MaryO
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Status Updates posted by MaryO
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Cushing’s Syndrome Treatments You may need one treatment or a combination of these treatments to effectively treat… https://t.co/YvuYDh6asQ
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Cushing’s Syndrome Treatments
You may need one treatment or a combination of these treatments to effectively treat your Cushing's syndrome. Your doctor will let you know what treatments for Cushing's syndrome you'll need.
Read more at https://cushieblog.com/2017/01/01/cushings-syndrome-treatments/
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The latest The Cushings Daily! https://t.co/eCfs8ID6lP Thanks to @vitals @PatientCommando #hcsm #sotu
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Top Doctors and Hospitals Receiving Payments From Corcept, makers of Korlym
(Please note that I'm sharing this from the Cushings-Help.com message boards. You must be a logged-in member of that board to read the rest of this post. Log in or register at http://cushings.invisionzone.com )
Read more at http://cushings.invisionzone.com/topic/54309-is-your-doctor-being-paid-to-prescribe-korlym/
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All Types of Cushing's are NOT the Same
In the words of our dear friend and advocate, Robin Ess, 'There are many genetic varieties with quite a few discovered in the past couple of years. Plus, there are several types such as adrenal, ectopic, and pituitary. And so on'....Amazingly, some doctors do not realize that there are different varieties of Cushing's and that the symptoms can come from a different source.
Read more at http://www.cushings-info.com/index.php?title=All_Types_of_Cushing%27s_are_NOT_the_Same -
The latest The Cushings Daily! https://t.co/BEqejTbVSO Thanks to @LuvLibertyPeace #hcsm #hcsmeu
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Myth: “Each Person Requires the Same Dose of Steroid in Order to Survive…
Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol....
Read more at https://cushieblogger.com/2017/04/22/myth-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/
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Low Cortisol Levels Hours After Surgery Predict Long-term Remission in Cushing’s Patients https://t.co/6KLfghh7ZS #cushings
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Pituitary Tumors, Adrenal Tumors, and Other Cushing’s Syndrome Causes
Read more at https://cushieblog.com/2016/10/02/causes-of-cushings-syndrome/
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Adventures with Human Growth Hormone: Travelling (Flying)
...I had the gel pack from the iCool frozen solid and put that in a small Rubbermaid lunch bag with 2 thin ice packs, 1 on top and 1 on the bottom. If you don't want to read all the way to the end, this system kept the growth hormone cold for the 20 hours going and returning but the 2 thin blocks had completely thawed. The inner iCool was mostly frozen and the growth hormone was still cool....
Read more at https://maryomedical.com/2017/10/15/adventures-with-human-growth-hormone-travelling-flying/
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Myth: “All Cushing’s patients have the exact same symptoms...
Fact: Everyone does NOT have the exact same symptoms. Not all Cushing’s patients are exactly the same. This is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not...
Read more at https://cushieblogger.com/2017/04/20/myth-all-cushings-patients-have-the-exact-same-symptoms/
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9 Tips For Safe Travel With Diabetes (or other conditions) Many of these tips work for Cushing's patients on Growt… https://t.co/MDcjEUBpeS
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9 Tips For Safe Travel With Diabetes (or other conditions)
Many of these tips work for Cushing's patients on Growth Hormone, as well.
Read more at https://maryomedical.com/2017/05/19/9-tips-for-safe-travel-with-diabetes/
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Yes, You Need a Medical Alert Bracelet!
#3– DO NOT MAKE IT “PRETTY” OR “NOT SO OBVIOUS”. I can not stress this enough. Ladies I know that you want the cute ones that look like normal bracelets, and have pretty charms, etc on them… THE ENTIRE point of a medical alert bracelet is that someone needs to see it and know that they should look at it. If it looks like a regular bracelet or regular necklace and it isn’t obvious within the first 3 seconds once we get to you and look in the obvious places (neck/wrist). it will NOT get seen. I promise you, we are too busy trying to play the guessing game of why you are not responding, than to take a look at every single piece of regular jewelry and see if it might have a really small inscribing of what is wrong with you. Once again. Make it noticeable. We will see that we need to look at it. Once we do. The guessing game is more than likely OVER. and we can begin to treat you appropriately.
Read more at https://cushieblog.com/2017/07/18/yes-you-need-a-medical-alert-bracelet/
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So true Mary. I was in Germany when I went into adrenal crisis at the airport. The paramedics didn't speak English that well. I was close to syncope and had to mime my finger going into the crook of my elbow to make them understand I needed an IV immediately. I did have an obvious medic alert bracelet on, but found out later through the medic alert foundation that Germany isn't part of their program and therefore didn't recognize my bracelet. Not every country participates in the medic alert program. I was told, I should have had a letter with the pertinent details of my medical condition on me and written in the language of the place I was traveling to. Good advice for future travel. Had that country been a part of the medic alert program it would have been so much easier for them to read the bracelet and proceed. Unless you are in that position you have no idea how terrifying it is when you can't convey the information you need. I was going into shock and my mouth was drying out so bad, I couldn't speak. I didn't think they would figure it out in time. Time is everything in crisis. That's why an obvious medic alert bracelet is needed.
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How scary! I'll have to remember to take a letter with me if I go out of the country again.
I also have a letter for my growth hormone to be able to travel with needles and such. I should probably get that translated, as well.
Thanks - I'm glad your situation worked out ok in the end!
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Late-night salivary cortisol often fluctuates widely in Cushing’s disease https://t.co/v3kTWgJipE
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The latest The Cushings Daily! https://t.co/0YULtiuM14 Thanks to @cnnhealth #nihhealthy2018 #hcsm
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What You Should Know About Pituitary Tumors
Treatments may include surgery, radiation therapy or medication. Transsphenoidal surgery is surgery performed through the nose and sphenoid sinus (located in the very back part of the nose, just beneath the base of the brain) to remove a pituitary tumor. It can be performed with an endoscope, microscope or both and is a team effort between neurosurgeons and ear, nose and throat (otolaryngology/ENT) surgeons. Radiation therapy uses high-energy x-rays to kill the tumor cells and is recommended when surgery is not an option, if the pituitary tumor remains, or if the tumor causes symptoms that are not relieved by medicine.Read more at https://cushieblog.com/2017/02/15/what-you-should-know-about-pituitary-tumors/
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The latest The Cushings Daily! https://t.co/i1k1F1WVpA Thanks to @aautomo884 #hcsm #googlealerts
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The latest The Cushings Daily! https://t.co/OhzkzMLJG5 Thanks to @LuvLibertyPeace @endocrineweb #hcsm #mhealth
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After Your Transsphenoidal (Pituitary) Surgery
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.
Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op
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RT @MayoClinic: For the first time in American history, more women are enrolled in medical school than their male counterparts. https://t.c…
