scarlett12
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Hey Paige! Thanks so much for the updates on Nicole. I hope you are hanging in there too since your next surgery is next month. I will be thinking of you too when you get your second surgery. I hope things go fast so you can get it over with quick. You take care, I will make sure I will keep in touch with you too before and during your surgery.
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Family's Despair over Rare Disease
scarlett12 replied to staticnrg's topic in News Items and Research
Thanks for sharing this story... although it is so sad!! Especially when we know something could have helped this man so much sooner. Thanks for sharing!! I guess even though these stories are awful to read, they spread awareness... which is exactly what we need... Paige
