smilez133

I'm in! www.lifewithcushings.com

I always listen to them but am usually working/busy during "primetime hours" so I think no matter when you do them (and as Melissa said, weekends might be better for more people to participate!) they will still get downloaded onto iPods to listen later. I think it's so great to hear other people's stories.

I haven't watched it yet but put it on my to-do list after you posted about it on facebook. I will let you know what I think once I watch it!

Massachusetts General Hospital Launches iPhone App to Locate Emergency Rooms FindER Connects Users to the Most Complete Database of ERs in the U.S. BOSTON?Researchers at Massachusetts General Hospital?s (MGH) Emergency Medicine Network (EMNet) announced today the launch of EMNet findER?, a free iPhone application designed to help users locate the closest emergency room to their current location, as well as provide directions and additional information with a touch of the screen. FindER uses the iPhone?s global positioning system to quickly direct patients to emergency rooms anywhere wi

http://www.endo-society.org/endo_news/2010/upload/Endocrine-News-August-2010.pdf (Scroll about halfway down to the article - it was a cover story!) Endocrine News Journal highlighted Cushing's Disease in their August 2010 issue. My surgeon is mentioned a few times in there (doesn't everyone love when you know the people writing these?) Unfortunately it doesn't mention anything about BLA and most of this isn't news to most of us here but I thought it was worth posting. At least doctors are acknowledging that it's a problem!

In response to the question about growing pituitary tumors - no. It still allows your body to MAKE cortisol, so you still have that feedback loop, but it blocks the receptors that allow your body to use it. So no Nelson's!

I was hoping to join the trial for this but couldn't get high salivaries. Only high UFCs and they require one of each. The nurse that's running the study at my hospital said they've seen a few patients have really good results! It works as a cortisol receptor instead of inhibitor, so your levels will remain high, but the symptoms from Cushing's will lessen. Sounds promising! Hopefully it will be FDA approved soon!

Thanks! I enjoyed doing it!