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LilDickens

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Blog Entries posted by LilDickens

  1. LilDickens
    Facing Life Objectively:
     
    DxedCushings with Acromegaly Nov 09
    Surgery on Pit tumor Jan 28, 2010 Endocscopical ( no packing)
     
    Recovery:
    Day 6 :
    Feeling lighter, like breathing better
    Sleep better
    Hemmorroids disappeared
    Vaginal area tightened
    Tongue decreasing in size
    Normal Bowel movements
    Can sleep on side where pain use to be
    Can get up from a squat
    stiffiness going away
    Diziness gone
    Feet stopped being sweaty
    Lost 4-5 lbs!
     
    Stuffy nose
    Lack of taste
     
    Day 14
    Same
    Normal BP
    Normal Pulse
    Still no taste
     
    Day 20
    Sinus infection-Dx Feb15 , antibiotic
    Can't smell nor taste
    BP up a little
    feel bloated
    No more weight loss
    Feel Cushie
    Depression
    Some tired days
    Lots of Sneezing and a bloody nose on Feb 14
    Still tinted pink two days later
    DI- on desmopressin acetate
    No Pain
    Sleeping better
     
    Cortef- 20 mg morn, 10mgs 3 pm since surgery
     
    Day 26
    Still tinting some pink in sinus discharge
    DI
    Bloated
    Can't smell-taste
    Depressed
    Vaginal immflamation
     
    Earlobes down- earrings fit better
    Normal Bowel movements
    Headaches gone
     
    9 weeks
    I can smell and taste!
    gained weight
    Tired
    Headache
  2. LilDickens
    Hi All!
     
    Yes, I am sitting up in my room at 4 oclock in the morning hungery ( so I ordered a snack!) I got a real big delicious turkey sandwich and a side of applesauce. I am in heaven!
     
    Surgery went really well. I had a long wait in the pre-op, from 7:30 am until my actual surgery at noon. I then had difficulties after surgery; they forgot to give me anti-nausea medication, and I was sick and flinging around ( I dont remember) and cut my hand. I wonder if this could have been a cortisol crash? I went to surgery at noon and didnt get to my room until 5 pm. Crash post op?
     
    I had to stay in post op longer because they then couldnt get me awake from the meds. I missed seeing the doctor, so I don't have a lot to report. He got the tumor out and now we wait on labs to see if it was a successful surgery! The procedure went well and I am feeling pretty good! I do feel the "Cushings Pressure " is off me, and I do hope and pray it will be permantly gone. Immediately I see the hard tummy bloating is down and my face is softer. I had a tremendous hump ache when I got up here, it was awful. My hump on my neck hurt like a sore tooth, and that is what I recieved pain meds for, not for a headache ( as supposed for the surgery area). I had a very very mild headache at the front of my skull, but soon went away.
     
    I do have DI for now, they put me on a medicine and it stopped immediately ( I will ask for the other testing for this , Thanks) My sodium level was ok coming out of post op, but I didnt hear how the last blood draw faired. The nurse just came in for a draw to check sodium and all here at 4 am.
     
    I also have a nasal drip but not a problem at all. It is expected. Bringing Puffs (as suggested) was a great idea. Internet is good here. Wont let me on facebook, and just signs out a few times on its own but I log right back in!
     
    DrJho is well thought of here..everyone says he is picky, the whole nursing staff on this floor knows his routine to a T. He prepares his patients well in advance and uses two Operating rooms to work with, maintaining a production line of sorts. One is operated on , one is in the next room ready to go. He keeps all his people on thier toes. They really like him. I think I have the best Surgeon for this in the USA!
     
    Thank you for all your prayers! God is so good, He takes care of His own!
     
     
    With heartfelt gratitude for all of you,
     
     
    Kim
  3. LilDickens
    Dx- Cushings / Acromegaly /Jan 28th, 2010
    DrJHO- Pituitary Surgery- morn cort - 8.0
     
    Other Dx:Hypothyroidism, Hashimotas, Diabetic Insipidus-DI, Low GH, Pre-Diabetic, Osteopina,Atherosclerosis-aortic calcification, Basiler Atelectasis
     
    LABS-
    Pre Op:
    4/09
    6+ midnight saliva's - within normal range
    UFC- 57.9, 55............ .......(range > 50)
     
    9/09
    UFC -.37,37,49, 48, 63 ....( 10-34)
    Free Cort/Creat Rat. 46 (9-32) 5.3 (1.6-3.6)
    IGF-1-234 (88-249), 342 (87-238)
    MRI- no visible tumor
     
    12/09
    CRH Test- positive pituitary, Glocouse Supression test -Normal !
     
     
    SURGERY 1/28/2010
    Adenoma- Stained GH-Positive, ACTH -negative
     
    6/10-Doc say I'm cured
     
     
    6 months Post Op:
    No weight loss
    tired
    shortness of breath- very prevalent- unpredictable,
    drop to my knees sometimes
     
    thyroid issues
     
    Post Op Testing:
    6/2010
     
    UFC 24s- .............53, 51 range >50
    UFC 17s-.............48, 55 (10-34)
     
     
    9 months:Going for testing at Camp Cushie- Oct 25th, 2010.
    Tested high in ACTH, Cortisol and UFC
     
    Camp Cushie
    midnight cortisols 7.0, 5.6, 5.1, 4.6 ( upper limit 5)
    high Acth ........78
    high UFC ........74
    random serum cortisol 26.3 ( upper limit 28)
     
    1 year Post Op:
    Surgery Jan 28th, 2010
     
    Dr L's Home Test Kit #1
    UFC........... 74, 72, 48, 31 (0-50)
    Saliva-........normal
    ACTH - ... .38.2, 31.0, 26.4 , 39.6 ( 7.2-63.3)
    Cortisol-....15.7, 11.0, 14.4 , 12.9 (2.3-11.9)
     
     
    Dr L's Home Test Kit #2
     
    Cortisol....21.5, 17.7, 9.0, 11.9 , 5.8 ( 2.3-19.4)
    ACTH ......51.6, 42.9, 39.8, 32.0, 14.2 ( 7.2 - 63.3)
    UFC - .......44, 45 ,33 , 31, 48....(0-50)
    Salivas- Lost in mail and 1.8, 2.1, 1.8, 1.5
     
    Hemoglobin A1c ........ 6.2 (5.7- 6.4 )
    New Dx 1/2011-....Pre Diabetic-told to exercise /lose weight
    Blurry vision-right eye tearing-specialist says I am ok- 20/20
    Back pain @ 8:20 am followed by flushing, some nausea
    Dizziness
    Sparatic High BP and Sugar level
    Shallow breath- going to Pulmunary Doctor -CT Scan-Basiler Atelectasis
    Atherosclerosis-aortic calcification- heart
    Heaviest I've ever weighed.
  4. LilDickens

    Waiting...

    By LilDickens,

    Wow, can't believe how impatient I feel...It's so very hard when I am waiting on Dr Mc to reply back to Dr Holmes about my recent MRI. It just seems like I am getting sicker everyday. I am getting depressed! My hands are so full of troubles right now, mom living with us with Alz, my hubby broke his thumb and home for 6 weeks now, and so on. Cushings Help gives me so much hope and helps me to stay on track.

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