MaryOld

Our first product is ready, for Valentine's day. ?I'm sure you'll recognize the T-shirt that the teddy bear is wearing. http://www.cafepress.com/cp/store/productd...4&zoom=yes#zoom This is an 11 inch Teddy bear holding a 12 ounce heart-shaped tin of Necco Sweetheart candy. To be added tomorrow: 15 oz Mug filled with a bag of Deluxe Valentine Mix Candy Note: Each product sold will generate a small profit which will go to the running and maintainence of the Cushings-Help.com webste and these boards. ? Products with the CUSH logo on them will generate a small profit which will be donated to the CUSH organization.

I'm getting ready to make T-shirts, which I think would be a wonderful way to get people asking about Cushing's. ?I also think that they would be great to wear to the Cushing's Convention in September as a show of solidarity. In any event, I need some ideas for the front and back. ?Right now, I'm thinking of the CUSH logo for the front and some witty saying or list of popular symptoms on the back. We can make as many different styles as we want, so get your ideas in now! They'll be available online and will have a base color of either white or ash grey, short or long sleeves and run from small (Yeah, right!) to XXXXL Here are the Cushing's products that will be available...eventually: Hanes 100% Cotton Beefy T-shirts in White and Ash Grey. ?Sizes: Kids Small through Adult XXXXL Tank Tops in White. ?Sizes: Medium through XXL Hanes Her Way 100% Cotton Ladies T-shirt in White. ?Sizes: Small - XL Hanes 100% Cotton Long Sleeve Shirt in White. ?Sizes: Adult Small - XXXL Hanes Heavyweight 50/50 Cotton/Polyester Sweatshirt in Ash Grey. ?Sizes: ?Small - XXL 100% Cotton Boxer Shorts in White. ?Sizes: Small, Medium, Large, XL Lightweight Microfiber Baseball Caps in White with Black Bill, Khaki with Black Bill (coming soon), Gray with Black Bill (coming soon) Reversible Microfiber Bucket Hats (Inside color is dark blue) in White, Khaki (coming soon) 100% Cotton Canvas Tote Bags in Natural 11 oz and 15 oz, dishwasher and microwave safe ceramic coffee mugs in White High-quality, standard sized, premium cloth covered mousepads

