robin got so sick Robin knew she had to…
Read more at https://cushieblogger.com/2018/04/06/interview-archive-mary-oconnor-maryo-interviewed-robin-smith-staticnrg/
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Robin Smith (staticnrg) hosted as Cushing’s message board members called in to talk about their fight for diagnosis and treatment. Robin opened the show with a brief explanation of what Cushing’s is and what the symptoms are.
Read more at https://cushieblogger.com/2018/04/02/interview-archive-symptoms-and-diagnosis-cushings-message-board-members/
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Sadly, we lost another Cushing’s patient on Friday, May 9, 2014. Melinda was a member of the Cushing’s Help message boards since Jun 24, 2007.
She was only 25 and left behind a young son and many loving family members.
Read more at https://cushingsbios.com/2015/05/09/in-memory-of-melinda-smith-1988-2014/
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Sahana is from Mumbai India Her daughter had many Cushings symptoms starting at 15. She had laparoscopic adrenal surgery and is now 7 months post-op.
Read more at https://cushingsbios.com/2018/11/14/sahana-sahana-adrenal-bio/
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So often during the diagnosis phase of Cushing's I felt like this picture – I was walking alone to an unknown place with an unknown future.
My diagnosis was pre-Internet which meant that any information had to be gotten from libraries, bookstores, magazines…or doctors. In 1983 to 1986 I knew something was terribly wrong but there was no backup from doctors, family or friends. My first hope was from a magazine...Read more at https://cushieblogger.com/2018/04/17/day-17-cushings-awareness-challenge-2018/
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So, these are only seven of the many, many symptoms of Cushing's. I had those above – and I often felt like I looked like one of those little bearded dwarves.
Cushing's affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected.Read more at https://cushieblogger.com/2019/04/09/day-9-cushings-awareness-challenge-2019/
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So, these are only seven of the many, many symptoms of Cushing's. I had those above – and I often felt like I looked like one of those little bearded dwarves.
Cushing's affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected.Read more at https://cushieblogger.com/2018/04/14/day-14-cushings-awareness-challenge-2018/
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So, where did all this blue and yellow come from, anyway? The answer is so easy and without any thought that it will amaze you.
Read more at https://cushieblogger.com/2018/04/13/day-13-cushings-awareness-challenge-2018/
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Some diseases/ disorders and conditions, such as Cushing's, could be responsible for your abdominal fat and these have nothing to do with not exercising or not eating right.
Read more at https://cushieblog.com/2017/04/24/reasons-you-have-flab-around-your-abdomen/
