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About HeatherKY

  • Birthday 06/30/1975

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    Frankfort, KY

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  1. Rachel! I've always heard from other members of my family that we're supposedly descended from the Tudors. Which is exactly what I kept thinking as I read that article. Hereditary endocrine issues, anyone? LOL OK, now I can't get that song out of my head...I'm Henry the eighth, I am, I am...
  2. We totally have Cushing's!

  3. Heather - you are such a sweetheart! I can't help myself from stalking!

  4. Just stopping by to let you know...I'm totally stalking you! XOXO TWH

  5. Saying prayers that they may soon receive help for this precious baby.
  6. That poor lady! I agree with you all about her Cushing's being present before she started the drug. Just one more sad story about one of us not being diagnosed properly and it leading to further damage and complications down the road due to improper treatment. I was getting the impression from the article that she was blaming the Fen-phen for many of her problems, but so many are likely Cushing's related, i.e. the sleep apnea, the depression, the crumbling teeth. (one of my least favorite symptoms...I really am going to look like I'm from KY if this keeps up!) I'm not denying that the drug caused bad things to happen...just that it was compounded by this awful disease. I have a close friend who took the drug for quite a while. I worry about her because after stopping the drug, she cannot stay warm. She freezes nearly constantly, even in the summer months. There's no telling what sort of damage it did. MJ, my mom took Vioxx as well. She developed unexplained arrhythmias and erratic b/p that stumped the Cardios she saw. It was only after stopping the drug that she realized that was what was causing her mysterious ailment. Sure are some scary drugs out there!
  7. I noticed that, too. It's encouraging that the article advocates doing multiple tests of different varieties. Maybe we're getting somewhere!
  8. Can't wait to meet you in Indy! I'm praying for highs for you and for that rascally tumor to show up. :) XOXO ~Heather

  9. Hooray for you, Cindy, and for Dr. McC! It's my personal belief that, while painful to share our stories, it's the best way to educate and empower others fighting this battle. What a blessing you both are!! Love and Hugs, Heather
  10. Thank U so much for ur welcome! And yes my endo loves strange Cushing's Cases! Seem's I hit the jackpot with her!


  11. Thank you, Brenda! I recognized a part of myself in each one of their case studies.
  12. Great program! I loved it...professional, but relaxed enough that I felt like I was having coffee with a pair of girlfriends. I really related to your story, Robin, and can't wait to hear more. Hugs, Heather
  13. It's true, they do call this the "Ugly Disease" and I can see why. It's not that we're ugly people, but this disease is so awful and part of its power is to make us feel ugly and give drs an excuse to dismiss us. I like the graphic. Its colors are eye-catching and the phrase "ugly disease" is just shocking enough to give someone pause and make them ask "what is this?"...exactly what you want them to do. Thank you so much for sharing! You have quite a talent and I'm looking forward to seeing more. Hugs, Heather
  14. Great job, Alicia! Thank you for sharing. It was courageous of you (and all of our voice chat participants) to be so candid about your experiences. Thanks to MaryO and Robin for putting the shows together, too! Hugs, Heather
  15. Wishing you all the best, Melissa! You're such a sweet person. Hang in there...it will all be ok. Hugs! ~Heather

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