http://www.hersource.com/breast/06/6a/drug_companies.cfm Medication Manufacturers' Indigent Drug Programs Most people don't realize that pharmaceutical companies produce a great deal of written information about disease and treatment. They are required by law to provide detailed descriptions about the drugs that they manufacture, but most also produce more general information for the public about the diseases that their drugs treat, also. In addition to this free material, almost all pharmaceutical compaies also have an "Indigent Drug Program", which provides medications to people who cannot afford them. Your physician must apply to these programs on your behalf, but you can call and obtain the applications and information yourself. Amounts and eligibility will vary greatly from program to program. Below is a list of companies that have indigent drug programs: 3M Pharmaceuticals (800) 328-0255 Products include: Most drug products sold by 3M Allergan, Inc. 2525 Dupont Drive Irvine, CA 92713 (800) 347-4500 ext. 6421 Products include: Alphagan, Betagen, Epifrin (800) 999-6673 Products include: Botox Alza Pharmaceuticals (415) 962-4243 Products include: Ditrpan XL, Ehtyol injection, Progesatser, Testoderm, Urispas Amgen (888) 272-9376 Products include: Epogen (only for patients on dialysis), Neupogen Anesta (877) 229-1241 Products include: Actiq Astra USA, Inc. (800) 488-FAIR (488-3247) Products include: Foscavir injection Baxter Healthcare Corporation (800) 423-2090 Products include: A Patient Assistance Program is being developed for Gammagard S/D and should be ready in about 3-4 months. Bayer Corporation (800) 998-9180 Products include: Adalat, Adalat CC, Anaguard, Anakit, Biltricide, Chlo-amine, Cipro Cipro IV, Cortdome Suppositories, Domepaste Bandages, DTIC Dome, Mezlan, Mithracin MRV, Nimotop, Precose, Stilphostrol, Tridesilon, Zenomil Maintenance, Baycol Berlex Laboratories (800) 888-4112 Products include: Betapace, Betaseron for SC Injection, Quadramat, Quinaglute Dura-Tabs (800) 473-5832 Products include: Fludara Boehringer Ingelheim Pharmaceuticals, Inc. (800) 556-8317 Products include: All products covered except controlled substances Boots Pharmaceuticals, Inc. Boots Cares Program 300 Tri-State International Center Suite 200 Lincolnshire, IL 60069-4415 Attn: Sandy Bauco Products include: Synthroid tablets Bristol-Myers Squibb (800) 272-4878 Products include: Bicnu (BCNU), Blenoxane, Ceenu (CNU), Cytoxan, Hydrea, Ifex/Mesna, Lysodren, Megace, Mutamycin, Paraplatin, Platinol, Rubex, Taxol, Vepesid, Verit, Videx Ciba-Geigy Corporation (800) 257-3273, (800) CHIRON-8 (245-7668) Products include: Aredia, Cytadren, Actigall, Anafranil, Anturane, Apresazide, Apresoline, Brethaire, Brethine, Cataflam, Desferal, Esidrix, Esimil, Estraderm, Habitrol, Ismelin, Lamprene, Lioresal, Lopressor, Lopressor/HCT Lotensin, Lotensin/HCT, Ludiomil, PBZ, Regitine, Rimactane, Ser-Ap-Es, Slow-K, Tegretol, TEN-K, Tofranil, Tofranil-PM, Transderm-Scop, Transdermal-Nitro, Voltaren Connaught Laboratories, Inc. (717) 839-4617 Products include: TheraCys BCG live intravesical ConvaTec Professional Services - A Bristol-Myers Squibb Company P.O. Box 5254 Princeton, NJ 08543-5254 (800) 422-8811 Convatec is a manufacturer of ostomy, wound care and incontinence products. DuPont Merck Pharmaceutical Company Products include: All non-controlled prescription products Eli Lilly and Company (800) 545-6962 Products include: Most Lilly products and insulins except controlled substances Fisons Pharmaceuticals Gastrocon Patient Assistance Program P.O. Box 1766 Rochester, NY 14603-1766 Products include: Gastrocrom capsules Gastron Patient Assistance Program 775 Jefferson Road P.O. Box 1766 Rochester, NY 14603 (888) 963-3382 Products include: Gastrocrom oral concentrate Genentech, Inc. (800) 879-4747 Products include: Actimmune, Activase, Protropin, Nutrpoin Glaxo Wellcome Customer Service: (800) 334-0032 Patient Assistance: (800) 722-9294 Reimbursement Line: (800) 423-6869, (800) 745-2967 Products include: Aleran, Blenoxane, Leukeran, Myleran, Navelbine, Purinethol, Zofran, Zovirax, and all other Glaxo Wellcome products Hoechst-Marion-Roussel, Inc. (800) 221-4025 Customer Information Line: (800) 552-3656 Products include: Carafate, Diabeta, Lasix, Trental, and other prescription products (except Rifadin, Rifamate, Rifater, Tenuate) Immunex (800) 466-8639, (206) 587-0430 Products include: Leukine, Novantrone, Thioplex, and all other currently marketed Immunex prescription products Janssen (800) 544-2987 Products include: Duragesic, Ergamisol, Hismanal, Imodium, Nizoral tablets, Propulsid, Sporanox capsules, Vermox Knoll Pharmaceutical Company (800) 524-2474 Products include: Isoptin, Rythmol, Santyl, Synthroid, Tarka, and Mavik Liposome Company, Inc. Financial Assistance Program: (800) 335-5476 Reimbursememt: (800) 345-2252 Executive Offices: (609) 452-7060 Products include: Abelcet McNeil Pharmaceutical (800) 682-6532 Products include: Prescription products prescribed according to approved labeled indications and dosage regimens Merck Human Health Division (800) NSC-MERCK (672-6372) Products include: Many Merck products Miles Inc. Pharmaceutical Division (800) 998-9180 Products include: All Miles, Inc. prescription medications used as recommended in prescribing information Nabi (formerly known as Univax) (800) 789-2099 Products include: WinRho SDF Novartis Patient Support Program: (888) 455-6655 Products include: Clorazil Patient Assistance Program: (800) 257-3273 Products Include: Aredia, Actigall, Desferal, Diovan, Dynacirc, Dynacirc CR, Estraderm, Femara, Lamisil, Lamprene, Lescol, Lotensin, Lotensin HCT, Lotrel, Metopirone, Micalcin, Migranal, Vivelle, Voltaren XR 100mg Ortho Biotech (800) 553-3851 Products include: Leustatin, Procrit Parke-Davis (908) 725-1247 Products include: Most Parke-Davis medications, including Accupril, Cilatin, Cognex, Lipitor, Loestrin, Neurotin, Rezulin, Zarontin Pfizer, Inc. (800) 646-4455 Products include: Diflucan, and all other Pfizer products Pharmacia & Upjohn (800) 242-7014 Products include: Adriamycin, Adrucil, Azulfidine, Dipentum, EMCYT, Fragmin, Idamycin, Meosar, Mycotubin, Vincasar, Zinecard Pharmaceutical Research and Manufacturers' of America (PhRMA) http://www.phrma.org Proctor & Gamble Pharmaceuticals, Inc. (800) 448-4878 Products include: Actonel, Alora, Ascol, Dantrium capsules, Didronel, Helidac, Macrobid, Macrodantin Purdue Frederick (203) 853-0123 (888) 278-7383 ext. 4111 (Physicians Only) Products include: MS Contin, MSIR, Oxy Contin, OXYIR, OXYFAST Rhone-Poulenc Rorer, Inc. (610) 454-8110 Products include: All products are eligible, with some limitations on supply Roche Laboratories OncoLine/HelpLine: (800) 443-6676 Products include: FUDR, Roferon-A, Vesanoid, Xeloda (800) 526-6367 Products include: All Roche products except for Versed, Lariam, Toradol, and Romazicon Roxane Patient Assistance: (800) 274-8651 Customer Service: (800) 520-1631 Medical Information: (800) 327-4865 Products include: Marinol, Oramorph, Roxanol, Roxicodane, Viramune Sandoz (800) 447-6673, (203) 746-8958 The second number is to NORD, Inc., the parent company of Sandoz. Products include: Clorazil, DynaCirc, Eldepryl, Lescol, Sandimmune, Sandoglobulin, Sandostatin Sanofi Pharmaceuticals, Inc. (800) 446-6267 (choose option 2 twice) Products include: Aralen, Danocrine, Drisdol, Hytakerol, Mytelase, NegGram, pHisoHex, Primaquine, Skelid (800) 675-8412 Products include: Photofrin Schering Plough Oncology (800) 521-7157 Products include: Eulexin, Farestron, Intron-A, Rebetron Searle (800) 542-2526 (Physicians Only) Products include: Aldactazide, Aldactone, Arthrotec, Calan, Calan SR, Celebrex, Cytotec, Kerlone, Norpace, Norpace CR Sequus Pharmaceuticals, Inc. (800) 375-1658 (650) 323-9011 (Corporate) Products include: Amphotec, Doxil Serono Laboratories, Inc. (781) 982-9000 Products include: Metrodin (FSH) Sigma-Tau Pharmaceuticals, Inc. NORD Matulane Patient Assistance Program Contact: Michele McCourt (203) 746-6518 Products include: Matulane Smithkline Beecham Pharmaceuticals Access to Care Program 1 Franklin Plaza FP 1320 P.O. Box 7929 Philadelphia, PA 19101-7929 (800) 546-0420 Products include: Amoxil, Augmentin, Bactroban, Compazine, Dyazide, Famvir, Kytril, Relafen, Riduara, Tagamet, and most other Smithkline Beecham prescription products Solvay Pharmaceuticals, Inc. c/o Phoenix Marketing 1 Phoenix Drive Lincoln Park, NJ 07035 Attn: Patient Assistance Program (800) 788-9277 Products include: Most Solvay products Tap Pharmaceuticals (800) 453-8438 Products include: Lupron Wyeth-Ayerst Laboratories Norplant Supply and Removal Program: (800) 760-9030 Products include: Norplant Indigent Patient Program: John E. James Professional Services IPP 555 East Lancaster Avenue St. Davids, PA 19087 Products include: Various products (not including II, III, or IV products) Zeneca Pharmaceuticals Foundation (800) 424-3727 Products include: Arimidex, Casodex, Nolvadex, Zoladex

