Jump to content
Strawberry Orange Banana Lime Leaf Slate Sky Blueberry Grape Watermelon Chocolate Marble
Strawberry Orange Banana Lime Leaf Slate Sky Blueberry Grape Watermelon Chocolate Marble

MaryO

~Chief Cushie~
  • Content count

    7,118
  • Joined

  • Last visited

  • Days Won

    70

Everything posted by MaryO

  1. Cushings Help is almost 18!

    safe_image.php?d=AQAGvdTxDOKXN-rH&url=htIt's unbelievable but the idea for Cushing's Help and Support arrived 18 years ago tonight.

    Read more at https://cushieblogger.com/2018/07/20/were-almost-18/

  2. TOPICS TO BE DISCUSSED INCLUDE: HOW IMPORTANT IS THE TPO ANTIBODY IN THE DIAGNOSIS OF HYPOTHYROIDISM? WHAT DOES IT MEAN TO HAVE HASHIMOTO’S? WHICH THYROID MEDICINE IS THE BEST? WHAT IS THE DIFFERENCE BETWEEN DESICCATED THYROID AND SYNTHETIC THYROID HORMONES? WHAT ABOUT TAKING ONLY T3? IS RT3 IMPORTANT? IS DIET IMPORTANT IN PATIENTS WITH HYPOTHYROIDISM? SUNDAY • JULY 29TH • 6 PM PST Click here to join the meeting or https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2b7d2348ee2683a5022761e3e5945087 OR Join by phone: (855) 797-9485 Meeting Number (Access Code): 287 970 949, Meeting Password: hormone Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button. For more information, email us at mail@goodhormonehealth.com.
  3. TOPICS TO BE DISCUSSED INCLUDE: HOW IMPORTANT IS THE TPO ANTIBODY IN THE DIAGNOSIS OF HYPOTHYROIDISM? WHAT DOES IT MEAN TO HAVE HASHIMOTO’S? WHICH THYROID MEDICINE IS THE BEST? WHAT IS THE DIFFERENCE BETWEEN DESICCATED THYROID AND SYNTHETIC THYROID HORMONES? WHAT ABOUT TAKING ONLY T3? IS RT3 IMPORTANT? IS DIET IMPORTANT IN PATIENTS WITH HYPOTHYROIDISM? SUNDAY • JULY 29TH • 6 PM PST Click here to join the meeting or https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2b7d2348ee2683a5022761e3e5945087 OR Join by phone: (855) 797-9485 Meeting Number (Access Code): 287 970 949, Meeting Password: hormone Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button. For more information, email us at mail@goodhormonehealth.com.
  4. until
    Presented by Eliza Geer, MD Medical director, Multidisciplinary Pituitary & Skull Base Tumor Center Associate Attending, Endocrine Service Memorial Sloan Kettering Cancer Center After registering you will receive a confirmation email with details about joining the webinar. Contact us at webinar@pituitary.org with any questions or suggestions. Date: Wednesday, July 18, 2018 Time: 10:00 AM - 11:00 AM Pacific Daylight Time 1:00 PM - 2:00 PM Eastern Daylight Time Webinar Description: Learning Objectives: Review Cushing’s disease treatment guidelines Evaluate currently available medical therapies for Cushing’s disease Discuss new therapies in clinical trials Presenter Bio: Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. Their multidisciplinary pituitary team provides personalized surgical and medical treatment for people with pituitary and skull base tumors, including prolactinomas, growth-hormone secreting adenomas (acromegaly), and Cushing’s disease. Their overall goal is to improve and advance the care of people with these conditions. Dr. Geer’s research interests focus on achieving a better understanding of how and why pituitary tumors develop, and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and she is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly. Dr. Geer completed her internship and residency at the NewYork-Presbyterian Hospital/Columbia Medical Center. She was a fellow in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center, after which she was a member of the faculty for ten years. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, the Pituitary Network Association and the American Association of Clinical Endocrinologists.
  5. Presented by Eliza Geer, MD Medical director, Multidisciplinary Pituitary & Skull Base Tumor Center Associate Attending, Endocrine Service Memorial Sloan Kettering Cancer Center After registering you will receive a confirmation email with details about joining the webinar. Contact us at webinar@pituitary.org with any questions or suggestions. Date: Wednesday, July 18, 2018 Time: 10:00 AM - 11:00 AM Pacific Daylight Time 1:00 PM - 2:00 PM Eastern Daylight Time Webinar Description: Learning Objectives: Review Cushing’s disease treatment guidelines Evaluate currently available medical therapies for Cushing’s disease Discuss new therapies in clinical trials Presenter Bio: Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. Their multidisciplinary pituitary team provides personalized surgical and medical treatment for people with pituitary and skull base tumors, including prolactinomas, growth-hormone secreting adenomas (acromegaly), and Cushing’s disease. Their overall goal is to improve and advance the care of people with these conditions. Dr. Geer’s research interests focus on achieving a better understanding of how and why pituitary tumors develop, and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and she is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly. Dr. Geer completed her internship and residency at the NewYork-Presbyterian Hospital/Columbia Medical Center. She was a fellow in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center, after which she was a member of the faculty for ten years. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, the Pituitary Network Association and the American Association of Clinical Endocrinologists.
  6. MaryO

