I wasn't meaning hosted support groups - re: facbebook groups, and other non .com sites as "support forums".
Noted -- and yep, I pretty much know that.. and I've done about 3 hours worth of research to see if there was another human cushings' forum and they all link back to this one. Every other site was run by a marketing company, which cost to even join ~
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I just get somewhat upset with the addutide and over promotion if needing help with "Do you want to keep the Cushing's Help message boards? Do you know that MaryO spends thousands out of her own pocket to keep it running? Do you want to wake up one day and find it gone? "
When in reality over $1,000 of it seems to be "wasted", and you wouldn't need to pull money out of your pocket to keep it that way. This year alone donations;
Donations: 410.23 USD
Goal Amount: 2906.00 USD
In theory just the domain and sever it shouldn't cost more then $300 a year to run this board, so you aren't just wasting *yours*, but donations and resources people are donation for the past several years - and I am only getting snappy because of your tone, but if you want to get techonical, it has some issues here
The wiki can be made public.
Glad to hear - they are a scam.
Correct but the domain cost money as well as the redirects.
Yes -- way to many subforums are clustering and somewhat confusing (I have a short fuse as I am living off a head ache 24/7 with NO releif., but it's soo clustery here that I'm not sure how anyone finds posts).