Use of Growth Hormone Benefits Children BOCA RATON, Fla., Jan. 29 /PRNewswire/ -- Doctors at the Children's Hospital of Philadelphia say growth hormone therapy can be very beneficial to children diagnosed with "grow failure" due to genetic or systemic disease, as well as related diseases and disorders. GH therapy, while complex and controversial, has become widely recommended by endocrine specialists since becoming available in 1985. Failure to thrive in infants and children is usually noticed by failure to gain height and weight. In teenagers, short stature and lack of sexual development is present. According to Thomas Moshang, Jr., M.D., Division of Endocrinology and Diabetes, Children's Hospital of Philadelphia, it's important to have children who have growth and developmental deficiencies treated by endocrine specialists who can determine if the failure to thrive results from a medical problem, or from physiological and environmental problems, as opposed to healthy children growing at variance from the general population. Symptoms that parents and family physicians should look for include lack of normal physical growth, lack of or slow developmental progress and the delay of mental and social skills. "The Cutting Edge Medical Report" will focus on growth hormone in a thirty minute television special. This must-see documentary for concerned parents will talk about the importance of prevention of growth problems by early detection at routine well baby examinations and periodic follow-up exams for school age children. Medical experts will discuss the safety and effectiveness of GH therapy for the tens of thousands of children who suffer with "grow failure." Produced by Information Television Network in association with The Magic Foundation and made possible by an unrestricted grant from Genentech, Inc., "Understanding the Use of Growth Hormone" will premiere on cable TV on The Health Network on February 1, 2002 at 10 PM ET (9 PM CT, 8 PM MT and 7 PM PT) and will repeat several times this year. For more information or to order a VHS copy of the program, call 1-800-380-6500. About ITV ITV, an independent production company, was founded in 1992 with a commitment to produce dynamic, educational programming. With more than 200 half-hours of medical documentary programming to its credit, ITV is recognized as a leader in broadcast production consistently winning prestigious industry awards including an Emmy, Freddies, Tellys, Auroras, Omnis and Gracies. For more information about this series or other ITV productions, please visit the corporate web site at www.itvisus.com .

