Announcements

74 topics in this forum

1. What Can *you* Do To Help?

   By MaryO, March 8, 2005
   • 15 replies
   • 5.5k views
   • 
   • MaryO
   • March 14, 2015

2. Last chance to submit a RareVoice Nomination!

   By MaryO, August 25   

   • rarevoice
   • advocate
   • 0 replies
   • 108 views
   • 
   • MaryO
   • August 25

3. Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th

   By MaryO, June 16   

   • nord
   • rare diseases
   • (and 2 more)

     Tagged with:

     • nord
     • rare diseases
     • patients
     • caregivers
   • 0 replies
   • 153 views
   • 
   • MaryO
   • June 16

4. Study Opportunity for Cushing's Patients

   By MaryO, May 12   

   • study
   • money
   • (and 5 more)

     Tagged with:

     • study
     • money
     • cash
     • $50.00
     • video
     • rare disease
     • rarevoice
   • 0 replies
   • 183 views
   • 
   • MaryO
   • May 12

5. Webinar: Updates on Treating Hypothyroidism

   By MaryO, April 13   

   • webinar
   • hypothyroidism
   • (and 7 more)

     Tagged with:

     • webinar
     • hypothyroidism
     • dr. f.
     • dr. theodore c friedman
     • desiccated thyroid
     • recall
     • tsh
     • thyroid
     • rt3
   • 0 replies
   • 148 views
   • 
   • MaryO
   • April 13

6. Celebrate 20 Years-Pituitary Patient Support Group

   By MaryO, March 14   

   • pituitary
   • support
   • (and 3 more)

     Tagged with:

     • pituitary
     • support
     • dr. daniel kelly
     • dr. pejman cohan
     • meeting
   • 0 replies
   • 103 views
   • 
   • MaryO
   • March 14

7. eSummet: Quality of Life of Pituitary Patients March 19-20, 2021

   By MaryO, March 3   

   • meeting
   • summet
   • (and 2 more)

     Tagged with:

     • meeting
     • summet
     • conference
     • pituitary
   • 0 replies
   • 157 views
   • 
   • MaryO
   • March 3

8. Cushing Syndrome and COVID-19

   By MaryO, February 27   

   • zoom
   • covid-19
   • (and 1 more)

     Tagged with:

     • zoom
     • covid-19
     • cushing's
   • 0 replies
   • 233 views
   • 
   • MaryO
   • February 27

9. $$$ Attention Cushing's Patients ~ Patient Advisory Board $$$

   By MaryO, February 13   

   • ketoconazole
   • patient advisory board
   • (and 6 more)

     Tagged with:

     • ketoconazole
     • patient advisory board
     • osilodrostat
     • isturisa
     • korlym
     • mifepristone
     • signifor
     • pasireotide
   • 0 replies
   • 77 views
   • 
   • MaryO
   • February 13

10. Webinar: COVID-19 Vaccines for Endocrine Patient

    By MaryO, December 20, 2020   

    • webinar
    • dr. f.
    • (and 3 more)

      Tagged with:

      • webinar
      • dr. f.
      • dr friedman
      • covid-19
      • vaccine
    • 0 replies
    • 157 views
    • 
    • MaryO
    • December 20, 2020

11. Pituitary Support Meeting Saturday November 14, 2020

    By MaryO, November 11, 2020   

    • pituitary
    • zoom
    • (and 2 more)

      Tagged with:

      • pituitary
      • zoom
      • pacific neuroscience institute
      • sharmyn
    • 0 replies
    • 138 views
    • 
    • MaryO
    • November 11, 2020

12. Webinar: Recurrent Pituitary Adenomas – What are the options?

    By MaryO, September 28, 2020   

    • webinar
    • recurrence
    • (and 1 more)

      Tagged with:

      • webinar
      • recurrence
      • pituitary
    • 0 replies
    • 126 views
    • 
    • MaryO
    • September 28, 2020

13. Help Raise Awareness!

    By MaryO, September 26, 2020   

    • clinical trial
    • awareness
    • 0 replies
    • 140 views
    • 
    • MaryO
    • September 26, 2020

