Member of the 1000 Post Club MelissaTX Posted October 31, 2007 Member of the 1000 Post Club Report Share Posted October 31, 2007 I visited the Pituitary Network Association website. BOOM. I see this in the right sidebar. The Journal of Neurosurgery publishes an on line peer reviewed journal called NeurosurgicalFocus. The format of this journal is to present a new "Topic" each month that contains numerous peer reviewed articles. The Topic for September 2007 is The Diagnosis and Management of Cushing's Disease edited by Dr. William Couldwell. Then I clicked on the link to find 15 FREE CURRENT ARTICLES ABOUT CUSHING'S DISEASE!! I plan to download the PDF versions of all of these articles now, while I can... they say they are free but I don't want to chance them not being available to me later. Neurosurgical Focus magazine on Cushing's Including this article by Et Al + Ludlam: Article about Cyclical Cushing's. I copied and pasted the whole page to show you the summary, but you will have to go to the page to get the articles. ****************** Diagnosis and Management of Cushing Disease -------------------------------------------------------------------------------- Diagnosis and Management of Cushing Disease 1 William T. Couldwell, M.D., Ph.D. Citation | Full Text | PDF (104 KB) | PDF Plus (104 KB) Treatment options for Cushing disease after unsuccessful transsphenoidal surgery 1 James K. Liu, M.D., Maria Fleseriu, M.D., Johnny B. Delashaw Jr., M.D., Ivan S. Ciric, M.D., William T. Couldwell, M.D., and Ph.D. Abstract | Full Text | PDF (289 KB) | PDF Plus (320 KB) Current state of the art in the diagnosis and surgical treatment of Cushing disease: early experience with a purely endoscopic endonasal technique 1 Amir R. Dehdashti, M.D. and Fred Gentili, M.D., F.R.C.S.C. Abstract | Full Text | PDF (434 KB) | PDF Plus (457 KB) Medical management of Cushing disease 1 Bradley A. Gross, B.S., Stefan A. Mindea, M.D., Anthony J. Pick, M.D., James P. Chandler, M.D., and H. Hunt Batjer, M.D. Abstract | Full Text | PDF (335 KB) | PDF Plus (351 KB) Brain atrophy and cognitive deficits in Cushing's disease 1 Chirag G. Patil, M.D., Shivanand P. Lad, M.D., Ph.D., Laurence Katznelson, M.D., and Edward R. Laws Jr., M.D. Abstract | Full Text | PDF (481 KB) | PDF Plus (497 KB) Nelson syndrome: historical perspectives and current concepts 1 Mark Hornyak, M.D., Martin H. Weiss, M.D., Don H. Nelson, M.D., and William T. Couldwell, M.D., Ph.D. Abstract | Full Text | PDF (5402 KB) | PDF Plus (5435 KB) Nelson syndrome: comprehensive review of pathophysiology, diagnosis, and management 1 Magdalena J. Banasiak, M.D. and Ali R. Malek, M.D. Abstract | Full Text | PDF (335 KB) | PDF Plus (388 KB) Diagnostic approach to Cushing disease 1 Bradley A. Gross, B.S., Stefan A. Mindea, M.D., Anthony J. Pick, M.D., James P. Chandler, M.D., and H. Hunt Batjer, M.D. Abstract | Full Text | PDF (321 KB) | PDF Plus (346 KB) The role of inferior petrosal sinus sampling in the diagnostic localization of Cushing's disease 1 Shivanand P. Lad, M.D., Ph.D., Chirag G. Patil, M.D., Edward R. Laws Jr., M.D., and Laurence Katznelson, M.D. Abstract | Full Text | PDF (601 KB) | PDF Plus (624 KB) Evaluation and management of Cushing syndrome in cases of negative sellar magnetic resonance imaging 1 Jay Jagannathan, M.D., Jason P. Sheehan, M.D., Ph.D., and John A. Jane Jr., M.D. Abstract | Full Text | PDF (2002 KB) | PDF Plus (2024 KB) Cyclic Cushing syndrome: definitions and treatment implications 1 Dennis A. Velez, M.D., Marc R. Mayberg, M.D., and William