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Status Updates posted by MaryO
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Cyndi is from Bradenton FL USA. She is In the process of discovery - all symptoms check marked. CT Scan completed 2 days ago - waiting with anxiety for results of blood work and scans.
Read more at https://cushingsbios.com/2018/03/03/cyndi-k-what-now-undiagnosed-bio/
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After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.
Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.
Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op
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RT @medpagetoday: Delays and mistakes abound in crowded emergency rooms. https://t.co/fBDVW5IF0Q
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In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.
Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency -
Diagnosing Cushing’s syndrome can take 24 hours of complicated and repeated analysis of blood and urine, brain imaging, and tissue samples from sinuses. But that may soon be in the past: National Institutes of Health (NIH) researchers have found that measuring cortisol levels in hair samples can do the same job faster.
Read more at https://cushieblog.com/2017/04/01/a-faster-way-to-diagnose-cushings-syndrome/
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Cushing’s Syndrome Treatments
You may need one treatment or a combination of these treatments to effectively treat your Cushing's syndrome. Your doctor will let you know what treatments for Cushing's syndrome you'll need.
Read more at https://cushieblog.com/2017/01/01/cushings-syndrome-treatments/
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People with high cortisol levels have lower muscle mass and higher visceral fat deposits, putting them at a greater risk for cardiovascular disease, new research shows.
High levels of cortisol can result from a variety of reasons, including Cushing’s disease and adrenal tumors. Most adrenal tumors are found to be non-functioning, meaning they do not produce excess hormones. However, up to 47 percent of patients have mild autonomous cortisol excess (MACE).
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The latest The Cushings Daily! https://t.co/1R1UxZOu5u Thanks to @MDCollegian @Hormones411 @PatientCommando #hcsm #mhealth
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Rare Disease Day
Each and every day since 1987, I tell anyone who will listen about Cushing’s...
Read more at https://cushieblogger.com/2018/02/28/rare-disease-day/
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In Europe, nearly 20 percent of patients with Cushing’s syndrome receive some sort of medication for the disease before undergoing surgery, a new study shows.
Six months after surgery, these patients had remission and mortality rates similar to those who received surgery as a first-line treatment, despite having worse disease manifestations when the study began. However, preoperative medication may limit doctors’ ability to determine the immediate success of surgery, researchers said.
Read more at https://cushieblog.com/2018/02/26/benefits-of-medication-before-surgery-for-cushings-syndrome-still-unclear/
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Benefits of Medication Before Surgery for Cushing’s Syndrome Still Unclear https://t.co/NPBQ9HJP20
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Some diseases/ disorders and conditions, such as Cushing's, could be responsible for your abdominal fat and these have nothing to do with not exercising or not eating right.
Read more at https://cushieblog.com/2017/04/24/reasons-you-have-flab-around-your-abdomen/
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Diagnosis is based on a review of the patient's medical history, physical examination and laboratory tests. Often x-ray exams of the adrenal or pituitary glands are useful for locating tumors. These tests help to determine if excess levels of cortisol are present and why.
No single lab test is perfect, and usually, several are needed. The three most common tests used to diagnose Cushing's syndrome are the 24-hour urinary free cortisol test, the measurement of midnight plasma cortisol or late-night salivary cortisol, and the low-dose dexamethasone suppression test (LDDST). Another test, the dexamethasone-corticotropin-releasing hormone (dexamethasone-CRH) test, may be needed to distinguish Cushing's syndrome from other causes of excess cortisol.
Read more at http://www.cushings-info.com/index.php?title=Diagnostic_Testing
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The latest The Cushings Daily! https://t.co/dvr8pPRnCM Thanks to @rarediseaseuk #hcsm #mhealth
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The latest The Cushings Daily! https://t.co/Ad2LK5mO7N Thanks to @FairfordMedical #hcsm #mhealth
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DUH! Cushing's disease best treated by endocrinologist
I was told that I have Cushing's disease, which has caused diabetes, high blood pressure, hunger, weight gain and muscle loss. I was never sick before this, and I did not have any of those things. I am told I have a tumor on my right adrenal gland. I have been to numerous doctors, but most have not been too helpful.
Read more at https://cushieblog.com/2016/10/04/cushings-disease-best-treated-by-endocrinologist/
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The latest The Cushings Daily! https://t.co/rdlZGx1kUf Thanks to @pyramidmedicine @aautomo884 @thibaudguymard #hcsm #hcsmeu
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The latest The Cushings Daily! https://t.co/NYShNnSGUc Thanks to @wusa9 @Paulflevy @scanman #hcsm #winterolympics
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The latest The Cushings Daily! https://t.co/sZegZhcKrj Thanks to @aautomo884 #hcsm #winterolympics
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NIH Clinical Center: Facts at a Glance
As a research facility, only patients with the precise kind or stage of illness under investigation are admitted for treatment at the NIH Clinical Center. There are no labor and delivery services and no other services common to community hospitals.
Read more at https://www.cc.nih.gov/about/welcome/fact.html
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In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.
Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency -
What You Should Know About Pituitary Tumors
Treatments may include surgery, radiation therapy or medication. Transsphenoidal surgery is surgery performed through the nose and sphenoid sinus (located in the very back part of the nose, just beneath the base of the brain) to remove a pituitary tumor. It can be performed with an endoscope, microscope or both and is a team effort between neurosurgeons and ear, nose and throat (otolaryngology/ENT) surgeons. Radiation therapy uses high-energy x-rays to kill the tumor cells and is recommended when surgery is not an option, if the pituitary tumor remains, or if the tumor causes symptoms that are not relieved by medicine.
Read more at https://cushieblog.com/2017/02/15/what-you-should-know-about-pituitary-tumors/
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Patient’s Atypical Cushing’s Symptoms Lead to Discovery of Novel Genetic Mutations
Primary bilateral macronodular adrenal hyperplasia (PBMAH) is a disorder characterized by multiple lumps in the adrenal glands and excessive cortisol production. It is a rare cause of Cushing’s syndrome...
...Overall, the study “highlights the importance of early recognition of atypical symptoms of Cushing’s syndrome such as exophthalmos, which would save the patient from harmful effects of excessive cortisol exposure,” the researchers said.
Read more at https://cushieblog.com/2018/02/14/patients-atypical-cushings-symptoms-lead-to-discovery-of-novel-genetic-mutations/