MaryO
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Status Updates posted by MaryO
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Tamara is from Louisiana and Illinois She has been told by three physicians including Pacific Neuroscience Institute and a Harvard physician that she has Cushing’s Disease.
Read more at https://cushingsbios.com/2018/04/03/tamara-k-pituitary-bio/
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Have you checked out The Epic Foundation? I encourage you to do so. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017, Karen debuted EPIC.
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...I have been taking a lot of liquid Magnesium and minerals she suggested and I feel better. I had the same symptoms, plus polycystic ovaries, and migraines. This regime has helped me...
In the comments at https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/
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...We lost a young woman with Cushing's to suicide in 2014. There are rumors now that another recent loss was suicide as well. In my mind, regardless of what the exact cause was, Cushing's is at fault. Cushing's led them to their deaths just as surely as if it had struck the death blow itself. If that is hard for you to fathom, then please allow me to educate you briefly on this dastardly, "most morbid of diseases" and why I feel the way I do....
Read more at https://cushieblogger.com/2018/04/02/digging-deep-depression-anxiety-and-suicide/
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I was also suffer a long time Cushing syndrome,10 years before they figure it out, or should I say “believed me”. I
In the comments area of https://cushingsbios.com/2018/04/01/in-memory-shianne-lombard-treman-march-28-2018/
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Robin Smith (staticnrg) hosted as Cushing’s message board members called in to talk about their fight for diagnosis and treatment. Robin opened the show with a brief explanation of what Cushing’s is and what the symptoms are.
Read more at https://cushieblogger.com/2018/04/02/interview-archive-symptoms-and-diagnosis-cushings-message-board-members/
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Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
Read more at https://cushieblogger.com/2018/04/02/day-2-cushings-awareness-challenge-2018/
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Roxanna is from San Jose, CA. Among other symptoms she has a large abdomen, low thyroid and high testosterone, purple stretch marks, edema in ankles and legs, extreme joint pain and vitamin D deficiency.
Read more at https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/
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Book: Be Your Own Doctor
...Being constantly diagnosed as “healthy” caused me to be told, when I was finally diagnosed correctly, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was.
Read more at https://amzn.to/2pWMhOh
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From another Cushie Blogger: Another loss
Shianne Lombard-Treman passed just three days ago. She had a form of Cushing’s Syndrome caused by adrenal tumors, and I am in remission from Cushing’s Disease caused by a tumor on my pituitary. My heart aches thinking of Shianne and all those we have lost in the last few years. Today marks the start of Cushing’s Disease Awareness Month (and Adrenal Insufficiency Awareness Month - a common result from Cushing’s treatment)...Read more at https://cushieblogger.com/2018/04/02/another-loss-just-as-cushings-awareness-month-starts-again/
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In Memory: Shianne Lombard-Treman
Shianne was a Cushing's Survivor who had just published a book, Be Your Own DoctorRead more at https://cushingsbios.com/2018/04/01/in-memory-shianne-lombard-treman-march-28-2018/
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Lin N (Lin), Undiagnosed Bio
Lin is from Vassalboro, Me. She is not yet diagnosed with Cushing's but her new doctor agreed that she may have Cushings and referred her to an Endocrinologist. Her midnight saliva Cortisol is twice high normal.
Read the whole bio at https://cushingsbios.com/2018/04/01/lin-n-lin-undiagnosed-bio/ -
The RARE Patient Advocacy Summit is the can’t-miss event of the year for rare disease stakeholders. The Summit will take place October 3-4 at the Hotel Irvine in Irvine, California, and it is the largest gathering of rare disease patients, advocates and thought leaders worldwide.
Read more here https://cushieblogger.com/2018/04/01/register-for-2018-rare-patient-advocacy-summit/
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Detailed imaging analysis of patients with Cushing’s disease (CD) and other disorders caused by pituitary adenomas (tumors that arise from the pituitary, a small gland in the brain) provides correlation with clinical characteristics and treatment response...
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Interview Archive with Mary O’Connor aka MaryO, Cushings-Help.com founder
As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there...
Interview with Mary O’Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing’s Survivor. Robin (staticnrg) hosted.
Read more at https://cushieblogger.com/2018/04/01/interview-archive-with-mary-oconnor-aka-maryo-cushings-help-com-founder/ -
From a Past Blogging Challenge.
Today, I’m going to be talking about my Cushing’s story, which still continues, even 8 years after I was diagnosed.
https://cushieblogger.com/2018/04/01/from-a-past-blogging-challenge/
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Day 1: Cushing’s Awareness Challenge 2018
April is always Cushing's Awareness Challenge month because Dr. Harvey Cushing was born on April 8th, 1869.
https://cushieblogger.com/2018/04/01/day-1-cushings-awareness-challenge-2018/ -
In Memory of Alena Renea Weeks Greenhill, March 30, 2007
It may not have been adrenal crisis, but it may have, as Renea, after her BLA, didn't need replacement. She hadn't taken hydro for some year(s), and yet her cortisol was always '0'. The doctors would just scratch their heads.Renea was 31.
Read more at https://cushingsbios.com/2015/03/30/in-memory-alena-renea-weeks-greenhill/
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Cushing’s syndrome is a condition you probably have never heard of, but for those who have it, the symptoms can be quite scary. Worse still, getting it diagnosed can take a while. Cushing’s syndrome occurs when the tissues of the body are exposed to high levels of cortisol for an extended amount of time. Cortisol is the hormone the body produces to help you in times of stress. It is good to have cortisol at normal levels, but when those levels get too high it causes health problems. Although cortisol is related to stress, there is no evidence that Cushing’s syndrome is directly or indirectly caused by stress.
Read more at https://cushieblog.com/2017/06/24/cushings-syndrome-a-tale-of-frequent-misdiagnosis/
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The latest The Cushings Daily! https://t.co/ORRNTkQAtG Thanks to @LuvLibertyPeace @CheckOrphan #hcsm #mhealth
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Image-guided (navigation-assisted) endoscopic trans-nasal trans-sphenoidal pituitary surgery is what we are about to view being performed in the country (Sri Lanka) only since October this year. For, the 38-year-old patient lying inert on the operating table has a tumour just above her pituitary gland, between the optic nerves and the carotid arteries, making it a difficult operation-site to access. (The pea-size pituitary gland is dubbed the ‘master gland’ as it produces many hormones for the whole body, while also stimulating other glands to produce other hormones.)
Read more at https://cushieblog.com/2016/12/21/into-the-brain-through-the-nostrils-sri-lanka/
