MaryO
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Status Updates posted by MaryO
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Today, April 8th, is Cushing’s Awareness Day. Please wear your Cushing’s ribbons, t-shirts, awareness bracelets or Cushing’s colors (blue and yellow) and hand out Robin’s wonderful Awareness Cards to get a discussion going with anyone who will listen.
And don’t just raise awareness on April 8. Any day is a good day to raise awareness.
Read more at https://cushieblogger.com/2018/04/08/day-8-cushings-awareness-challenge-2018/
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Today’s Cushing's Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing's. I think it is, either directly or indirectly.
Read more at https://cushieblogger.com/2018/04/24/day-24-cushings-awareness-challenge-2018/
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Transsphenoidal surgery remains the mainstay therapy for CD in pediatric patients as well as adults. It is an effective treatment option with low rate of complications. Both endoscopic and microscopic approaches provide safe access to sella and satisfactory surgical results.
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Uh, Oh – I’m nearly a day late (and a dollar short?)…and I’m not yet sure what today’s topic will be. I seem swamped by everything lately, waking up tired, napping, going to bed tired, waking up in the middle of the night, starting all over again…and I’m traveling this weekend, which makes everything more hectic and tiring.
Read more at https://cushieblogger.com/2018/04/06/day-6-cushings-awareness-challenge-2018/
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Vic is from London, UK. She has had symptoms for the last 8 years and has used hydrocortisone on her face daily for 26 years. She is awaiting test results.
Read more at https://cushingsbios.com/2017/06/07/vic-tori276-undiagnosed-bio/
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We welcome all families living with any rare disease to join us in celebrating their strength and courage, while also recognizing their daily challenges and sacrifices. The interactions between our employees and families provide a first-hand education about living with rare disease and further inspires the work we do for patients and families.
Read more at https://cushieblogger.com/2018/02/08/invitation-to-patient-day-2018/
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When classifying patients by tumor size, however, researchers found that patients with macroadenomas — tumors larger than 10 mm — had higher rates of remission and lower recurrence rates after endoscopic surgery. Patients with microadenomas (tumors smaller than 10 mm) had comparable outcomes with either technique.
Read more at https://cushieblog.com/2018/05/26/endoscopic-surgery-should-be-standard-for-cushings-patients-with-large-tumors/
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The worldwide prevalence of metabolic syndrome in obese people is estimated at about 10%. Conversely, the incidence of undiagnosed Cushing’s syndrome is about 75 cases per 1 million people.
Cushing’s and metabolic syndrome share significant clinical similarities, including obesity, hypertension, and type 2 diabetes. Therefore, “making the diagnosis is the least certain aspect in the care of patients with [Cushing’s],” Dr. Lynn Loriaux wrote.
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Tips for living with Cushing's - before, during and after treatment. Please feel free to add your own tips here!
Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control.
For specific tips such as Getting Medical Attention for an Adrenal Crisis or how to make an Emergency Kit, please see Helpful Hints
Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1
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New Testimonial From Melanie C
I remember my first guest post in 2007, was overjoyed to find I wasn't the only medical anomaly lol!
Congratulations to Cushing's Help for coming of age! ?
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...I was scared on how long it would take me to be normal after surgery. Tomorrow will make a week. I am weak but Less than I thought. I do see that I get anxious quickly and get hot flashes when I try to focus on something. ...
From the comments at https://cushingsbios.com/2016/01/23/toni-toni-adrenal-bio/
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...I’ve been lost with this for so long, I’ve had so many frustrated cries, I’ve tried diet after diet, every doctor blaming my symptoms on my weight and telling me I need to lose weight but I just can’t.
In the comments at https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/
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...In half of all Cushing’s patients, ectopic ACTH is produced by small lung cell carcinomas or lung carcinoids (a type of slow-growing lung cancer). But some tumors in the thymus and pancreas also have been found to produce ACTH.
https://cushieblog.com/2017/12/13/acth-producing-lung-tumors-hard-to-detect-but-may-be-cured-with-surgery/ -
"Pituitary adenomas are rarely cancerous, but they can cause other serious problems for patients by pushing up against parts of their brain, which can lead to Cushing's disease, gigantism, blindness and death," Lee explained. "The study shows that this novel, targeted, near infrared fluorescent dye technique is safe, and we believe this technique will improve surgery."
https://cushieblog.com/2017/09/07/glowing-cancer-tool-illuminates-benign-but-dangerous-brain-tumors-during-pituitary-surgery/ -
Krista shared her helpful doctor, Maria Fleseriu, in her bio. Read about this Oregon doctor at https://cushieblogger.com/2018/11/19/helpful-doctors-oregon/
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The Boards turn 18 Today!
Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year in July 21, 2000)
Find the message boards here: http://cushings.invisionzone.com/
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I have seen this image several places online and it never ceases to crack me up. Sometimes, we really have strange things going on inside our bodies.
Read more at https://cushieblogger.com/2018/04/23/day-23-cushings-awareness-challenge-2018/
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Harvey Cushing (1869-1939) is considered to be the father of modern neurological surgery. In the early part of the 20th century, he developed basic techniques and instruments for operating on the brain and, as a result, founded the discipline as a distinct surgical speciality. Before Cushing began his career, brain tumours were considered to be inoperable, and the mortality rate for any surgical procedure which involved opening the skull was around 90%. Early in his career, Cushing dramatically reduced the mortality rate for neurosurgery to less than 10%, and by the time of his retirement in 1937, he had successfully removed more than 2,000 tumours.
Read more at https://cushieblogger.com/2018/04/08/its-harveys-birthday/ -
In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.
Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency-
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In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.
Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency -
Talking about Cushing’s from the spouse/caretaker point of view He is also Monica’s producer/ manager. For the two years during Monica’s diagnosis and surgeries he worked from home as a computer programmer so that he could take care of Monica. Monica and Kevin were married two years ago, just before Monica’s pituitary surgery...
Read more at https://cushieblogger.com/2018/04/17/archived-interview-with-monicas-husband-kevin-about-caretakers/ -
Another message board upgrade happening right now. I'm not sure how long it will take (or what cosmetic changes need to be done afterwards. Patience, please! http://cushings.invisionzone.com/index.php?
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In Day 12 on April 12, 2017, I wrote about how we got the Cushing’s colors of blue and yellow. This post is going to be about the first Cushing’s ribbons.
Read more at https://cushieblogger.com/2018/04/07/day-7-cushings-awareness-challenge-2018/
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Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol....