H. Ludlam, M.D., Ph.D. Abstract | Full Text | PDF (220 KB) | PDF Plus (227 KB) Editorial -------------------------------------------------------------------------------- Cyclic Cushing syndrome: definitions and treatment implications 1 Mary Lee Vance, M.D. Response Dennis A. Velez, M.D., Marc R. Mayberg, and William H. Ludlam, M.D, Ph.D. Citation | Full Text | PDF (145 KB) | PDF Plus (148 KB) Diagnosis and Management of Cushing Disease -------------------------------------------------------------------------------- Transsphenoidal surgery for Cushing's disease: a review of success rates, remission predictors, management of failed surgery, and Nelson's Syndrome 1 Daniel F. Kelly, M.D. Abstract | Full Text | PDF (270 KB) | PDF Plus (307 KB) Cushing disease: use of perioperative serum cortisol measurements in early determination of success following pituitary surgery 1 Armand Krikorian, M.D., Dima Abdelmannan, M.D., Warren R Selman, M.D., and Baha M Arafah, M.D. Abstract | Full Text | PDF (481 KB) | PDF Plus (498 KB) National trends, complications, and outcomes following transsphenoidal surgery for Cushing's disease from 1993 to 2002 1 Chirag G. Patil, M.D., Shivanand P. Lad, M.D., Ph.D., Griffith R. Harsh, M.D., Edward R. Laws Jr., M.D., and Maxwell Boakye, M.D. Abstract | Full Text | PDF (223 KB) | PDF Plus (229 KB) Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club MelissaTX Posted October 31, 2007 Author Member of the 1000 Post Club Report Share Posted October 31, 2007 With so many coauthors for these articles from so many different institutions and universities, it sure seems to me that we could use this to branch out and find Cushing's specialists in our neck of the woods. As a geographer, I dream of the day that I can see a map of the US (world, too) that is filled in with many dots that denote Cushing's specialists. I dream of the day that a Cushie doesn't have to drive double-digit hours to get the care they deserve. Don't you?! Link to comment Share on other sites More sharing options...
Over 2000 Posts Jo MacRaild Posted October 31, 2007 Over 2000 Posts Report Share Posted October 31, 2007 Thanks Melissa, Maybee we should co ordinate & download everything whilst its free ?? Oh yes, what a dream, Doctors, knowledgable doctors everywhere..& not having to get on a plane....I really hate flying.. Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club MelissaTX Posted October 31, 2007 Author Member of the 1000 Post Club Report Share Posted October 31, 2007 I have already downloaded my copies. It is very easy. You just click on PDF toward the right, below each article. Then you open the file (if you have adobe acrobat reader, if not, download it here for free: Click on the yellow DOWNLOAD button on the top right side.). I would love to brainstorm a way to make these articles, plus all the ones from subscription medical journals, more accessible to everyone. I understand that there may be issues regarding paid access, but I don't know the details. Regardless, I have a week's worth of reading tonight, for sure! I plan to take copies to all my local doctors: my endocrinologist, neurosurgeon, PCP, chiropractor, ob-gyn, repro endo, EVERYBODY! I am so thrilled about this, I could just spit. Hey, where's that tube thingee?! Link to comment Share on other sites More sharing options...
fatnsassy Posted October 31, 2007 Report Share Posted October 31, 2007 Thanks for sharing the info Melissa! I downloaded all of them too! Gracie Link to comment Share on other sites More sharing options...
