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LilDickens

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Blog Entries posted by LilDickens

  1. LilDickens
    Hi All!
     
    Yes, I am sitting up in my room at 4 oclock in the morning hungery ( so I ordered a snack!) I got a real big delicious turkey sandwich and a side of applesauce. I am in heaven!
     
    Surgery went really well. I had a long wait in the pre-op, from 7:30 am until my actual surgery at noon. I then had difficulties after surgery; they forgot to give me anti-nausea medication, and I was sick and flinging around ( I dont remember) and cut my hand. I wonder if this could have been a cortisol crash? I went to surgery at noon and didnt get to my room until 5 pm. Crash post op?
     
    I had to stay in post op longer because they then couldnt get me awake from the meds. I missed seeing the doctor, so I don't have a lot to report. He got the tumor out and now we wait on labs to see if it was a successful surgery! The procedure went well and I am feeling pretty good! I do feel the "Cushings Pressure " is off me, and I do hope and pray it will be permantly gone. Immediately I see the hard tummy bloating is down and my face is softer. I had a tremendous hump ache when I got up here, it was awful. My hump on my neck hurt like a sore tooth, and that is what I recieved pain meds for, not for a headache ( as supposed for the surgery area). I had a very very mild headache at the front of my skull, but soon went away.
     
    I do have DI for now, they put me on a medicine and it stopped immediately ( I will ask for the other testing for this , Thanks) My sodium level was ok coming out of post op, but I didnt hear how the last blood draw faired. The nurse just came in for a draw to check sodium and all here at 4 am.
     
    I also have a nasal drip but not a problem at all. It is expected. Bringing Puffs (as suggested) was a great idea. Internet is good here. Wont let me on facebook, and just signs out a few times on its own but I log right back in!
     
    DrJho is well thought of here..everyone says he is picky, the whole nursing staff on this floor knows his routine to a T. He prepares his patients well in advance and uses two Operating rooms to work with, maintaining a production line of sorts. One is operated on , one is in the next room ready to go. He keeps all his people on thier toes. They really like him. I think I have the best Surgeon for this in the USA!
     
    Thank you for all your prayers! God is so good, He takes care of His own!
     
     
    With heartfelt gratitude for all of you,
     
     
    Kim
  2. LilDickens
    ""My Cushings and paraneoplastic wastings syndrome were caused by a cancerous tumor in my left lung. Of course every doc I saw said that it was from poor diet and lack of excercise even after i told them I have the perfect diet and fitness plan and can gain 3 to 6lbs in one day. Docs did not believe almost everything I was explaining but I kept going to more docs and explaining everything all over again. When I finaly convinced a doc i had cushings several scans of my head were being done. brain surgery was cancelled 2x i was given aprox 2 months to live. then in the nic of time based on their research my sisters convinced the doctors to stop arguing over my brain and look in the lung using an octreotide scan. BAM tumor lit up like a light bulb. Had my lung removed. Deadly Ectopic Cushings runs in my family. I had MANY MANY numerous secondary illnesses ALL were caused by my Cushing's. I think I may be cured I'm praying. Almost all of my horrible conditions disapeared w/my cortisol. I dont want to say it out loud because i dont want to jinx it but i do want to help others and would like to discuss this further w/anyone who is interested. Good luck to all of you. If it was not for my sister finding help here I would not be here. When i have cushing's type symptoms they r calling it carcinoid syndrome. it may last forever because that is the name of the tumor i had (carcinoid) which kinda was a blessing because it is less aggressive than small or oat cell wich is more common and much more aggressive. They did not know until they opened me up that my cancer had spread throughout the entire upper left lobe and the lymph nodes closest to the primary tumor. just trying to put info out there for others who may be doing their own research..."
     
    I would post the posting but I dont know how to do it!
     
    from HOPE
    8,750
    THANK YOU SO MUCH!
  3. LilDickens
    Wow, can't believe how impatient I feel...It's so very hard when I am waiting on Dr Mc to reply back to Dr Holmes about my recent MRI. It just seems like I am getting sicker everyday. I am getting depressed! My hands are so full of troubles right now, mom living with us with Alz, my hubby broke his thumb and home for 6 weeks now, and so on. Cushings Help gives me so much hope and helps me to stay on track.
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