Announcements

83 topics in this forum

1. What Can *you* Do To Help?

   By MaryO, March 8, 2005
   • 15 replies
   • 5.7k views
   • 
   • MaryO
   • March 14, 2015

2. Webinar on Dr. Friedman’s views on the Pituitary Society “Consensus” Guidelines on Cushing’s disease and new Cushing’s medicines

   By MaryO, March 20   

   • pituitary
   • pituitary society
   • (and 3 more)

     Tagged with:

     • pituitary
     • pituitary society
     • cushings
     • dr. theodore friedman
     • dr. f.
   • 0 replies
   • 206 views
   • 
   • MaryO
   • March 20

3. Record a Video, Receive A Rarity T-Shirt!

   By MaryO, March 16   

   • video
   • tshirt
   • (and 3 more)

     Tagged with:

     • video
     • tshirt
     • rare disease
     • plushie
     • zebra
   • 0 replies
   • 82 views
   • 
   • MaryO
   • March 16

4. “A Window into Rare” a Rare Disease Day Panel Discussion

   By MaryO, February 25   

   • webinar
   • rare disease day
   • (and 1 more)

     Tagged with:

     • webinar
     • rare disease day
     • cushing's
   • 0 replies
   • 110 views
   • 
   • MaryO
   • February 25

5. In the US? Free COVID Tests

   By MaryO, January 18   

   • covid-19
   • tests
   • (and 1 more)

     Tagged with:

     • covid-19
     • tests
     • united states
   • 0 replies
   • 109 views
   • 
   • MaryO
   • January 18

6. Join us for a Virtual RDLA Regional Meet and Greet Session!

   By MaryO, January 7   

   • rare disease
   • advocate
   • (and 1 more)

     Tagged with:

     • rare disease
     • advocate
     • state
   • 0 replies
   • 267 views
   • 
   • MaryO
   • January 7

7. Light Up for Rare

   By MaryO, December 29, 2021   

   • rare disease
   • nord
   • (and 1 more)

     Tagged with:

     • rare disease
     • nord
     • lights
   • 0 replies
   • 114 views
   • 
   • MaryO
   • December 29, 2021

8. Record a Video and Receive Rarity the Zebra!

   By MaryO, December 15, 2021   

   • video
   • zebra
   • (and 2 more)

     Tagged with:

     • video
     • zebra
     • rare disease
     • amazon gift card
   • 0 replies
   • 129 views
   • 
   • MaryO
   • December 15, 2021

9. Register for Rare Disease Week

   By MaryO, December 6, 2021   

   • rare disease
   • conference
   • (and 1 more)

     Tagged with:

     • rare disease
     • conference
     • meeting
   • 0 replies
   • 177 views
   • 
   • MaryO
   • December 6, 2021

10. Webinar on The 20-minute Mini Back Scope Adrenalectomy (MBSA)

    By MaryO, October 29, 2021   

    • dr. f.
    • dr. theodore c friedman
    • (and 6 more)

      Tagged with:

      • dr. f.
      • dr. theodore c friedman
      • adrenal
      • webinar
      • dr. tobias carling
      • mbsa
      • mini back scope adrenalectomy
      • adrenalectomy
    • 0 replies
    • 171 views
    • 
    • MaryO
    • October 29, 2021

11. Last chance to submit a RareVoice Nomination!

    By MaryO, August 25, 2021   

    • rarevoice
    • advocate
    • 0 replies
    • 155 views
    • 
    • MaryO
    • August 25, 2021

12. Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th

    By MaryO, June 16, 2021   

    • nord
    • rare diseases
    • (and 2 more)

      Tagged with:

      • nord
      • rare diseases
      • patients
      • caregivers
    • 0 replies
    • 205 views
    • 
    • MaryO
    • June 16, 2021

13. Study Opportunity for Cushing's Patients

    By MaryO, May 12, 2021   

    • study
    • money
    • (and 5 more)

      Tagged with:

      • study
      • money
      • cash
      • $50.00
      • video
      • rare disease
      • rarevoice
    • 0 replies
    • 270 views
    • 
    • MaryO
    • May 12, 2021

