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cheryl f

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  1. Cushings Understanding Support and Help Org (CUSH) received word this morning from Senator Inhofe's office (OK) that the Resolution making April 8th National Cushing's Syndrome Awareness Day has passed. More information will be posted on the CUSH website (cush.org). A press release will be done as well from the Senators office.

     

    This is the third year that Senator Inhofe's office has helped us with this-please send a thank you note to him if at all possible.

     

    Cheryl Farrar

    CUSH VP

  2. I think Gumdrop is probably correct. I don't remember the reason that it isn't perpetual, but that's the way it is for now. Sen. Inhofe is going to do the Resolution for us irregardless if another Senator helps by co-signing, but if you want to contact your Senator that would be great.

    When I tried to contact my Rep at the time, he wasn't interested in it, so I wasn't abale to get his help. He's not there any more...

    The first year we had the Cushing Awareness, CUSH hosted a conference here in OKC and about 50 people were able to come. It started just as a "let's have a party" type thing and turned into us having a meeting where 4 physicians spoke and we had a seperate CUSH meeting the day before-where we had a memorial moment for Sue-who had just passed away a few weeks earlier. And I got to meet the infamous MaryO-and several others that I had gotten to know on this website.

    Generally as Cathy said, we've had a CUSH conference in Oct-but because we had a meeting in April 06 we didn't have it in Oct, and then we didn't have one last year.

    It would be great if we could all get together-but I don't know if that's going to happen. There is a meeting somewhere east in April-and that's part of the reason we don't have our yearly meeting in April. When the CUSH org was originally started, the meetings as I said were in Oct-we didn't at that time have a Cushings Awareness Day-which is April 8th.

    So we could all do our part-let our TV stations know that we have the Cushings Awareness Day-I don't know, what does anyone want to do? Cheryl F

  3. It's been wonderful hearing ideas of how to further the Cushings Awareness that we all want . And to hear how things were started so many years ago is still amazing to me. You each have been so helpful in getting us to where we are-

    Sue was thrilled when she found out that the Cushings Awareness Day that so many had worked on would finally be a reality-as we all were.

    So in keeping with the spirit of what we all are trying to do-bring Awareness to this terrible disease- Senator Inhofe's office is going to prepare the Resolution for us-for Cushings Syndrome Awareness Day April 8, ,2008. My thanks to Suzanne who has helped us these past three years in getting this done. (Suzanne is one of Sen. Inhofe's staff members).

    Please let your senators know that they need to contact Sen. Inhofe's Washington DC office (Suzanne) if they want to be one of the co-signers.

    Many blessings to each of you-Cheryl Farrar CUSH Vice President, OK State Rep

  4. Hi ya'll...

    First, the tornados were about 9 miles west of me in OKC, and 3 miles west of my daughter and brother-in-law...we're all ok, but there was some damage where it hit.

    Mary, how do I get a copy of that stuff? I'm going to go back and look at what has been posted, maybe there is someone who has posted the info....

    Thank you for doing that. It sounded good, huh!

    Anyway, last year I contacted the different newstations and newspaper. Also small towns around OKC, as far away as 60 miles even. I e-mailed some info and faxed other when I could. There are different ways they like it done.

    I typed a short statement (like Cushing's problems are ever short) about what had happened to me and sent the info on the Resolution along with my information for them to contact me. Then I faxed/mailed and made phone calls to follow-up.

    I think it helped because I was having a forum here in OKC last year, but not sure that it mattered. If you can contact the reporter who handles health issues, that's the best thing to do.

    Anyone who wants me to forward the Press Release please e-mail me at : cheryl1957ann@sbcglobal.net and I will forward it to you so that you can include it in your information.

    I'd still like to have a luncheon on April 14th here in OKC if anyone is close enough to come....I'm here....

    If you want to call me, e-mail me with your phone # and I'll call you back. Hope this helps...Cheryl

  5. My understanding is that it will be only this year again, and to get it each year we have to have someone sponsor it. I'm not sure why it can't be perpetual, but that's my understanding.

    I'm not sure if it's because it's only a resolution in the US Senate and not in the House as well that makes a difference or not. Maybe if they both present Resolutions and the President signs it, maybe then it can be perpetual. I'm not sure. Wish I had more info. Thanks again for everyone's help. Cheryl

  6. Hi all,

    It's after work now and I have more time to send info.

    I received the PR release from Sen. Inhofe's office in a 2nd e-mail. For some reason it has a link to another Cushing's site, and since the release has already been sent, there isn't anything we can do about it. But it's for all of us anyway and we just have to look at it that way.

    I did ask them if they could remove it however....lol....

    So if you'd like me to send you a copy of what I have, I'll be more than happy to send you the forward.

    Somethings you might do:

    copy the press release and send it to the physicians in your area. I'm going to do that as my goal this year is to get more info to the PCP's on the symptoms. I"m going to get a fact sheet to give them with some personal info on my particular case.

    Call your local tv stations and let them know that the resolution has been passed-it's actually on Easter, but maybe they could do it on Saturday if they'd do a little blip. Let the newspapers know.

    I don't know....if we just help one person be diagnosed it's worth anything we do.

    My e-mail is cheryl1957ann@sbcglobal.net if you want to e-mail me I'll reply and send the release to you.

    Happy Cushings Day! Cheryl Farrar

  7. It's official, the Senate Resolution 127 passed last night making April 8th, 2007 National Cushing's Awareness Day. Let your newsmedia know!

