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Everything posted by monicaroni

  1. Hmm...I used to work in the pathology lab at USF--Moffitt Cancer Center. I don't remember if that doctor was one of the ones I worked with though. Just caught my eye that it came from USF.
  2. I need your thoughts and prayers. I ay 6e dealing with Nelson's Syndrome. I'll find out more on Friday.

    1. saberlowe


      Sending thoughts and prayers your way.

  3. good day overall, 6ut now I can't sleep...

  4. Thank you Mary. I agree with you 100% on this. Lots of hugs, Monica
  5. I wanted to tell you all about a new study my sister and I are in. Schlomo Melmed at Cedars is running a study for siblings with pituitary tumors. There are still looking for participants, and I know there are several of us here who qualify! They will do genetic testing to try to find what is causing this. You don't actually have to go to Cedars to do it, either. The contact person is Lori Korsakof. Here is the info: http://www.clinicaltrials.gov/ct2/show/NCT...tary&rank=1
  6. There's actually a study being done at Cedars about whether PTSD causes pit tumors. I know there are many of us here who have some form of PTSD. I'm glad someone is finally making the connection.
  7. Steve, 4 months is not a very long time for a post-BLAer! Are you down to your physiological dose yet? How often do you have to stress dose? I really think it takes a while for the cortisol to get out of your system.
  8. That why my refrigerator door is broken now too...and my poor husband (who was a very good sport about it all) got a pee jug thrown at him and a cup of soda dumped on his head...(those were times when my test results were the highest too. Luckily those days are over now...proof that the high cortisol was the cause of my...um...erratic behavior.
  9. I think my husband can vouch for me that cortisol can make a person freak out...(for example...oh...throwing all the shampoo and soap over the shower door because you can't get the shampoo open...I wouldn't know anything about that....)
  10. Shell, that's exactly what I meant--they looked at the personality and that the cortisol was raised, but they didn't look at the possibility that maybe the cortisol was causing the "personality" symptoms...and the heart symptoms. Maybe we should write to them.
  11. This is a really interesting article. I wonder if they're missing something though...which came first, the personality type or the cortisol? http://qjmed.oxfordjournals.org/cgi/content/full/98/5/323 Type D personality: the heart, stress, and cortisol L. Sher From the Division of Neuroscience, Department of Psychiatry, Columbia University, New York, USA Address correspondence to Dr L. Sher, Division of Neuroscience, Department of Psychiatry, Columbia University, 1051 Riverside Drive, Suite 2917, Box 42, New York, NY 10032, USA. Many studies have demonstrated the role of psychosocial and behavioural risk factors in the aetiology and pathogenesis of cardiovascular disorders. Recently, a new personality construct, the type D or ?distressed? personality, has been proposed. Type D behaviour is characterized by the joint tendency to experience negative emotions and to inhibit these emotions while avoiding social contacts with others. The observation that cardiac patients with type D personality are at increased risk for cardiovascular morbidity and mortality underlines the importance of examining both acute (e.g. major depression) and chronic (e.g. certain personality features) factors in patients at risk for coronary events. Both type D dimensions (negative affectivity and social inhibition) are associated with greater cortisol reactivity to stress. Elevated cortisol may be a mediating factor in the association between type D personality and the increased risk for coronary heart disease and, possibly, other medical disorders. Studies of the effect of age on hypothalamic-pituitary-adrenal (HPA) function in healthy humans have produced inconsistent results. This may relate to a different prevalence of type D individuals in study samples (i.e. some type D individuals may have alterations within the HPA axis that are similar to HPA axis changes in depressed patients). Further studies of the psychological and biological features of type D individuals may help develop treatment approaches to improve the psychological and physical health of individuals with type D personality.
  12. Very interesting. The first doctor who noticed something was very wrong with me was my ob/gyn.
  13. Here is a new clinical trial I have not heard of: http://clinicaltrialwatch.com/display/cush...n+Questionnaire It's a drug therapy (not SOM-1). for people who need pituitary surgery.
  14. It's a drug that shuts off your adrenal glands, much like ketoconazole but stronger. I believe it's an option for people who can't take keto or for whom it doesn't work. Not sure why they're doing a clinical study about it though, I thought it was already approved for this use...
  15. Kevin's interview it up, please listen! Mary posted the link above here. Monica
  16. Thanks for listening and thanks Mary for having us! It was lots of fun!! Monica
  17. I would think that the people they are referring to died not because they were taking hGH, but because they had other problems (panhypopit, post-op pituitary, etc.) that caused them to go into adrenal crisis, and the ER docs treating them either did not recognize it or did not take them seriously. But on the plus side, maybe the alert will wake some of these idiot docs up.
  18. I had a very bad experience with this guy when I saw him in early 2006. It appears he has changed some of his views. Wonder what caused the epiphany.
  19. I wonder if I should take my sister to see him (and maybe our mom)? Our parents live in Milwaukee...
  20. I think that as many of us as possible need to write to Dr. V. That way she will get a flood of nasty-grams. I know that I will. Include specific lab data/ pathology reports if possible. We MUST take action when doctors spew that kind of baloney out, or things will never change for us in the medical community. It is doctors like her who are the reason many of us spend years not knowing what's wrong, not being believed, and ultimately why we have to travel so far from home to get proper testing and treatment. Hugs, Monica
  21. I use the Barr Pharm. generic form--it's bright yellow and has an unusual shape. My pharmacy switched to these in June. I actually like them better then the others because it's less likely to get mixed up with my other meds in my pill box (too many little white pills!)
  22. Wow if this catches on, wouldn't it help us???? http://www.webmd.com/video/blood-test-vein-viewer
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