Announcements

87 topics in this forum

1. What Can *you* Do To Help?

   By MaryO, March 8, 2005
   • 15 replies
   • 5.9k views
   • 
   • MaryO
   • March 14, 2015

2. Solu-Cortef® Shortage

   By MaryO, May 26   

   • solu-cortef
   • cortisol
   • (and 1 more)

     Tagged with:

     • solu-cortef
     • cortisol
     • hydrocortisone
   • 0 replies
   • 22 views
   • 
   • MaryO
   • May 26

3. Cushing's Support for Adults- Virtual Chat

   By MaryO, February 15   

   • online support
   • 0 replies
   • 119 views
   • 
   • MaryO
   • February 15

4. Webinar: Good Hormone Health Webinar Sunday January 8, 2023. 6 PM PST

   By MaryO, December 26, 2022   

   • web
   • dr. f.
   • (and 1 more)

     Tagged with:

     • web
     • dr. f.
     • dr. theodore c friedman
   • 1 reply
   • 267 views
   • 
   • MaryO
   • December 27, 2022

5. Webinar: Best Practices for the Management of Individuals with Cushing's Disease

   By MaryO, August 8, 2022   

   • webinar
   • cushings disease
   • (and 1 more)

     Tagged with:

     • webinar
     • cushings disease
     • dr. maria fleseriu
   • 0 replies
   • 232 views
   • 
   • MaryO
   • August 8, 2022

6. Webinar on Dr. Friedman’s views on the Pituitary Society “Consensus” Guidelines on Cushing’s disease and new Cushing’s medicines

   By MaryO, March 20, 2022   

   • pituitary
   • pituitary society
   • (and 3 more)

     Tagged with:

     • pituitary
     • pituitary society
     • cushings
     • dr. theodore friedman
     • dr. f.
   • 0 replies
   • 415 views
   • 
   • MaryO
   • March 20, 2022

7. Record a Video, Receive A Rarity T-Shirt!

   By MaryO, March 16, 2022   

   • video
   • tshirt
   • (and 3 more)

     Tagged with:

     • video
     • tshirt
     • rare disease
     • plushie
     • zebra
   • 0 replies
   • 247 views
   • 
   • MaryO
   • March 16, 2022

8. “A Window into Rare” a Rare Disease Day Panel Discussion

   By MaryO, February 25, 2022   

   • webinar
   • rare disease day
   • (and 1 more)

     Tagged with:

     • webinar
     • rare disease day
     • cushing's
   • 0 replies
   • 246 views
   • 
   • MaryO
   • February 25, 2022

9. In the US? Free COVID Tests

   By MaryO, January 18, 2022   

   • covid-19
   • tests
   • (and 1 more)

     Tagged with:

     • covid-19
     • tests
     • united states
   • 0 replies
   • 241 views
   • 
   • MaryO
   • January 18, 2022

10. Join us for a Virtual RDLA Regional Meet and Greet Session!

    By MaryO, January 7, 2022   

    • rare disease
    • advocate
    • (and 1 more)

      Tagged with:

      • rare disease
      • advocate
      • state
    • 0 replies
    • 436 views
    • 
    • MaryO
    • January 7, 2022

11. Light Up for Rare

    By MaryO, December 29, 2021   

    • rare disease
    • nord
    • (and 1 more)

      Tagged with:

      • rare disease
      • nord
      • lights
    • 0 replies
    • 309 views
    • 
    • MaryO
    • December 29, 2021

12. Record a Video and Receive Rarity the Zebra!

    By MaryO, December 15, 2021   

    • video
    • zebra
    • (and 2 more)

      Tagged with:

      • video
      • zebra
      • rare disease
      • amazon gift card
    • 0 replies
    • 280 views
    • 
    • MaryO
    • December 15, 2021

13. Register for Rare Disease Week

    By MaryO, December 6, 2021   

    • rare disease
    • conference
    • (and 1 more)

      Tagged with:

      • rare disease
      • conference
      • meeting
    • 0 replies
    • 318 views
    • 
    • MaryO
    • December 6, 2021

14. Webinar on The 20-minute Mini Back Scope Adrenalectomy (MBSA)

    By MaryO, October 29, 2021   

    • dr. f.
    • dr. theodore c friedman
    • (and 6 more)