     

    PS, and if you can find Sen. Jim Inhofe's e-mail address (I am late for work and don't have it immediately avail) please tell them how much we appreciate their efforts. He's the US Senator for Oklahoma.

     

    Thanks, Cheryl Farrar

    CUSH Vice President

  8. I received an e-mail from U S Senator Inhofe (Oklahoma) office yesterday. His assistant-Suzanne is working on the Resolution now. It would be a great time for each of you to contact your US Senator's office and ask to speak to the assistant who helps with health issues. Ask them to please enlist the support of your Senator for the Resolution making April 8th, 2007, National Cushings Syndrome Awareness Day. You might also send an e-mail to that person and ask thata they forward it to the Senator, ask for a phone call back from the assistant to let them know if they will contact Senator Ihofe's office to be a co-sponsor for the Resolution.....

     

    In your own community-you can get together with others who have had Cushings/or have family members who have had it, you can contact your local tv station/newspaper....

     

    In Oklahoma-I think I am going to get together (if anyone wants to) and just have lunch on April 14th (Saturday) just so we can be of support to one another.

     

    Even after you have surgery, there are still health issues associated with having the Cushings-meds that you will take maybe forever-possibility of the tumor growing back, etc. It's good to have friends who understand-hope to see you in Oklahoma April 14th. (April 8th is Easter) Love, Cheryl f

  9. Those are some great ideas Jayne! I love your idea of the women's forum information...if i can remember that long, I might try to do one on a Saturday sometime...that's an excellent idea.

    It just takes us working together to get the word out. e-mail me sometime if you get the chance, my e-mail add is: cheryl1957ann@sbcglobal.net love, cheryl f

     

    BTW, I realize that April 8, 2007 is on Easter Sunday, but it doesn't mean that we can't have an awareness in our own communities, like the week before or the week after. Last year the Resolution got passed on the Tuesday before the April 8th-which was about 4 days before. So we'd have the Resolution and you could let your TV stations know when it's passed.

    It'll be passed in behalf of the CUSH organization-for all of us. The more we get the word out-the better.

    One thing I'd like to see is the diabetes organizations recognizing that Cushings can be the underlying reason that some people are experiencing more problems with diabetes. That's one thing that one of the speakers last year said. He'd like more people tested who have diabetes. Obviously not all people who have diabetes have Cushings, but even if 1-2 have it they could be helped.

    There are so many things we can do. I'm so glad MaryO has her website so that people can get information they need. Also, the CUSH organization is trying to bring awareness-as with the Resolution being passed last year, and this year.

    We can all make a difference. Love, Cheryl

  10. Autumn & Judy,

    Thank you for the support of this awareness day effort! I know that you both have been invaluable in helping in many ways, including last year's awareness day.

    I asked about a perpetual awareness day, and my understanding is that they don't do that anymore...not sure why, or what the difference is.....maybe someone else can figure that one out...maybe even ask their senator about that.

    But we can do what we can, and right now this is what we can do.....if it helps just one person, it will be worth it....let's get the word out! 2007 - The Year of the Cure love, cheryl f

  11. I contacted Senator Inhofe's (OK) office recently, and he is happy to reintroduce the Cushings Awareness Day Resolution for April 8, 2007.

     

    Please contact your US Senator's office and ask them to support this Resolution. I'm not sure when Senator Inhofe will try and contact other senators but if you send a letter soon, and call your senator to let him know your letter is coming, and that Senator Inhofe is going to reintroduce the Resolution, it will truly help.

     

    Last year the Resolution was introduced, but to my understanding, only one senator-another from Oklahoma was the only one to contact Senator Inhofe's (Okla) office to co-sponsor the Resolution.

     

    If you send a letter requesting it, you might also request that a reply be sent back to you . Please try to send the letter in the next two weeks if possible.

     

    Last year we had a small Conference in OKC celebrating the passing of the Resolution, and there is some information on that conference on the CUSH website (CUSH.org) , and I believe on this one as well. We won't be having a specific conference in OKC, but ask that you bring awareness in your own states, communities as you can. Last year a TV station in OKC aired a small segment about the conference & Cushings Awareness Day, as did one in Nebraska- with Autumn as the contact person.

     

    As the OK CUSH rep as well, I might have something for those around the OK area, a small get together if anyone is interested...more like a dinner or luncheon so we can visit each other.

    You can always contact me for more info if you'd like...together we can make a difference!

    cheryl1957ann@sbcglobal.net

    Thank you in advance, Cheryl Farrar- CUSH Vice President

  12. Dawn, I'm mailing the cookbooks today...thank you for ordering them. We really appreciate it. We've sold 70 total now! We ordered 200 all together, so I think we have the original investment paid off, yea!

     

     

    Everyone keep ordering cookbooks! You'll really enjoy the recipes!

  13. I'm so glad that you like them....we've sold 52 out of 200 right now, so the other night I e-mailed all of my friends to see if they wanted to buy one, maybe they'll e-mail their friends as well....who knows?! Maybe

    we'll have to do a second printing! That would be cool! Thank you for buying them. love cheryl

     

    bob says to tell you guys hi as well!

  14. Thank you Autumn, I am glad to have helped with it, and appreciate all your help as well....if we could get everyone to sell 5 each, we could get them all sold. The money goes to CUSH, which helps with awareness...

    which is your favorite recipe? I'll have to tell you mine too.....love, cheryl

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