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just me =]

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more memory

What she said: It sure has been a long year and our journey is far from over as anyone dealing with Cushing?s knows. Claudie and I have been busy with working, school and moving. I wanted to stop by give everyone a quick update. It is hard to keep up it because things her are never conclusive and always changing. After surgery Claudie?s health progressed slowly. I can say she is not going down hill anymore. I pray that gives hope to everyone suffering for this strange and horrible disease. Her

missclaudie92

missclaudie92

What she said

What she said: Yesterday Claudie came to me and said mom look at this. She lifted her arm and showed me spits; .like knife slices along one her big stretch marks. This stretch mark goes from the front of her shoulder under her arm and down the side of her breast, it is 6 inches wide. It is like the skin sloughed off and left slice holes in the skin about 1/2 inch deep. It looks like the skin is lifting away from the underneath skin like this whole chunk could be lifting off. There are grey spo

missclaudie92

missclaudie92

I was smiling and laughing? more re-caps

What she said: Claudie is smiling and laughing! I raised her Prednisone on my own. She was only taking 7.5mg in the morning. I added a nighttime dose until she reached 10mg before bedtime. She stopped trembling and lay in bed all morning. The endo was not happy about it then she called me back and said well let?s let her feel good for a while before we lower the dose again. I had to make the decision to raise them after I read everything on this sight. I just knew that the doctors were not r

missclaudie92

missclaudie92

what I remember 2

More re-cap on my mom's posts   What she said: Hi Friends,   I talked to Claudette's endo today. She says she is very concerned and has questions out there to many other docs. She said that this so rare that she is getting all the info she can. I am supposed to up the prednisone to 2 times a day. 7.5 mg in the morning and 5 mg at night. I hope she kept the morning dose down because she has gotten sick several times today. I think that the Vicodin is messing with her bowls. I understand it c

missclaudie92

missclaudie92

What I rememeber

SO I thought maybe I should go over my mom's post and tell it how I rememeber. Soo my mom said: Hi Friends, We went to the ER. Doctors are as annoying as ever. Claudette told them she was trembling. No, she could not pin point when it would happen. Yes, other wise she felt ok, except tired. I was asked if we carried an emergency kit. I told them no body talked to us about that. I told them 3 times that she started this while she was on 10MG of prednisone. They gave her some potassium and a 10

missclaudie92

missclaudie92

Hello, what are you doing here?

Hey everyone,   I thought I would tell you this funny thing that happened to me and my mom the other day. My mom and I were watching American Idol. She was on the computer listening to the people sing and I had my butt planted on the couch. Our apartment is small, its a one bedroom, small kitchen and big living room kind of place. So you can see the front door from where ever you are. So were sitting there like usual and our front door opens. We both spin around. My mom says, "Helllooooo?"

missclaudie92

missclaudie92

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