Shaw
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Hi there ..Not sure if I wrote you .I am fairly new here and dont quite know where to go from here .. I am looking to talk to someone with cushings in my area .. I am 30 min fom ottawa .. I am sure you replied to one of my posts ..please try and contact me .. I am dying from this stupid cushings I am sure that is what I have .
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Oups sorry yes we did chat last month ..I realy have no memory ..sorry about that .. Things are a bit rough here .. I am loosing hope big time . I stoped my insline a few weeks back because I just cant take living on my couch anymore ... We are now calling this illness couchings syndrome ..not bad huh .. I promissed my psychiatrist I would start my insulin again and he promissed to refere me to an endochrinologist . Now its wait and see .. Got results from blood test acth normal , waiting on 24 hr cortisol .
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I used to have the most terrible brain fog; so I started writing down every symptoms everyday along with blood pressure and test results and even then I still forgot things all the time. I wish I knew of some good doctors for Cushing's in the Ottawa area but I'm from Northern Ontario. We have 1 endo here and he was useless so my family doctor really got involved in fighting for me. My ACTH was also normal; that's actually pretty common so don't be discouraged by that. Hopefully the 24 hr cortisol will show something that will finally get an endocrinologist to take this seriously
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