Jump to content

Patient Day 2018

MaryO
   (0 reviews)
Cushie Calendar

patient-day.png?w=300

Please join us for Patient Day 2018 at Ultragenyx in Novato, CA on Saturday, April 7, 2018, for a day of live music, food, games, refreshments, and much more!
 
A limited number of travel scholarships will be available for patients and loved ones that may be joining them to support their participation in Patient Day 2018. For event details, travel scholarship information and to register, please click here.
 
An email confirmation will be sent to you upon completion of your registration. Travel scholarship awards will be sent out after February 1, 2018, once a decision is made.
 
We welcome all families living with any rare disease to join us in celebrating their strength and courage, while also recognizing their daily challenges and sacrifices. The interactions between our employees and families provide a first-hand education about living with rare disease and further inspires the work we do for patients and families. We would like to honor and thank all of the patients who are participating in our clinical trials; however, we also have to follow federal regulations regarding the avoidance of influencing patients in our studies. So sadly, we cannot have patients who are currently participating in selected Ultragenyx or Audentes studies attend Patient Day 2018.
 
If you are a healthcare provider caring for people with rare diseases, please feel free to forward this invitation to your relevant patients.
 
Please contact us if you have any questions or are unable to access the registration site.
 
Hope to see you there!
 
Patient Day Registration Team

User Feedback

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest

  • This will not be shown to other users.
  • Add a review...

    ×   Pasted as rich text.   Paste as plain text instead

      Only 75 emoji are allowed.

    ×   Your link has been automatically embedded.   Display as a link instead

    ×   Your previous content has been restored.   Clear editor

    ×   You cannot paste images directly. Upload or insert images from URL.

    Loading...
×
×
  • Create New...