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MaryO

~Chief Cushie~
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Everything posted by MaryO

  1. Welcome to the boards!  I hope this week is a little better for you than the past ones have been.  I know getting a diagnosis can be tough :(

  2. Good morning!  I hope everyone has a great week!

    :coffee:

  3. The latest The Cushings Daily! https://t.co/ZqeNoUXKWL #hcsm #meded

  4. The latest The Cushings Daily! https://t.co/D5sAar3YO6 Thanks to @LuvLibertyPeace @Pituitarydi @ChristianPost #hcsm #icymi

  5. Tonight on TV!

    until
    First In Human represents the first time cameras have embedded in Building 10 and followed first in human patients throughout their entire trial. This unique access is the product of Hoffman’s nearly twenty years of filmmaking in partnership with the NIH on projects such as The Alzheimer’s Project and The Weight of the Nation. This episode airs at 9:00 PM eastern More information at https://cushieblogger.com/2017/08/10/nih-discovery-channels-documentary-series-first-in-human/
  6. Tonight on TV! https://cushieblogger.com/2017/08/10/nih-discovery-channels-documentary-series-first-in-human/

    First In Human represents the first time cameras have embedded in Building 10 and followed first in human patients throughout their entire trial. This unique access is the product of Hoffman’s nearly twenty years of filmmaking in partnership with the NIH on projects such as The Alzheimer’s Project and The Weight of the Nation. 

  7. An unusual case of Cushing’s syndrome due to bihormonal ACTH–prolactin secreting pituitary macroadenoma with rapid… https://t.co/YbiBa2gkxv

  8. The latest The Cushings Daily! https://t.co/zNUF5cRhlP Thanks to @WayneB99 @LuvLibertyPeace @HiveDan #hcsm #icymi

  9. ... I too am in the same situation and also have been dealing with constant pain for 6 years now, been bedridden for about 4. I’m pretty sure my pain is unrelated to my Cushing’s– terrible pain in/ behind my eyes. They feel like they’re ripping if I move them. I’ve been through the process of test after test, surgery after surgery to no avail and no answer or relief from my pain. I have about 90% of the symptoms of Cushing’s including cataracts in both eyes and I am only 26.
     
  10. The latest The Cushings Daily! https://t.co/3ZLBg01S8b #hcsm #meded

  11. Carpal Tunnel?

    Always something! I woke up last night with numb tingly wrist and ring finger. In the last few days, I've had to move my watch band out a notch. I've been on Omnitrope .3 growth hormone for a couple months and just finished my second cartridge. Emailed Dr. Salvatori for advice. A couple weeks ago it felt like my wisdom tooth lower left was coming in and I generally felt like something was happening with my jaw. That's evened out now. Naturally, my second shipment (2 more cartridges) just came, along with their co-pay, so I hope I don't have to throw any of that away.
  12. Renee (rmaxwell) is from the Los Angeles area of California. She is not yet diagnosed but has many symptoms.https://t.co/cDVPSN4fWh

  13. Renee (rmaxwell) is from the Los Angeles area of California. She is not yet diagnosed but has many symptoms.

    https://cushingsbios.com/2017/07/08/renee-rmaxwell-undiagnosed-bio/

  14. Columbus, OH

    Columbus, OH meeting pics from 2007. It was when we all met at Hoggy's. The individual pictures can be found on Facebook at https://www.facebook.com/pg/CushingsInfo/photos/?tab=albums
  15. easypod is an automated drug delivery device for recombinant human growth hormone Its features include automated dose delivery and prescription tracking, which records injection history and any missed injections, and allows patients to know when to change their cartridge by displaying how much medicine is left in the device.

    https://cushieblog.com/2017/07/08/growth-hormone-improving-patients-lives-and-boosting-mature-product-portfolios/

  16. The problem with Addison's disease is that only 1 out of 100,000 people get this.  Lisa's symptoms were classic, vitilago which are white spots, darkened pigment, and flu like symptoms.  Even in this day and age doctors can miss a case of Addison's.

    http://addisonshelp.blogspot.com/2009/07/my-daughter-lisa-marie-bates-died.html

  17. Paul M (Paul), Pituitary Bio https://t.co/mQ41v6lwrl

  18. The latest The Cushings Daily! https://t.co/KMYvjfOvxy Thanks to @aautomo884 @CraneBarbados #hcsm #mhealth

  19. For Pituitary Tumors, Gamma Knife™ Radiosurgery Offers Better Tumor Control. The benefits of using this radiosurgical intervention are many, and can offer better tumor control and a more positive long-term prognosis compared to surgery alone.

    https://cushieblog.com/2017/07/05/for-pituitary-tumors-gamma-knife-radiosurgery-offers-better-tumor-control/

  20. Crystal (Crystal), Pituitary BIo https://t.co/dlvJztsv4t

  21. So, what do you think?  This Cushie who just had a recurrence of her pituitary tumor is planning to row across the Atlantic!

    https://cushieblog.com/2017/07/24/kiko-matthews-pituitary-cushings-survivor-solo-rows-atlantic-to-raise-100k-for-hospital-that-saved-her-life/

  22. The latest The Cushings Daily! https://t.co/59iIemOft8 Thanks to @technologicalee #hcsm #icymi

  23. How to search the boards?

    Shaw is correct. Most of the info on this board is available to members only to protect their privacy. We hope you join us so you can read everything and share with us. In the meantime, there's information about IPSS on our Wiki at http://www.cushings-info.com/index.php?title=Diagnostic_Testing#Petrosal_Sinus_Sampling Best of luck to you!
  24. Mary S (ladysslipper) is from Frostburg, Maryland. She recently completed a clinical trial at NIH because of an adrenal nodule. She also has hyperplasia of both adrenals and primary hyperaldosteronism as well as elevated cortisol.
    https://cushingsbios.com/2017/07/23/mary-s-ladysslipper-adrenal-bio/

  25. Love the Slide! https://t.co/TEGzv1HSsP https://t.co/NRiHGnRHar

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