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About this blog

Undiagnosed and frustrated...

Entries in this blog

Feeling pretty good....

Well, things have been quite good. I don't know if my new puppy has anything to do with it, but she sure does bring som brightness into this dark life of mine. She is a reason to get outside, even if it's only for a short time.   I haven't been having the joint pains since I last posted and that alone feels great. I have had energy to do a bit and have tried not to overdo it like I usually do, when I get this way. It's so easy to fool yourself into beliving that you can do everything you used

CathyM

CathyM

Took me a while...

Well.. I haven't been up to posting. My endo winded up diagnosing me with PCOS. She only did one cortisol test and that was morning cortisol, and that came back on the low end of normal as it always does.   Anyhow she said my free testesterone was elevated and that combined with my symptoms were enough for her to diagnose me with PCOS. My gut is telling me this is NOT PCOS. I know I have some of the symtpoms, but my gut won't let go of the Cushings. I know I need to be tested before I can.  

CathyM

CathyM

Still waiting and trying to hang on...

Well, I did my testing last Thursday. I have taken loads of blood tests during my life, but I have never ever had as much trouble drawing as I did this time. The nurse had 17 vials in front of her and she couldn't find one vein! She tried a few times with no luck and ended up calling in another nurse for help.   The second nurse had no more luck then the first, when she finally struck blood she only got 3 vails. Then after trying the top of my hand, my wrist, my upper and lower arm, the first

CathyM

CathyM

Waiting...

Well.. after 10 days off the diuretics, I am retaining enough water to fill my a backyard pool. My feet and lower legs hurt when I walk, making my daily life hell. As if I don't have enough with the fatiuge, back pain and all the other issues. Anyhow - looking on the bright side, there is only 4 days left until I do those tests. I can't wait to do them, just so I can ask how long it will take until they are done. My endo promised me she would call as soon as she got the results. I am only hoping

CathyM

CathyM

Endo update...

I hit the jackpot yesterday. I recived a phonecall from the endo's office. The nurse asked if I could come in on short notice since they had an opening and all of my labs were done. I grabbed the chance and so I saw a lady endo today. She started by telling me all of my labs looked good!!   I could feel the tears pushing as soon as she said those words, but somehow I kept it together and told her that the labs might be good but my body isn't. I also told her that some things had happend since

CathyM

CathyM

Just another update...

I haven't been to good at keeping up with the blog thing. I should, cause its a good way of keeping track of stuff. Anyhow, here is my update since last time:   The fatiuge thing is hanging on there this time. I can't seem to get rid of it. I've been sleeping since easter...   My doctor has put me on blood pressure medication. Actually I am taking a pill that is both a water and blood pressure pill. I started it about a week ago and the water is almost all gone! I no longer have problems be

CathyM

CathyM

So tired...

It's 8:30 PM and I should just go to bed. I am totaly wasted and "staring into space" as MelanieUK put it in my "whining" post today. Someone chewed on me and spit me out again.   My muscles are weak, and my back is tense. I have terrible pain under my feet everytime I try to walk and I am itching like someone pays me to do so. I am also having nice body twitches. No idea what it is, but I feel something in my stomach. Almost like when I was pregnant and could feel the baby moving around ins

CathyM

CathyM

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