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Posts posted by conti

  1. Hiya Robin,


    Good to see your name here again...hope you're doing better.


    I agree with you entirely and it is so embarrassing that folks have to be embarrassed into making a minimal donation to support a facility which is of tremendous value to all who come here.


    ....and you know doing without those Big Macs and the other stuff would also help with weight control a little.


    In the UK we have a National Health Service which is essentially funded by employees' compulsory contribution until they reach retirement age and then you get a pension based on how much you've contributed over your working life. I think generally US ages are considerably higher than here in the UK and therefore you have the capability  to buy your health care. 


    Would $10 really be difficult for most people or are they just happy to let a few, including the creator of the site, pay the dues.


    Count me in.


    Best wishes



  2. Well, they don't necessarily spread. The tumors that cause Cushing's disease are generally very tiny. Microscopic, in fact. Sometimes people that have cyclical Cushing's have tumors that look like goopy blobs (for lack of a better description). My tumor was not visible even when my surgeon did my surgery. But my pathology report showed that I had a tumor. Or possibly a few. Sometimes there are several microscopic areas of disease on the gland.

    I hope that helped.


    Goopy blob huh......that description fits a lot of kids in my neighbourhood. 

    Seriously the more I read about pituitary tumours and how small they can be the more I tend to compare them to "brain wiring malfunctions" and the more I believe that pituitary Cushing's is pretty well incurable . I've had 6 pit MRIs over a similar number of years and despite some radiologists concerns about "hypointense areas post gadolineum contrast" nobody has ever said  ' we think you may have Cushing's ' or  ' we should do an IPSS  to evaluate this '

    Adrenal problem is a very different kettle of fish as we all know. Maybe that pituitary based disease is still an imprecise area for surgery and therefore why there are so many recurrences and indeed why so many folk don't get to surgery or even diagnosis...after all , as was remarked recently in another post .... all surgeons know how to operate but some know when to operate and when to leave it alone .

    just my view.



  3. Interesting question. My latest consultant has put me back on thyroxine and is considering usng some sort of MAOI to increase dopamine retention . This won't happen until we have successfully converted from testosterone injection to implant at which point he will have a better understanding of the situation.

    I have to believe him although it seems to be a more radical approach than anybody else I've seen in the last five years.



  4. Aha....an inconceivable pregnancy.....have a look for a bright star in the eastern sky tonight.


    I'm glad to see that your new endo spotted the obvious vit D deficit...you WILL feel soooooooo much better when you get that and your GH right.


    Just thinking about baby names.... G(ra) H(am).....OK so someone has to be called Graham right?


    Keep improving lady......good reason for Hope to be Rising.


    Congrats to Mr Hope too.



  5. Wrexham is a small town on the border of England and Wales...it is administered under Welsh government and in many ways lacks many of the British facilities. Wales did manage to get a law passed concerning presription charges and it was agreed that all Welsh people should be exempt from NHS prescription charges. The closest large hospital is Chester or Liverpool but Manchester probably has the best endocrine facility. ( Manchester is all of 50 miles away....pretty close when you consider the size of the USA)


    Tragic indeed.



  6. I was the only male in a weight watchers class of 38 girls....and big girls at that. I was out running every morning for an hour and cycling at weekends. The diet involved me eating and drinking their value for 22 points a day.


    I COULD NOT eat enough to get past 14 points a day and in 14 months I lost 6 lbs.


    I reported to my doc and he said "that's good....you could've put on 6 lbs if ou hadn't been going"


    I asked his advice about losing more weight and he said " don't forget muscle weighs more than fat and the more you excercise , the more muscle you produce and therfore the more your weight will increase"


    I was speechless and as i was leaving his consulting room, he said " haven't yo got anything else to say?"


    I said " yeah....go f**k yerself you stooopid ba***rd!!!!!!!"


    Really...what are these loonies all about.?



  7. ...why, I'm just ASTONISHED that any doctor would be so uncaring as to tell a patient to eat less and excercise more just because they're obese.


    I've NEVER had a McDonald's in my whole life and I don't drink alcohol but recently after starting GH replacement I suddenly lost 12 pounds weight and my doc was panicking. Since then, I haven't dropped a pound and he doesn't need to see me 'cos I'm OK now.





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