Yes, getting there is your only cost, although I believe that some people can get assistance with that, too. I think it's really important to try to get into a study. Not only are you getting world class FREE!!! care for yourself, but you might be helping someone else, too. When I was in my study, they had me do tests that are no longer used because they found out - on me (and a few others! LOL) that these tests weren't as effective as others. So, you have me to thank that you don't have to do an aphropheresis (sp?). I do think it's important, though - there are so few of us. I think that it might be a way to help future people get diagnosed more easily and faster.

Study of Hypercortisolism in Cushing's Syndrome and Stress-Induced Pseudo-Cushing's Syndrome Condition: Cushing's Syndrome New Imaging Techniques in the Evaluation of Patients with Ectopic Cushing's Syndrome Condition: Cushing's Syndrome Study of Cushing's Syndrome Not Related to ACTH Production Condition: Cushing's Syndrome Study of Depression, Peptides, and Steroids in Cushing's Syndrome Condition: Cushing's Syndrome Hippocampal Complex Volume and Memory Dysfunction in Cushing's Syndrome Condition: Cushing's Syndrome Jugular Vein Sampling for Hormone Levels for the Diagnosis of Cushing Syndrome Condition: Cushing's Syndrome Dose Response Relationship for Single Doses of Corticotropin Releasing Hormone (CRH) in Normal Volunteers and in Patients with Adrenal Insufficiency Conditions: Adrenal Gland Hyperfunction; Adrenal Gland Hypofunction; Cushing's Syndrome; Healthy Genetic Investigation of Pediatric Tumors of the Pituitary Gland Conditions: Abnormalities; Craniopharyngioma; Cushing's Syndrome; Endocrine Disease; Pituitary Neoplasm Defining the Genetic Basis for the Development of Primary Pigmented Nodular Adrenocortical Disease (PPNAD) and the Carney Complex Conditions: Cushing's Syndrome; Hereditary Neoplastic Syndrome; Lentigo; Neoplasm; Testicular Neoplasm Bone Mineral Density in Patients with Major Depression Conditions: Healthy; Involutional Depression; Osteoporosis Serotonin1A Receptor Imaging In Mood Disorders Condition: Mood Disorder Dynamics of Leptin and Endocrine Function Conditions: Healthy; Involutional Depression Study of Adrenal Gland Tumors Condition: Adrenal Gland Neoplasm

