MaryO
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Status Updates posted by MaryO
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Yes, You Need a Medical Alert Bracelet!
#3– DO NOT MAKE IT “PRETTY” OR “NOT SO OBVIOUS”. I can not stress this enough. Ladies I know that you want the cute ones that look like normal bracelets, and have pretty charms, etc on them… THE ENTIRE point of a medical alert bracelet is that someone needs to see it and know that they should look at it. If it looks like a regular bracelet or regular necklace and it isn’t obvious within the first 3 seconds once we get to you and look in the obvious places (neck/wrist). it will NOT get seen. I promise you, we are too busy trying to play the guessing game of why you are not responding, than to take a look at every single piece of regular jewelry and see if it might have a really small inscribing of what is wrong with you. Once again. Make it noticeable. We will see that we need to look at it. Once we do. The guessing game is more than likely OVER. and we can begin to treat you appropriately.
Read more at https://cushieblog.com/2017/07/18/yes-you-need-a-medical-alert-bracelet/
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So true Mary. I was in Germany when I went into adrenal crisis at the airport. The paramedics didn't speak English that well. I was close to syncope and had to mime my finger going into the crook of my elbow to make them understand I needed an IV immediately. I did have an obvious medic alert bracelet on, but found out later through the medic alert foundation that Germany isn't part of their program and therefore didn't recognize my bracelet. Not every country participates in the medic alert program. I was told, I should have had a letter with the pertinent details of my medical condition on me and written in the language of the place I was traveling to. Good advice for future travel. Had that country been a part of the medic alert program it would have been so much easier for them to read the bracelet and proceed. Unless you are in that position you have no idea how terrifying it is when you can't convey the information you need. I was going into shock and my mouth was drying out so bad, I couldn't speak. I didn't think they would figure it out in time. Time is everything in crisis. That's why an obvious medic alert bracelet is needed.
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How scary! I'll have to remember to take a letter with me if I go out of the country again.
I also have a letter for my growth hormone to be able to travel with needles and such. I should probably get that translated, as well.
Thanks - I'm glad your situation worked out ok in the end!
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I'm going to be having a total left knee replacement surgery in early February so I may not be around so much for a while. My surgeon knows I need extra steroids. I've started blogging about this at https://maryomedical.com/2022/12/21/bees-knees-pre-tkr/
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And, although this was supposed to be today, this has been rescheduled for March 9
https://maryomedical.com/2023/01/28/bees-knees-pre-tkr-setback/
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Message Board Upgrade Today
Please let me know if anything is not working properly.
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Guest Board/Please Help! Posted by you May 25th:
" [[Template forums/front/topics/topic is throwing an error. This theme may be out of date. Run the support tool in the AdminCP to restore the default theme.]] "
🙂
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I'm having to rebuild the Cushing's Member Map from old info and the newer bios that are coming in. Find the new MemberMap here
Add your information - or your doctor's - at https://cushingsbios.com/2018/10/28/we-have-a-new-bio-form/
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I think I'm nearly half done with the rebuild
New entries always welcome!
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From Paradise! Costa Rica, Day 2B (or not 2B...): After Tom's conference call we went back by the pool for a b... http://bit.ly/qbfDXT
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Sounds and looks amazing Mary...keep having fun!
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Gastric inhibitory polypeptide-dependent cortisol hypersecretion: André Lacroix, M.D., Edouard Bolté, M.D., Joha... http://bit.ly/dXbDJg
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I think I understand this article pretty well, but can someone who knows give me their general synopsis?
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Are Guidelines for Glucocorticoid Coverage in Adrenal Insufficiency Currently Followed?: Coralie Leblicq, MD, Dian... http://bit.ly/97fTWG
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Nope!
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Upcoming Cushing's Meetings http://cushie.info/index.php?option=com_content&view=article&id=24&Itemid=53
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Cushing's Blog Post: Overnight Dexamethasone Suppression Test in the Diagnosis of Cushing's Syndrome http://ow.ly/18SpJ6
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From Paradise! Paradise Lose / Paradise (Re)found: More excitement. While I was finishing up yesterday's blog, I... http://bit.ly/dAKFEW
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Cushing's Blog Post: Cushing's Disease and Idiopathic Intracranial Hypertension: Case Report and Review of Underlyin... http://ow.ly/18KMN4
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Pituitary Adenomas In Childhood, Adolescence and Young Adulthood: Presentation, Management, Endocrin... #cushings http://tinyurl.com/23rhfaw
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5th CA Pituitary Conference and 1st CA Hormonal/Pituitary Symposium #cushings http://tinyurl.com/287zmdc
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At least u know it's secure RT @ePatientDave So I clicked to request access, got the email...and got told I don't have the right to do that.
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WooHoo! RT @staticnrg Day 212 in the life of a (former) Cushing's patient: It's my week for packages http://goo.gl/fb/vrGsU #365
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Thanks! RT @iveybrandon @cushings I LOVE the new site changes! I can REALLY use it on my phone! You ROCK! Thank you for all your hard work!
