MCF Posted April 14, 2014 Report Share Posted April 14, 2014 http://www.alltrials.net/2014/guest-post-people-with-rare-diseases-need-results-from-all-trial/ Guest Post: People with rare diseases need results from all trials 7th April 2014 By Rob Pleticha is the Online Community Manager of RareConnect.org, a EURORDIS project This is a personal opinion The International Rare Diseases Research Consortium plan to have 200 new rare diseases therapies by year 2020. In Europe a disease or disorder is defined as rare when it affects fewer than 1 in 2000 citizens.(1) Researchers studying rare diseases have difficulty gathering a sufficient number of people to join clinical trials in order to reach statistically significant results that can impact treatment. Clinical trial transparency and sharing of clinical trial data is fundamental in advancing rare disease research. Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.