BrendaW Posted October 31, 2007 Report Share Posted October 31, 2007 Melissa - this is SO great! I've downloaded all of them. It so happens I've got an Endo appointment tomorrow...guess what I'll be reading in the waiting room! Thanks for sharing! Brenda Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted October 31, 2007 Chief Cushie Report Share Posted October 31, 2007 I would love to brainstorm a way to make these articles, plus all the ones from subscription medical journals, more accessible to everyone. These articles will be on the main website for anyone to read in the future. I'll get the page up later today. They will be available from the document download page at http://www.cushings-help.com/documents.htm Thanks, Melissa Link to comment Share on other sites More sharing options...
judycolby Posted October 31, 2007 Report Share Posted October 31, 2007 Pituitary Disease Education to Help Therapists Save Families and Lives Newbury Park, CA, October 11, 2007 Press Release ? Marriage and family therapists across the US will learn the devastating impact pituitary disease is having on many of their patients at the annual American Association for Marriage and Family Therapy (AAMFT) conference held in Long Beach, California on October 14, 2007 and at the California Association of Marriage and Family Therapists (CAMFT) conferences on November 2, 2007 in Oakland and on January 11, 2008 in Los Angeles. This was right under The Diagnosis and Management of Cushing's Disease I thought is looked interesting and very useful. Judy Link to comment Share on other sites More sharing options...
shashe Posted October 31, 2007 Report Share Posted October 31, 2007 You're fabulous Melissa, Thanks! Link to comment Share on other sites More sharing options...
Over 2000 Posts diane177432 Posted November 1, 2007 Over 2000 Posts Report Share Posted November 1, 2007 There are some really informative articles here Melissa - one in particular has been useful to me as it talks about if all else fails i.e. multiple transphenoidal surgeries, radiotherapy and bridging the gap in prescribing Cushings management medication - as I am at that place right now it was interesting reading that article even though it was upsetting looking at the statistics. Thanks for sharing this link! Diane x Link to comment Share on other sites More sharing options...
msmith3033 Posted November 1, 2007 Report Share Posted November 1, 2007 MELISSA - Thanks for sharing the information. I'm constantly looking for articles on Cushing's but I'm usually not very successful. My mom plans on reading them later when she makes breakfast. I'll probably read them tomorrow night during my insomnia. THANKS AGAIN.. -MELINDA Link to comment Share on other sites More sharing options...
lesley Posted November 1, 2007 Report Share Posted November 1, 2007 Thanks for the link: but the article Dr. L wrote was a bit upsetting.. "The high rate of recurrent symptoms after TSA, in combination with the aforementioned observations, implies that hypothalamic dysfunction may play a central role in the pathophysiology of this condition.10 The role of TSA in patients with an unequivocal diagnosis of cyclic CS remains uncertain. Beckers et al.3 and Shapiro et al.15 have reported that patients with cyclic CS suffer symptom recurrence after TSA. Based on these reports, TSA cannot be recommended as definitive treatment. Prospective studies of patients with a clear-cut diagnosis of cyclic CS will be needed to better define the role of TSA in this setting." so surgery might not be the answer.......hmmmmmm Conclusions Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club friday Posted November 1, 2007 Member of the 1000 Post Club Report Share Posted November 1, 2007 Melissa, what a GREAT find!! Thanks very much for sharing. I'll be downloading my copies too but it's comforting to know our wonderful host MaryO has them online too. Lesley I agree that is VERY disconcerting but some have had success after one surgery....I went about a year in remission....some remain....don't know. I went for the BLA because my body just couldn't take much more damage. As for using these docs....there is one listed with one of the articles that I had the absolute WORST experience with. Another patient (the late Kathryn McBride Miller) and I met and discussed our local endos and this horrible doctor topped both of our lists. I went to him AFTER pituitary surgery WITH pathology reports showing the ACTH issues (plus others) and he proceeded to YELL at me and tell me I never had Cushing's and had just had unnecessary brain surgery. I left there in tears. You can PM me if you're considered a doctor in this (OH) area and I'll share his name but for obvious reasons do not want to post it publicly. Renee Link to comment Share on other sites More sharing options...
Jacqueline Posted November 18, 2007 Report Share Posted November 18, 2007 Thanks for sharing this information!! Link to comment Share on other sites More sharing options...
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