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Status Updates posted by MaryO
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The latest The Cushings Daily! https://t.co/7zIYe2mx22 Thanks to @KidneyCancer @rarediseasefdn @EPICTogether #hcsm #endo2018
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ACTH/Cortisol Ratio May Be Simple, Reliable Test to Diagnose Cushing’s Disease https://t.co/BmeQlhWG4h
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Increases in cortisol secretion, even if mild, induce early heart and blood vessel changes that may increase the risk for cardiovascular disease, according to Italian researchers.
The findings continue to support the role of the hormone cortisol in heart disease, and demonstrate the need for carefully monitoring cardiovascular risk in patients with high levels of the hormone, including those with Cushing’s disease...
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The latest The Cushings Daily! https://t.co/PQ7MPz1wlS Thanks to @kayquinn @GomerBlog @LuvLibertyPeace #hcsm #bcsm
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In Memory: Sue Koziol (SuziQ) Sue was born in Michigan on August 08, 1946 and passed away on March 12, 2006 at the… https://t.co/ERMzINab38
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In Memory: Sue Koziol (SuziQ)
Sue was born in Michigan on August 08, 1946 and passed away on March 12, 2006 at the age of 59.
She was a very special friend to Cushies world-wide. We will remember her always.
Read more at https://cushingsbios.com/2015/03/12/remembering-sue-koziol-suziq/
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Not only does the pituitary make its own hormones, but it also triggers hormone production in other glands. The pituitary is aided in its job by the hypothalamus. This part of the brain is situated above the pituitary, and sends messages to the gland on when to release or stimulate production of necessary hormones.
Read more at https://cushieblog.com/2016/12/31/the-pituitary-gland-small-but-mighty/
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A Letter To Patients With Chronic Disease
MaryO'Note: Dr. Rob was interviewed by Robin (staticnrg) and Mary O'Connor (MaryO) October 2, 2008 on BlogTalkRadio Cushing's Help
...I am talking about your understanding of a fact that everyone else seems to miss, a fact that many doctors hide from: we are normal, fallible people who happen to doctor for a job. We are not special. In fact, many of us are very insecure, wanting to feel the affirmation of people who get better, hearing the praise of those we help. We want to cure disease, to save lives, to be the helping hand, the right person in the right place at the right time.
But chronic unsolvable disease stands square in our way. You don't get better, and it makes many of us frustrated, and it makes some of us mad at you. We don't want to face things we can't fix because it shows our limits. We want the miraculous, and you deny us that chance...
Read more at https://cushieblog.com/2017/01/10/a-letter-to-patients-with-chronic-disease/ -
Cushing's Disease or Syndrome?
Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.
Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F -
In addition to Addison’s disease, Emily has been diagnosed with congenital Adrenal Hyperplasia, Central Precocious Puberty, Autism Spectrum Disorder, Sensory Processing disorder and Anxiety Disorder.
The 5-year-old’s adrenal glands don’t produce enough steroid hormones.
Read more at https://cushingsbios.com/2017/10/12/addisons-disease-periods-at-4-years-menopause-at-5/
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Vic is from London, UK. She has had symptoms for the last 8 years and has used hydrocortisone on her face daily for 26 years. She is awaiting test results.
Read more at https://cushingsbios.com/2017/06/07/vic-tori276-undiagnosed-bio/
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Tips for living with Cushing's - before, during and after treatment. Please feel free to add your own tips here!
Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control.
For specific tips such as Getting Medical Attention for an Adrenal Crisis or how to make an Emergency Kit, please see Helpful Hints
Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1
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In Memory of Erica Michelle “GaGa” Meno, a Cushie who died this day in 2015
Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
Read more at https://cushingsbios.com/2015/03/11/in-memory-erica-michelle-gaga-meno/
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There are some ideas in the post below and some at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1 (and also parts 2 and 3!)
Do you have any other helpful tips for the New Year?
Read more at https://cushieblog.com/2017/01/02/some-lifestyle-tips-for-cushings-syndrome/
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The latest The Cushings Daily! https://t.co/1NEtb5r3k6 Thanks to @kayquinn @MightyCasey #hcsm #oscars
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Causes of Cushing’s Syndrome
Pituitary Tumors, Adrenal Tumors, and Other Cushing’s Syndrome Causes
Read more at https://cushieblog.com/2016/10/02/causes-of-cushings-syndrome/
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Patients with different subtypes of Cushing’s syndrome (CS) have distinct plasma steroid profiles. This could be used as a test for diagnosis and classification, a German study says.
A quick diagnosis of CS is crucial so that doctors can promptly give therapy. However, diagnosing CS is often complicated by the multiple tests necessary not just to diagnose the disease but also to determine its particular subtype.Read more at https://cushieblog.com/2018/01/03/cushing-patients-could-be-diagnosed-subtyped-using-plasma-steroid-levels/