14. Webinar: Updates on Treating Hypothyroidism

    By MaryO, April 13, 2021   

    • webinar
    • hypothyroidism
    • (and 7 more)

      Tagged with:

      • webinar
      • hypothyroidism
      • dr. f.
      • dr. theodore c friedman
      • desiccated thyroid
      • recall
      • tsh
      • thyroid
      • rt3
    • 0 replies
    • 234 views
    • 
    • MaryO
    • April 13, 2021

15. Celebrate 20 Years-Pituitary Patient Support Group

    By MaryO, March 14, 2021   

    • pituitary
    • support
    • (and 3 more)

      Tagged with:

      • pituitary
      • support
      • dr. daniel kelly
      • dr. pejman cohan
      • meeting
    • 0 replies
    • 142 views
    • 
    • MaryO
    • March 14, 2021

16. eSummet: Quality of Life of Pituitary Patients March 19-20, 2021

    By MaryO, March 3, 2021   

    • meeting
    • summet
    • (and 2 more)

      Tagged with:

      • meeting
      • summet
      • conference
      • pituitary
    • 0 replies
    • 215 views
    • 
    • MaryO
    • March 3, 2021

17. Cushing Syndrome and COVID-19

    By MaryO, February 27, 2021   

    • zoom
    • covid-19
    • (and 1 more)

      Tagged with:

      • zoom
      • covid-19
      • cushing's
    • 0 replies
    • 279 views
    • 
    • MaryO
    • February 27, 2021

18. $$$ Attention Cushing's Patients ~ Patient Advisory Board $$$

    By MaryO, February 13, 2021   

    • ketoconazole
    • patient advisory board
    • (and 6 more)

      Tagged with:

      • ketoconazole
      • patient advisory board
      • osilodrostat
      • isturisa
      • korlym
      • mifepristone
      • signifor
      • pasireotide
    • 0 replies
    • 130 views
    • 
    • MaryO
    • February 13, 2021

19. Webinar: COVID-19 Vaccines for Endocrine Patient

    By MaryO, December 20, 2020   

    • webinar
    • dr. f.
    • (and 3 more)

      Tagged with:

      • webinar
      • dr. f.
      • dr friedman
      • covid-19
      • vaccine
    • 0 replies
    • 190 views
    • 
    • MaryO
    • December 20, 2020

20. Pituitary Support Meeting Saturday November 14, 2020

    By MaryO, November 11, 2020   

    • pituitary
    • zoom
    • (and 2 more)

      Tagged with:

      • pituitary
      • zoom
      • pacific neuroscience institute
      • sharmyn
    • 0 replies
    • 163 views
    • 
    • MaryO
    • November 11, 2020

21. Webinar: Recurrent Pituitary Adenomas – What are the options?

    By MaryO, September 28, 2020   

    • webinar
    • recurrence
    • (and 1 more)

      Tagged with:

      • webinar
      • recurrence
      • pituitary
    • 0 replies
    • 153 views
    • 
    • MaryO
    • September 28, 2020

22. Help Raise Awareness!

    By MaryO, September 26, 2020   

    • clinical trial
    • awareness
    • 0 replies
    • 174 views
    • 
    • MaryO
    • September 26, 2020

23. Webinar: Expect more from pituitary surgery: difference-makers for post-operative outcomes

    By MaryO, September 17, 2020   

    • webinar
    • pituitary surgery
    • (and 3 more)

      Tagged with:

      • webinar
      • pituitary surgery
      • post-op
      • endoscopic
      • endonasal
    • 0 replies
    • 168 views
    • 
    • MaryO
    • September 17, 2020

24. WP Thyroid and Nature-Throid recall-August 2020

    By MaryO, September 3, 2020   

    • thyroid
    • recall
    • 0 replies
    • 270 views
    • 
    • MaryO
    • September 3, 2020

25. Cushing Syndrome interview (NEON_4470), 60-minutes, One Hundred Dollar reward

    By MaryO, August 31, 2020   

    • interview
    • cushings syndrome
    • 0 replies
    • 167 views
    • 
    • MaryO
    • August 31, 2020