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Daily Update

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Just an update

I put up some recent pics of my beautiful grandson, Tyler on my Myspace if anyone wants to see. He is getting so big. He is almost 9 months old now.   As for me, I can't say much other than I have been feeling pretty rough lately. The speech problems and the pain is the worst of it although the weight gain is taking a toll on my self esteem. I gained another 5 pounds this week.   Not much I can do except keep pushing the doctors for answers and finding another neurologist and endocrinologi

KathyBair

KathyBair

Sometimes things just hit home.

Three days Grace - Never Too Late     This world will never be What I expected And if I don't belong Who would have guessed it   I will not leave alone Everything that I own To make you feel like it's not too late It's never too late   Even if I say It'll be alright Still I hear you say You want to end your life Now and again we try To just stay alive   Maybe we'll turn it around 'Cause it's not too late It's never too late   No one will ever see This s

KathyBair

KathyBair

Bloodwork

I got my test results back from the one doctor. I have a 362 cholesterol level. Not much else showed - low sodium, high platelets, high WBC, High RDW, and low MPV. From what I understand some of this is caused by the Tegretol. I think they are taking me off of it soon. I'll know more after we go over the EEG.

KathyBair

KathyBair

update

Well the 5 days in the hospital was pure hell and I don't think the video EEG will answer anything. I am glad to be out. I am in the process of doing my first UFC. Maybe I'll finally get some answers. My PCP says I've got the highest cholesterol levels he's ever seen. That and the high blood pressure and low creatine and they are still trying to tell me it is psychological. Go figure.

KathyBair

KathyBair

Stroke?

Well they found me a bed yesterday afternoon. I actually slept last nigh and had about a half an hour of plain speech before I couldn't talk right again.   Well, the EEG technician came in and spoke with me. He did not see any evidence of a seizure but tonight we are not going to be taking the Tegretol and see if it comes out different.   He had an idea of what it could be. He said you can have a stroke so small it doesn't get detected on an MRI but if it hits the right area of the brain can

KathyBair

KathyBair

May first update.

Well I was up all night as usual and I'm about to go to sleep. Idk yet if the hospital has a bed available today. Everything is hurry up and wait.   I still can't speak and feel a little dizzy and I have a litle bit of chest pain. I took an aspirin. I hope that does the trick. I am not as sore yet this morning and am in a calm mood.   I'll update again later.   I wish everyone has a great day. I know with us they are few aand far between.

KathyBair

KathyBair

fatigue

I had an unevntful day and not as sore but my speech is still out. I didn't do much today. Cooked dinner and did dishes and played on the computer. I was so exhausted all day. I felt like something was sucking all the energy out of me.   I hope the hospital has an open bed for me tomorrow.   Sometimes I question is this all in my mind? Is it mental illness? Am I getting fatter because I am lazy? I didn't think mental illness could physically hurt so bad. Maybe it's my fault in some way.  

KathyBair

KathyBair

Damned hospital

I slept from 8AM to 2PM today. I am still very sore and can't talk again.   The hospital called and said they don't have a bed ready again. So I have to wait. This was set up months ago. I did my part. So much for hope. I don't think I really need a video EEG but this could have been an outlet for further testing. Idk.   Everything's a struggle anymore.

KathyBair

KathyBair

Surprise!

April 29th, 2008     Well I went to sleep around 10:30 AM and woke up around 4PM. I woke up talking fine but boy am I in pain. The back of my neck hurts and my left hip - every time I step on that leg I see stars. And my left shoulder hurts and I have a slight headache like pressure behind my neck.   The good news is I am finally speaking fine and I actually have a some energy. I don't know how long it will last. I usually only get a couple of hours.   I have to pack for my video EEG. I

KathyBair

KathyBair

Another sleepless night

I maybe dozed off for an hour last night and was woken up by the pain in my feet and my left hip. I don't know why doctors don't acknowledge that I am in pain. I stayed up the rest of the night watching tv and eating just like every other night. I had a hell of an appetite last night.   This morning the only things I can speak come out as total gibberish. I really hate this. I pray that they find an answer soon.   I go into the hospital today. I hope this isn't a waste of time.

KathyBair

KathyBair

speech

That didn't last long. It is now 6:16 and my speech is slurred again. I got really tired out of the blue and my speech started slurring. That's the way it usually works. I knew it was coming I could feel it.   I am so damned sore. I feel like I've been hit by a truck. My feet feel as though if I step down too hard they would break at the ankles.   Don't mind me I am just keeping a log in case I need it to help with a diagnosis.

KathyBair

KathyBair

Hello Everybody

This is my first blog here. I usually post on myspace but I think this is a more appropriate place to post how I am feeling and what's going on with my doctors.   I didn't sleep again last night which is not unusual for me. I went to the neurologist and am up another three pounds since my primary weighed me last week. Today I go in for my first test for Cushing's and some fasting bloodwork. Since I usually only eat at night this was hard for me. I am really nauseous and can't wait for it to be

KathyBair

KathyBair

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