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~CUSH Founding President~
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About SuziQ

  • Birthday 08/08/1946

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    I collect dolls and bells and recently angels and faeries. I enjoy the natural beauty around us. I am committed to helping others find their way through the maze of Cushings. I believe God is with us at all times.

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  1. I'm very new to this site, but one of the first things I did was read through your story. It's inspiring to see how many people's lives you touched, and heartbreaking to read through what happened during your last few months. I hope you are at peace, and I wish you a very happy birthday!

    1. MaryO


      Thank you for this, Jasminesky.  Sue was indeed a very special person who touched everyone she met.  I miss her all the time.

  2. Hi Suzi I haven't been on for a long time and its so strange u not being on here. Do u remember our sunday morning coffee chats and sm1 would always bring the doughnuts lol.xxx

  3. I miss you SuziQ. I wish you were still with us.

  4. The pins we promote and sell to help support CUSH do not have angels on them. They are yellow and blue ribbon pins.
  5. Thank you! Thank you! Some of us do need the guidance of a form letter though....lol....such as moi.
  6. Please do not use the form letter. That is a suggested letter. You must alter it to make it your own. Also, there is a protocol to follow for emailing your Senators and Representatives. Letters to Congress Include the following for your senators: """please contact the Senator's office in your State, and ask the person who is in charge of the Health issues, to contact Suzanne at Sen. Inhofe's office 202-224-4721. This telephone # is for the Staff of your senator to call. Ask the Senator if he/she will co-sponsor the Resolution making April 8, 2006 Cushings Awareness Day. """ Include the following for your representatives: """please contact the Representative's office in your district and ask the person who is in charge of Health issues, to contact Kyle Robertson at Senator Geoffrey Davis' office 202-225-3465. Ask your representative if he/she will co-sponsor the Resolution making April 8, 2006 Cushing's Awareness Day.""" We all have two Senators and one Representative we can contact. The Resolution has been started. This can be done! If you have any questions, please contact Cheryl or myself. Thanks! Sue
  7. Oh! And I'm also checking into the cost for 535 CUSHings Ribbon Pins.. It's the one on the right.... Duh!
  8. Reps? Cheryl, if you're talking about the House of Representatives in Congress you need to have them contact K. Robertson.
  9. ""Prescription medications for conditions such as depression or high blood pressure are lifesavers for many people. While these treatments do much good, they've also been shown to cause unwanted weight gain -- up to 10 pounds per month. The Main Offenders More than 50 common medicines carry the possible side effect of weight gain. Steroids and some older anti-depressant medications are at the top of the list. But recognizable names such as Paxil and Zoloft are part of the group, too, as are the heartburn drugs Nexium and Prevacid. What You Can Do Just as doctors advise against self-prescribing, they also strongly discourage patients from abruptly stopping a medication because of weight gain. If a particular prescription seems to be causing excess pounds to pile on, you should first ask your doctor if he or she can switch you to another medicine. But if after changing to a different drug the weight gain persists, you may need to look for an alternative."" I knew that some drugs could make us gain weight but I didn't realize how many of them could. Too bad they didn't list all of them for us.
  10. Lori, I just reread your posting .. I read it wrong. Not that I can list the Congressmen anyhow..... I thought you wanted to know who'd been contacted. We have no idea who all has or has not been contacted in the past. We started out with one in the Spring and added another and then it was three and now four. Basically we need someone in the House and the Senate to introduce legislation for Cushing's Awareness Day. They have to have support from their colleagues. In the posting just before this one.... I posted about Stephanie's Representative. She had originally contacted his office in the spring. When I started this topic this was one of the things I wrote: ""I also talked with Stephanie and she contacted her Representative's office again. They do have her letter in Washington DC and she was given a contact in her Representative's office in DC to write to so she did and mentioned the other Representative's who are willing to support this day.""
  11. This is how it works. Stephanie just called me. Her representative's office called her this morning and is willing to support Cushing's Awareness Day. He said he is looking forward to receiving the House of Representatives "Dear Colleague" letter. This is getting so exciting. Dare we believe?
  12. We are not posting the Senators and Representatives names on the message board. We do not have permission to do this. That's why I asked Lorrie to contact me if she'd like more information. You can contact any of the people who are involved, not just me.
  13. It couldn't hurt, Lorrie. Contact me, if you'd like, for more information.
  14. I forgot to tell you.... I believe the Cushing's Syndrome Fact Sheet is for all of Congress...
  15. Cushing's Awareness Day A goal since Mary started the message boards in 2000. April 8th, Dr. Harvey Williams Cushing's birthday, our choice for a National Cushing's Awareness Day. We've never given up on this idea. First of all I want to say a big Thank You to Jayne, who has worked so hard toward this goal. Jayne wrote to her congresswoman and is in the congressional record. Jayne even wrote to the President. Jayne didn't work on this over the summer as she needed the summer to recover from her lung surgery. I'm happy to say she's feeling better. I know that many of you wrote to your congressmen. I have no idea who or how many of you did this with the exception of: Emily Shelton, who contacted her congressman's office last spring, and in turn, his office contacted me. Stephanie Womack Gilchrist, who sent me a copy of the letter she sent to her congressman. Here's what's been happening since the end of September. I talked with Emily Shelton and Jayne Kerns a couple of times about Cushing's Awareness Day about what we should do next. Cheryl Farrar began contact with her congressman's office. I talked with Emily's congressman's office and he requested a Cushing's Syndrome Fact Sheet. I combined Mary's, Jayne's and my information on the fact sheet and sent it to Emily. Emily added her ideas, formatted and completed the fact sheet. Then there were a few changes made by CUSH officers and we have a final copy. Over the first two weeks of October Cheryl had several contacts with her congressman's office. About time we finished the fact sheet Cheryl's Senator decided to do a Senate Resolution for Cushing's Awareness Day and shortly thereafter sent a "Dear Colleague" letter, requesting support. At the same time, Emily sent her Representative the Cushing's Syndrome Fact Sheet and his office is going to work on this in the House of Representatives. I also talked with Stephanie and she contacted her Representative's office again. They do have her letter in Washington DC and she was given a contact in her Representative's office in DC to write to so she did and mentioned the other Representative's who are willing to support this day. Yes!!!
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