14. Webinar: Expect more from pituitary surgery: difference-makers for post-operative outcomes

    By MaryO, September 17, 2020   

    • webinar
    • pituitary surgery
    • (and 3 more)

      Tagged with:

      • webinar
      • pituitary surgery
      • post-op
      • endoscopic
      • endonasal
    • 0 replies
    • 139 views
    • 
    • MaryO
    • September 17, 2020

15. WP Thyroid and Nature-Throid recall-August 2020

    By MaryO, September 3, 2020   

    • thyroid
    • recall
    • 0 replies
    • 179 views
    • 
    • MaryO
    • September 3, 2020

16. Cushing Syndrome interview (NEON_4470), 60-minutes, One Hundred Dollar reward

    By MaryO, August 31, 2020   

    • interview
    • cushings syndrome
    • 0 replies
    • 119 views
    • 
    • MaryO
    • August 31, 2020

17. Webinar: Growth Hormone Deficiency, PCOS or Cushing’s: How do You Tell Them Apart?

    By MaryO, July 20, 2020   

    • webinar
    • dr. f.
    • (and 5 more)

      Tagged with:

      • webinar
      • dr. f.
      • dr friedman
      • growth hormone deficiency
      • pcos
      • cushing's
      • ghd
    • 0 replies
    • 162 views
    • 
    • MaryO
    • July 20, 2020

18. Webinar: The Current "State-of-the-Art" in the Treatment of Pituitary Disease.

    By MaryO, July 16, 2020   

    • webinar
    • pituitary
    • 0 replies
    • 137 views
    • 
    • MaryO
    • July 16, 2020

19. Webinar: What every Patient needs to know about Recent Advancements in Pituitary Surgery

    By MaryO, June 17, 2020   

    • webinar
    • pituitary
    • (and 1 more)

      Tagged with:

      • webinar
      • pituitary
      • surgery
    • 0 replies
    • 148 views
    • 
    • MaryO
    • June 17, 2020

20. Webinar: How to Improve Quality of Life for Those with No Adrenals (BLA and Addison’s)

    By MaryO, May 16, 2020   

    • bla
    • adrenalectomy
    • (and 4 more)

      Tagged with:

      • bla
      • adrenalectomy
      • webinar
      • dr. f.
      • addison's
      • addisons disease
    • 0 replies
    • 169 views
    • 
    • MaryO
    • May 16, 2020

21. Webinar: Pituitary Surgery During the COVID-19 Pandemic

    By MaryO, May 5, 2020   

    • webinar
    • pituitary surgery
    • (and 2 more)

      Tagged with:

      • webinar
      • pituitary surgery
      • covid-19
      • coronavirus
    • 0 replies
    • 202 views
    • 
    • MaryO
    • May 5, 2020

22. Webinar: The Implications of COVID-19 on Patients with Endocrine Disorders

    By MaryO, May 5, 2020   

    • webinar
    • covid-19
    • (and 1 more)

      Tagged with:

      • webinar
      • covid-19
      • endocrine
    • 0 replies
    • 177 views
    • 
    • MaryO
    • May 5, 2020

23. Dr. Theodore Friedman (The Wiz) will host a webinar on "How to improve quality of life for those with no adrenals (BLA and Addison’s)"

    By MaryO, May 4, 2020   

    • dr. theodore c friedman
    • adrenalectomy
    • (and 2 more)

      Tagged with:

      • dr. theodore c friedman
      • adrenalectomy
      • cortisol
      • stress dose
    • 0 replies
    • 176 views
    • 
    • MaryO
    • May 4, 2020

24. Webinar: Perioperative Care for the Pituitary Patient: Optimizing the Surgical Experience

    By MaryO, February 8, 2020   

    • webinar
    • pituitary
    • (and 1 more)

      Tagged with:

      • webinar
      • pituitary
      • surgery
    • 0 replies
    • 335 views
    • 
    • MaryO
    • February 8, 2020

25. Webinar: Management of Recurrent Pituitary Tumors

    By MaryO, January 3, 2020   

    • webinar
    • pituitary
    • (and 1 more)

      Tagged with:

      • webinar
      • pituitary
      • recurrence
    • 0 replies
    • 419 views
    • 
    • MaryO
    • January 3, 2020