Announcements

96 topics in this forum

1. What Can *you* Do To Help?

   By MaryO, March 8, 2005
   • 15 replies
   • 6k views
   • 
   • MaryO
   • March 14, 2015

2. Dr. Friedman Webinar on Optimal replacement for Hypopituitarism and Sheehan’s

   By MaryO, November 25   

   • dr. theodore c friedman
   • webinar
   • (and 9 more)

     Tagged with:

     • dr. theodore c friedman
     • webinar
     • hypopituitarism
     • sheehans
     • oxytocin
     • testosterone
     • growth hormone
     • pituitary
     • thyroid
     • cortisol
     • zoom
   • 0 replies
   • 292 views
   • 
   • MaryO
   • November 25

3. Cushing’s Disease, Type 2 Diabetes Study (M3_8994), 60-minutes, 120 Dollars

   By MaryO, November 10   

   • cushing's
   • pituitary
   • (and 2 more)

     Tagged with:

     • cushing's
     • pituitary
     • diabetes
     • reward
   • 0 replies
   • 436 views
   • 
   • MaryO
   • November 10

4. Take a Survey and Earn Money!

   By MaryO, October 21   

   • rarevoice
   • survey
   • (and 1 more)

     Tagged with:

     • rarevoice
     • survey
     • study
   • 0 replies
   • 186 views
   • 
   • MaryO
   • October 21

5. Pituitary Tumor Support Group

   By MaryO, September 20   

   • pituitary
   • tumor
   • (and 1 more)

     Tagged with:

     • pituitary
     • tumor
     • endocrinologist
   • 0 replies
   • 356 views
   • 
   • MaryO
   • September 20

6. Johns Hopkins Pituitary Patient Education Day

   By MaryO, September 2   

   • johns hopkins
   • pituitary
   • (and 3 more)

     Tagged with:

     • johns hopkins
     • pituitary
     • meeting
     • in-person
     • dr. roberto salvatori
   • 0 replies
   • 467 views
   • 
   • MaryO
   • September 2

7. Webinar: Dr. Theodore Friedman (The Wiz) will giving a webinar on Updates on Treating Hypothyroidism

   By MaryO, July 27   

   • webinar
   • dr. f.
   • (and 2 more)

     Tagged with:

     • webinar
     • dr. f.
     • dr. theodore c friedman
     • hypothyroidism
   • 0 replies
   • 262 views
   • 
   • MaryO
   • July 27

8. NIH 70th Anniversary Celebration (2023)

   By MaryO, July 5   

   • nih
   • anniversary
   • 0 replies
   • 284 views
   • 
   • MaryO
   • July 5

9. Webinar: Good Hormone Health Webinar Sunday July 9, 2023, 2023. 6 PM PST

   By MaryO, June 26   

   • dr. f.
   • dr. theodore c friedman
   • (and 3 more)

     Tagged with:

     • dr. f.
     • dr. theodore c friedman
     • dr. theodore friedman
     • ozempic
     • weight
   • 0 replies
   • 478 views
   • 
   • MaryO
   • June 26

10. Final Call for the 2023 Cushing’s Hub Competition

    By MaryO, June 16   

    • clinical case
    • hypercortisolemia
    • 0 replies
    • 340 views
    • 
    • MaryO
    • June 16

11. Solu-Cortef® Shortage

    By MaryO, May 26   

    • solu-cortef
    • cortisol
    • (and 1 more)

      Tagged with:

      • solu-cortef
      • cortisol
      • hydrocortisone
    • 0 replies
    • 117 views
    • 
    • MaryO
    • May 26

12. Cushing's Support for Adults- Virtual Chat

    By MaryO, February 15   

    • online support
    • 0 replies
    • 228 views
    • 
    • MaryO
    • February 15

13. Webinar: Good Hormone Health Webinar Sunday January 8, 2023. 6 PM PST

    By MaryO, December 26, 2022   

    • web
    • dr. f.
    • (and 1 more)

      Tagged with:

      • web
      • dr. f.
      • dr. theodore c friedman
    • 1 reply
    • 415 views
    • 
    • MaryO
    • December 27, 2022