Safetyalerts January 17, 2002 Rx Pak Has Recalled Premarin Tablets Memphis, TN (Safetyalerts) - The Food and Drug Administration (FDA) said that Rx Pak, Division of McKesson HBOC has recalled Premarin tablets, 1.25mg (Conjugated Estrogens Tablets, USP), Rx, 100 count tablets. PRODUCT Premarin tablets, 1.25mg (Conjugated Estrogens Tablets, USP), Rx, 100 count tablets, Recall # D-069-2. CODE Lot #03138, Exp 09/03, NDC# 00046-0866-81. RECALLING FIRM/MANUFACTURER Recalling Firm: Rx Pak, Division of McKesson HBOC Memphis, TN, by letter on 8/13/01. Manufacturer: Ayerst Laboratories, Rouses Point, NY. Firm initiated recall is ongoing. REASON Dissolution failure by manufacturer. VOLUME OF PRODUCT IN COMMERCE 41, 545 100 count bottles. DISTRIBUTION Nationwide.

http://www.safetyalerts.com/recall/f/02/f0000042.htm Safetyalerts January 17, 2002 Forest Pharmaceuticals Has Recalled Levothroid Tablets St. Louis, MO (Safetyalerts) - The Food and Drug Administration (FDA) said that Forest Pharmaceuticals, Inc. has recalled Levothroid Tablets, Forest Brand (levothyroxine sodium tablets, USP), 25 mcg., packaged in 100-tablet bottles, NDC #0456-0320-01, Rx only. PRODUCT Levothroid Tablets, Forest Brand (levothyroxine sodium tablets, USP), 25 mcg., packaged in 100-tablet bottles, NDC #0456-0320-01, Rx only. Recall # D-083-2. CODE Lot #120011, Exp. 12/02 Lot #120013, Exp. 12/02 RECALLING FIRM/MANUFACTURER Recalling Firm: Forest Pharmaceuticals, Inc., St. Louis, MO, by letter dated 11/16/01. Manufacturer: Forest Pharmaceuticals, Inc., Cincinnati, OH. FDA initiated recall ongoing. REASON Subpotent- prior to labeled expiration date VOLUME OF PRODUCT IN COMMERCE Lot 120011 - 14,447/100-tab. btls; Lot 120013 - 14,607/100-tab. btls DISTRIBUTION Nationwide.

http://www.safetyalerts.com/recall/f/02/f0000048.htm Safetyalerts January 17, 2002 Schering-Plough Has Recalled AK-CIDE brand of Prednisolone Acetate Manati, Puerto Rico (Safetyalerts) - The Food and Drug Administration (FDA) said that Schering-Plough Products, Inc. has recalled AK-CIDE brand of Prednisolone Acetate, USP and Sulfacetamide Sodium, USP, Ophthalmic Ointment-Sterile, 3.5 g tube. Each gram of ointment contains 100 mg/g of Sulfacetamide sodium USP and 5 mg/g of Prednisolone acetate USP. PRODUCT AK-CIDE brand of Prednisolone Acetate, USP and Sulfacetamide Sodium, USP, Ophthalmic Ointment-Sterile, 3.5 g tube. Each gram of ointment contains 100 mg/g of Sulfacetamide sodium USP and 5 mg/g of Prednisolone acetate USP. NDC 17478-276-35, Recall # D-067-2. CODE Lot 9-AH-1, exp. date March 2002; Lot 9-AH-2, exp. date March 2002. RECALLING FIRM/MANUFACTURER Schering-Plough Products, Inc., Manati, Puerto Rico, by letter dated 11/6/01. Firm initiated recall is ongoing. REASON Subpotency for Sodium Sulfacetamide component (stability). VOLUME OF PRODUCT IN COMMERCE 48,000 units. DISTRIBUTION IL.