      Tagged with:

      • dr. f.
      • dr. theodore c friedman
      • adrenal
      • webinar
      • dr. tobias carling
      • mbsa
      • mini back scope adrenalectomy
      • adrenalectomy
    • 0 replies
    • 304 views
    • 
    • MaryO
    • October 29, 2021

15. Last chance to submit a RareVoice Nomination!

    By MaryO, August 25, 2021   

    • rarevoice
    • advocate
    • 0 replies
    • 247 views
    • 
    • MaryO
    • August 25, 2021

16. Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th

    By MaryO, June 16, 2021   

    • nord
    • rare diseases
    • (and 2 more)

      Tagged with:

      • nord
      • rare diseases
      • patients
      • caregivers
    • 0 replies
    • 326 views
    • 
    • MaryO
    • June 16, 2021

17. Study Opportunity for Cushing's Patients

    By MaryO, May 12, 2021   

    • study
    • money
    • (and 5 more)

      Tagged with:

      • study
      • money
      • cash
      • $50.00
      • video
      • rare disease
      • rarevoice
    • 0 replies
    • 416 views
    • 
    • MaryO
    • May 12, 2021

18. Webinar: Updates on Treating Hypothyroidism

    By MaryO, April 13, 2021   

    • webinar
    • hypothyroidism
    • (and 7 more)

      Tagged with:

      • webinar
      • hypothyroidism
      • dr. f.
      • dr. theodore c friedman
      • desiccated thyroid
      • recall
      • tsh
      • thyroid
      • rt3
    • 0 replies
    • 333 views
    • 
    • MaryO
    • April 13, 2021

19. Celebrate 20 Years-Pituitary Patient Support Group

    By MaryO, March 14, 2021   

    • pituitary
    • support
    • (and 3 more)

      Tagged with:

      • pituitary
      • support
      • dr. daniel kelly
      • dr. pejman cohan
      • meeting
    • 0 replies
    • 229 views
    • 
    • MaryO
    • March 14, 2021

20. eSummet: Quality of Life of Pituitary Patients March 19-20, 2021

    By MaryO, March 3, 2021   

    • meeting
    • summet
    • (and 2 more)

      Tagged with:

      • meeting
      • summet
      • conference
      • pituitary
    • 0 replies
    • 346 views
    • 
    • MaryO
    • March 3, 2021

21. Cushing Syndrome and COVID-19

    By MaryO, February 27, 2021   

    • zoom
    • covid-19
    • (and 1 more)

      Tagged with:

      • zoom
      • covid-19
      • cushing's
    • 0 replies
    • 375 views
    • 
    • MaryO
    • February 27, 2021

22. $$$ Attention Cushing's Patients ~ Patient Advisory Board $$$

    By MaryO, February 13, 2021   

    • ketoconazole
    • patient advisory board
    • (and 6 more)

      Tagged with:

      • ketoconazole
      • patient advisory board
      • osilodrostat
      • isturisa
      • korlym
      • mifepristone
      • signifor
      • pasireotide
    • 0 replies
    • 188 views
    • 
    • MaryO
    • February 13, 2021

23. Webinar: COVID-19 Vaccines for Endocrine Patient

    By MaryO, December 20, 2020   

    • webinar
    • dr. f.
    • (and 3 more)

      Tagged with:

      • webinar
      • dr. f.
      • dr friedman
      • covid-19
      • vaccine
    • 0 replies
    • 295 views
    • 
    • MaryO
    • December 20, 2020

24. Pituitary Support Meeting Saturday November 14, 2020

    By MaryO, November 11, 2020   

    • pituitary
    • zoom
    • (and 2 more)

      Tagged with:

      • pituitary
      • zoom
      • pacific neuroscience institute
      • sharmyn
    • 0 replies
    • 195 views
    • 
    • MaryO
    • November 11, 2020

25. Webinar: Recurrent Pituitary Adenomas – What are the options?

    By MaryO, September 28, 2020   

    • webinar
    • recurrence
    • (and 1 more)

      Tagged with:

      • webinar
      • recurrence
      • pituitary
    • 0 replies
    • 191 views
    • 
    • MaryO
    • September 28, 2020