    Happy Birthday, Cushings-Help.com!

    The first website (http://www.cushings-help.com) first went 'live' July 21, 2000 and the message boards September 30, 2000.
  7. Updated: Is Your Doctor Being Paid to Prescribe Korlym?

    Top Doctors and Hospitals Receiving Payments From Corcept, makers of Korlym

    Read more at http://cushings.invisionzone.com/topic/54309-is-your-doctor-being-paid-to-prescribe-korlym/

  8. Cushing's Syndrome Eludes Treatment Paradigm or Standard Approach to Care

    Results of two systematic reviews indicate that while surgery is the preferred treatment, many patients present with contraindications without an accepted management paradigm leaving clinicians to follow a patient-centric approach to care.

    Read more at https://cushieblog.com/2018/07/07/cushings-syndrome-eludes-treatment-paradigm-or-standard-approach-to-care/

  9. In Memoriam: Kassey Whiterock
     
    Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st.
     
    Kassey was only 20 years old.
     
  10. Measuring TSH Levels Could Improve Diagnosis for Cushing’s Syndrome

    Measuring the variation in thyroid stimulating hormone blood levels between midnight and morning may be better for diagnosing Cushing’s syndrome than current approaches, a study suggests. 

    Read more at https://cushieblog.com/2018/06/30/measuring-tsh-levels-could-improve-diagnosis-for-cushings-syndrome/

  11. MaryO

    In Memory: Kassey Whiterock

    Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old. Read more at https://cushingsbios.com/2016/07/07/in-memory-of-kassey-whiterock-june-30-2016/
  12. MaryO

    Happy 4th of July!

    Happy 4th of July!
  13. Kayln was only 41 when she died on June 28, 2017. She had recently had pituitary surgery. Read more at https://cushingsbios.com/2017/06/28/in-memory-kayln-allen-june-28-2017/
  14. Comment added to Diana B (Diana Brown), Undiagnosed Bio

    My symptoms are almost identical to yours, but I have yet to have any cortisol testing done (I have doctors appointments coming up that I will ask about having the tests done).

    Read more at https://cushingsbios.com/2014/04/25/diana-b-diana-brown-undiagnosed-bio/comment-page-1/#comment-25835

  15. Tumors in Cushing’s Patients Have Distinct Genetic Profiles

    Based on their genetic profile, researchers were able to cluster tumors into three distinct subgroups...

    Collectively, the findings add new clues to the molecular mechanisms involved in the progression of benign pituitary tumors. They also provide new ground for developing targeted therapies, the researchers said.

     

    Read more at https://cushieblog.com/2018/06/23/tumors-in-cushings-patients-have-distinct-genetic-profiles/

  16. In Memory of Kate Myers :(
     
    Kate (Fairley here on the Cushing’s Help message boards) was only 46 when she died on June 23, 2014.
     