Lime Disease Reports Hit New High .c The Associated Press ATLANTA (AP) - Reported cases of Lyme disease, the tick-borne illness that can cause fatigue, sore joints and heart damage, climbed to a record high in 2000, the government reported Thursday. The Centers for Disease Control and Prevention said it recorded 17,730 cases, up 8 percent from 1999. The figure comes from just 44 states and the District of Columbia, so the actual count is probably higher. Lyme cases nearly doubled in the 1990s, in part because more Americans built homes in the woods, exposing themselves to ticks, according to the CDC. The disease causes fatigue, fever and joint pain that can persist for weeks, and some patients develop severe arthritis. Lyme disease also can badly damage the heart and nervous system if it goes untreated by antibiotics. Daily tick checks, vaccinations and insect repellent are recommended as preventive measures. In 2000, 95 percent of Lyme cases reported to CDC came from just 12 states, almost all of them in the Northeast. On the Net: CDC Lyme disease page: http://www.cdc.gov/ncidod/dvbid/lyme

Well, it was about memory...

Thanks, Kristy!

Great! Thanks, Kristy

There was no such thing as Cushing's until Dr Harvey Cushing came along. He gave the disease his name in 1932, when he discovered it's pituitary causes. Other causes, like adrenal, etopic and steroids came later. The problems were most likely still there, but they had no name yet. You can read more about Dr Cushing at http://www.cushings-help.com/harvey.htm

And, I'm going to put a copy on the "main board" so everyone will see. copy here

The large version of the ribbon pin. See Sue's post before this to find out more about the colors... And, an idea about the circle pin...

Here's Sue's idea...

From http://diabetes.medscape.com/45476.rhtml?s...-113001 ALIGN="center">Pegvisomant Restores Normal Serum IGF-1 Levels in Patients With Acromegaly WESTPORT, CT (Reuters Health) Nov 26 - Treatment with the growth hormone receptor antagonist pegvisomant (Somavert, Sensus Drug Development Corporation, Austin, Texas) decreases serum insulin growth factor-I (IGF-I) concentrations to normal levels in patients with acromegaly, according to the results of a multinational safety and efficacy trial. As reported in the November 24th issue of The Lancet, 90 patients were treated for at least 12 months, and 39 patients were treated for 18 months. Dr. Michael O. Thorner, of the University of Virginia Health System in Charlottesville, and associates initiated treatment as once-daily SC injections starting at 10 mg/day. The dose was titrated until the patient's serum IGF-1 concentration became normal or until the daily dose reached 40 mg/day. Of those treated for at least 12 months, 87 (97%) achieved a normal serum IGF-1 concentration, which the investigators note is a much better response than that achieved with dopamine agonists or somatostatin analogues. There was no significant change in mean pituitary tumour volumes. Pegvisomant was generally well tolerated, with mild injection site reactions being the most common adverse events. Two patients experienced liver transaminase elevations, and the IGF-I concentrations fell below normal limits in 11 patients. "Pegvisomant has a novel mechanism of action," Dr. Thorner noted in a university statement. "It blocks the action of growth hormone at the tissue level rather than relying on inhibition of growth hormone secretion from the tumor." "Clinically, this drug reverses all those symptoms that are reversible," Dr. Thorner told Reuters Health. "Obviously, once the bones have grown, there's not much you can do about that. But the soft tissue [swelling] goes down and the sweating stops and the diabetes improves." "I think pegvisomant is going to change the face of medical therapy," Dr. Thorner predicted. Lancet 2001;358(9295):000-000 [Full text of article (free registration may be required)]

#Moderation Mode I'm moving this down to the News Items and Research Board Thanks for sharing your site with us, Victoria Moved here

If anyone else wants to join the SiteRing, the link to join is here

Miriam, the site is back up, so the site ring back up, but the links aren't working too well. I think that we might have to go back and get a new code for this...

I just got a message that said... "Due to Bravenet's tremendous growth over the past year, we have decided to move to a new facility that better suits our needs. Our expected downtime is 24-48 hours, at which time we should be back running normally. "

Any more sites, before I archive this topic?

Thanks, Sue! I think that the only one of these that we have around here is Outback, but I've never been...the lines have always been too long. Maybe now, though, since it's for a good cause Thanks for the info!

Thanks, Sue! I always wondered about that - kind of like that old saying "throwing the baby out with the bathwater". Some bacteria is good and helps us. We don't want to get rid of that, too and make ourselves susceptible to other, possibly worse, things.