14. Webinar: Best Practices for the Management of Individuals with Cushing's Disease

    By MaryO, August 8, 2022   

    • webinar
    • cushings disease
    • (and 1 more)

      Tagged with:

      • webinar
      • cushings disease
      • dr. maria fleseriu
    • 0 replies
    • 402 views
    • 
    • MaryO
    • August 8, 2022

15. Webinar on Dr. Friedman’s views on the Pituitary Society “Consensus” Guidelines on Cushing’s disease and new Cushing’s medicines

    By MaryO, March 20, 2022   

    • pituitary
    • pituitary society
    • (and 3 more)

      Tagged with:

      • pituitary
      • pituitary society
      • cushings
      • dr. theodore friedman
      • dr. f.
    • 0 replies
    • 546 views
    • 
    • MaryO
    • March 20, 2022

16. Record a Video, Receive A Rarity T-Shirt!

    By MaryO, March 16, 2022   

    • video
    • tshirt
    • (and 3 more)

      Tagged with:

      • video
      • tshirt
      • rare disease
      • plushie
      • zebra
    • 0 replies
    • 370 views
    • 
    • MaryO
    • March 16, 2022

17. “A Window into Rare” a Rare Disease Day Panel Discussion

    By MaryO, February 25, 2022   

    • webinar
    • rare disease day
    • (and 1 more)

      Tagged with:

      • webinar
      • rare disease day
      • cushing's
    • 0 replies
    • 347 views
    • 
    • MaryO
    • February 25, 2022

18. In the US? Free COVID Tests

    By MaryO, January 18, 2022   

    • covid-19
    • tests
    • (and 1 more)

      Tagged with:

      • covid-19
      • tests
      • united states
    • 0 replies
    • 347 views
    • 
    • MaryO
    • January 18, 2022

19. Join us for a Virtual RDLA Regional Meet and Greet Session!

    By MaryO, January 7, 2022   

    • rare disease
    • advocate
    • (and 1 more)

      Tagged with:

      • rare disease
      • advocate
      • state
    • 0 replies
    • 552 views
    • 
    • MaryO
    • January 7, 2022

20. Light Up for Rare

    By MaryO, December 29, 2021   

    • rare disease
    • nord
    • (and 1 more)

      Tagged with:

      • rare disease
      • nord
      • lights
    • 0 replies
    • 433 views
    • 
    • MaryO
    • December 29, 2021

21. Record a Video and Receive Rarity the Zebra!

    By MaryO, December 15, 2021   

    • video
    • zebra
    • (and 2 more)

      Tagged with:

      • video
      • zebra
      • rare disease
      • amazon gift card
    • 0 replies
    • 402 views
    • 
    • MaryO
    • December 15, 2021

22. Register for Rare Disease Week

    By MaryO, December 6, 2021   

    • rare disease
    • conference
    • (and 1 more)

      Tagged with:

      • rare disease
      • conference
      • meeting
    • 0 replies
    • 477 views
    • 
    • MaryO
    • December 6, 2021

23. Webinar on The 20-minute Mini Back Scope Adrenalectomy (MBSA)

    By MaryO, October 29, 2021   

    • dr. f.
    • dr. theodore c friedman
    • (and 6 more)

      Tagged with:

      • dr. f.
      • dr. theodore c friedman
      • adrenal
      • webinar
      • dr. tobias carling
      • mbsa
      • mini back scope adrenalectomy
      • adrenalectomy
    • 0 replies
    • 421 views
    • 
    • MaryO
    • October 29, 2021

24. Last chance to submit a RareVoice Nomination!

    By MaryO, August 25, 2021   

    • rarevoice
    • advocate
    • 0 replies
    • 327 views
    • 
    • MaryO
    • August 25, 2021

25. Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th

    By MaryO, June 16, 2021   

    • nord
    • rare diseases
    • (and 2 more)

      Tagged with:

      • nord
      • rare diseases
      • patients
      • caregivers
    • 0 replies
    • 404 views
    • 
    • MaryO
    • June 16, 2021