MaryO
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Status Updates posted by MaryO
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Summer is from Fresno CA. She had pituitary surgery 1-24-17 and had a lot of trouble weaning off steroids post-op.
Read more at https://cushingsbios.com/2018/05/06/summer-j-summer84-pituitary-bio/
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Jane is from California. She 76 years old and was recently diagnosed with Cushing's Syndrome after years and years and years of suffering symptoms.
Read more at https://cushingsbios.com/2018/05/05/sjw-jane-w-adrenal-bio/
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Adrenocortical carcinoma is a malignant tumor that develops in the cortex of the adrenal gland. It usually is identified by increased amounts of hormones that are produced by the adrenal glands, like cortisol.
This tumor type is very rare in children, representing fewer than two in every 1,000 pediatric tumors.
Read more at https://cushieblog.com/2018/05/05/rare-malignant-tumor-of-adrenal-gland-led-to-cushings-girls-death/
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In rare cases, Cushing’s syndrome may be caused by cortisol-secreting masses in both adrenal glands, a case report shows.
Read more at https://cushieblog.com/2018/05/04/cushings-patient-exhibits-cortisol-secreting-lesions-in-both-adrenal-glands/
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Pam is from Ypsilanti, Michigan. She is the mother of an 18 year old daughter who she suspects has Cushing's.
Read more at https://cushingsbios.com/2018/05/04/pam-m-mapgirl23-undiagnosed-bio/
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I’m in Indiana as well and undergoing testing now to confirm Cushing’s but I’m not impressed with the Endo my family doctor referred me to....
In the comments area of https://cushingsbios.com/2018/01/20/stacy-b-pituitary-adrenal-bio/
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Mary Kelly O'Connor, you are an inspiration to so many! Thank you for all you have done and continue to do for our community!
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In Memory of Patti,
May 2, 2002
From the Message Boards: ” I loved her, she was a great friend. She died of adrenal cortical carcinoma.”
Read more at https://cushingsbios.com/2015/05/02/in-memory-patti/
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.The EPIC Foundation would like to recognize Mary Kelly O’Connor as a pioneer in the Cushing’s community as an advocate and life changer! Mary Kelly O’Connor is Person of the Month for May, 2018!...
Mary O wants to support, educate, and share! She has been able to provide support to an entire community of people on her own and with very little funding. She puts her heart and soul into this work because she cares deeply about this community! Mary O has been able to turn her adversity into an opportunity to walk in her purpose to change lives!
Mary Kelly O’Connor is definitely someone you should know! The EPIC Foundation proudly works in alliance with Mary Kelly O’Connor the founder of Cushing’s Help, a foundation dedicated to giving Cushing’s patients valuable information, a space to share their stories, and a place to connect with one another. To learn more information about Mary O and her work, you can go to her website at http://cushings-help.com/ Together, We are EPIC!Read more at https://cushieblogger.com/2018/05/01/mary-kelly-oconnor-person-of-the-month-may-2018/
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In Memory: Kathryn McBride ‘Bridie’ Miller Murdered May 1, 2007
'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and she is a patient of Dr. Ludlam, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'
Read more at https://cushingsbios.com/2015/05/01/in-memory-kathryn-mcbride-bridie-miller/
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I too have Cushings. Initially I had my 1.8 cm removed and had about three years of feeling better. And I now have a reoccurrence . I started taking Cagaberline but I could not take it. I am currently taking Metyripone....
In the comments area of https://cushingsbios.com/2018/04/04/stuart-m-parent-of-a-teenager/
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Part 1. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blogs and other topics of interest to Cushing’s Patients.
Listen at http://www.blogtalkradio.com/cushingshelp/2008/08/21/tentative-interview-with-joselle
Part 2. Robin and MaryO discuss the role of blogs in helping to spread the word about Cushing’s. They also discuss popular doctor blogs and other topics of interest to Cushing’s Patients, friends and family.
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Patty met with her neurosurgeon and ENT and had pituitary surgery June 2017.
Read more at https://cushingsbios.com/2018/04/30/patty-pituitary-bio/
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Today is the final day of the Cushing’s Awareness Challenge and I wanted to leave you with this word of advice…
Read more at https://cushieblogger.com/2018/04/30/day-30-cushings-awareness-challenge-2018/
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Angie is from Alamo. Her Endo tested her and within 6 months they were positive for Cushing's. She had surgery on her pituitary gland April 11, 2017. The endo at the hospital said that the surgery was unsuccessful.
Read more at https://cushingsbios.com/2018/04/30/angie-angie-pituitary-bio/
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Katie’s short bio: Symptoms started in 2002 at age 22, or before. Jan. 2008 – 2 mm. area of differential enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 – DX – hypothalamic amenorrhea Mar. 2008 – DX – pituitary adenoma, hypogonadism – female.
Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/24/interview-with-katie-kvb927
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I was amazed to make it through the entire weekend with no Adrafinil – sadly, there’s nowhere to get it anymore. I carried extra cortisol, just in case. And slept all the way home on the train.
Read more at https://cushieblogger.com/2018/04/29/day-29-cushings-awareness-challenge-2018/
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Do you know how many people have told me that if I just “juice”, I will be cured from Cushing’s or Adrenal Insufficiency?! I appreciate the sentiment, but the sad reality is that no amount of juicing and no vitamin will cure Cushing’s. Some Cushing’s patients do take vitamins, some do eat raw food or paleo diets, and some even juice. However, this is just a lifestyle choice and not an attempt to cure Cushing’s.
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Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity.
Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/17/interview-with-kate-fairley
Sadly, Kate was only 46 when she died on June 23, 2014. Her bio and video can be found here: https://cushingsbios.com/2015/06/23/1623/
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I had found out that I had my kidney cancer on Friday, April 28, 2006 and my surgery on May 9, 2006. I was supposed to go on a Cushie Cruise to Bermuda on May 14, 2006. My surgeon said that there was no way I could go on that cruise and I could not postpone my surgery until after that cruise.
Read more at https://cushieblogger.com/2018/04/28/day-28-cushings-awareness-challenge-2018/
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Charlie is not yet diagnosed with Cushing’s but has many symptoms. He writes, in part, “I understand that Cushing’s Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night..”
Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/10/interview-with-charlie-creativeogre
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I also have a teenage boy diagnosed with Cushings. He has been treated with medication for a year and a half and now we are back to the beginning...
Read more at https://cushingsbios.com/2018/04/04/stuart-m-parent-of-a-teenager/
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People sometimes ask me how I found out I had Cushing’s Disease. Theoretically, it was easy. In practice, it was very difficult.
Read more at https://cushieblogger.com/2018/04/27/day-27-cushings-awareness-challenge-2018/
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Message Board Upgrade Today
Please let me know if anything is not working properly. I already removed one item from the sidebar and will try to fix that soon.
Thanks!
http://cushings.invisionzone.com/ -
Christine Miserandino (2010) uses the spoon theory to answer the question, “What does it feel like to be sick?” The spoons serve as a symbol for resources available and energy spent to get through every moment of every day.