  17. MaryO

    In Memory: Kate Myers

    Kate (Fairley on the Cushing’s Help message boards) was only 46 when she died on June 23, 2014. Read more at https://cushingsbios.com/2015/06/23/1623/
  18. In Memory of Samantha Cohn June 20, 2015

    Juilliard graduate Samantha Cohn, 34, crawled out a window in her 16th-floor apartment at West 71st Street and Broadway and jumped at 10:10 a.m.

    Her mother told investigators she had been diagnosed with Cushing’s syndrome, police sources said.

    Read more at https://cushingsbios.com/2015/06/20/in-memory-of-samantha-cohn/

  19. until
    Are Sleep Apnea and Snoring the causes of your Weight Gain and Fatigue? Dr. Theodore Friedman hosts Jay Khorsandi, DDS from Snore Experts for a fascinating webinar on the relationship between Sleep Apnea, Snoring, Weight Gain and Daytime Fatigue. Topics to be discussed include: • Why does poor sleep lead to weight gain and fatigue? • Why are home sleep monitors better than in lab monitors? • What are the treatments for Sleep Apnea and Snoring? • Will the treatments lead to weight loss and more energy? • Dr. Friedman will also add some comments about the endocrine effects of poor sleep. Sunday • June 24th • 6 PM PST Click to start webinar at https://axisconciergemeetings.webex.com/axisconcierg…/j.php… OR Join by phone: (855) 797-9485 Meeting Number (Access Code): 287 844 283 Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button. Meeting Password: dreams For more information, email Dr. Friedman at mail@goodhormonehealth.com
  20. Comment added to Guest Question:  Is Itching Common with Cushing’s Syndrome?

    Were your itching, flushing and elevated BP episodes (cyclic) or there all of the time?

    In the comments area of https://cushieblogger.com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/

  21. What Do You Think?

    A “friend” pushed me and I hit my head on a radiator and broke it and a few months after a tumor grew. I’ve been having symptoms ever since. Could I go after here and get compensation for medical care I need now?

    in the comments area of http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

  22. USC's 7 Tesla MRI scanner first to identify Cushing's disease in US patient

    A noninvasive 7 Tesla MRI scanner at University of Southern California is the first 7T scanner to be used on a patient with Cushing's disease in the U.S., according to a USC news release.  

    When a brain tumor was found to be "MRI-negative" in a 28-year-old female patient, physicians at the USC's Pituitary Center were unsatisfied with the results. After deciding to use the Neuroimaging and Informatics Institute's (INI) new ultrahigh field 7 Tesla MRI scanner to localize the tumor, the patient was officially diagnosed with Cushing's disease and researchers were finally able to be see the tumor that would've otherwise appeared hidden in a standard MRI.  

    Read more at https://www.healthimaging.com/topics/neuroimaging/uscs-7-tesla-mri-scanner-first-identify-cushings-disease-us-patient

  23. Cushing’s disease patients who exhibit nodules or masses in their lungs should be thoroughly investigated to exclude fungal infection with Cryptococcus neoformans, a study from China suggests.

    While rare, the infection can be life-threatening, showing a particularly worse prognosis in patients with fluid infiltration in their lungs or with low white blood cell counts in their blood.

    Read more at https://cushieblog.com/2018/06/16/cushings-patients-at-risk-of-life-threatening-pulmonary-fungal-infection/

  24. To all my Cushie friends who are still dealing with this horrible disease, keep fighting, don’t ever give up, you will get better.  I told a very close friend of mine the other day, if I had the power I would heal everyone you today.  Cushing’s is a horrible disease, and unless you have been through it there is no way anyone could ever understand it. 

    Read more at https://cushieblogger.com/2017/11/14/letter-to-cushies/

  25. Ectopic ACTH-producing thymic carcinoid tumors are rare, but often behave aggressively with local invasion and distant metastasis. We herein report a case of ACTH-producing thymic typical carcinoid tumor with lymph node metastasis treated by surgery and postoperative radiation therapy.

    Read more at https://cushieblog.com/2018/06/13/cushings-syndrome-caused-by-acth-producing-thymic-typical-carcinoid-with-local-invasion-and-regional-lymph-node-metastasis-a-case-report/

×