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msmith3033

ChattyCushie
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About msmith3033

  • Rank
    Chatty Cushie
  • Birthday 12/26/1988

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    melinda.smith88@rocketmail.com

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  • Gender
    Female
  • Location
    Central Michigan

Recent Profile Visitors

2,651 profile views
  1. THAT'S WHAT I WAS THINKING AND NOW WOULD BE THE TIME TO DO SO. I MEAN RIGHT NOW THEY WANNA DO ANYTHING TO GET OUR VOTES FOR THEM TO BE PRESIDENT.
  2. WELL I READ YOUR POST BEFORE I TOOK A SHOWER AND WHILE I WAS IN THERE I GOT TO THINKING. AND WAS WONDERING IF ANYONE HAS THOUGHT ABOUT STARTING ONE OF THOSE EMAIL FORWARDING THINGS. SOME ONE WITH THE CREATIVITY AND COMPUTER SMARTS COULD DESIGN A COOL EMAIL THAT WE COULD FORWARD TO EVERYONE THAT WE KNOW AND THEY COULD DO THE SAME. THEY SAY THAT THERE IS SIX DEGREES OF SEPARATION BETWEEN PEOPLE SO WHO KNOWS WHO ALL WOULD GET TO SEE IT. IT COULD HAVE SOME PICTURES OF US AND HOW MUCH IT'S CHANGED US ALONG WITH SOME INFO AND THEM SOME TESTIMONIALS FROM US. I DON'T KNOW JUST A THOUGHT. ~MELINDA~ **WHAT ALL DO YOU THINK?**
  3. Maggie,

    Just stopping by to say hi.

    .:Melinda:.

  4. Dave,

    Please never stop posting, I look forward to your posts. You are always able to put a smile on my face, even on my bad day.

    Hugs,

    .:Melinda:.

  5. THANKS, I FOUND IT. NEXT STEP IS TO STAY UP LONG ENOUGH FOR IT.
  6. QUICK HELP! I DOWNLOADED ITUNES BUT NOW I NEED HELP FINDING THE PODCAST. WHAT'S IT UNDER? HUGS, - MELINDA
  7. I'M NOT UP TO CALLING IN, SORRY. MY DIAGNOSIS WAS RELATIVELY QUICK AND PAINLESS, IT'S JUST THE RECOVERY THAT I'M HAVING TROUBLE WITH. CAN'T WAIT TO HEAR OTHERS STORIES. HUGS, - MELINDA
  8. msmith3033

    IT'S THERE! MaryO Interview

    If you go to the first page of this topic and click on the blogradio thing it will take you right to the site. From there it's pretty self-explanatory.
  9. msmith3033

    Urine Hats

    WHEN I WAS FIRST TESTED FOR CUSHING'S IN MICHIGAN I WOULD HAVE PAID ANYTHING FOR ONE. THEY JUST DON'T GET HOW HARD IT IS TO PEE IN A CUP WHEN YOU HAVE SO MUCH EXTRA WEIGHT IN YOUR STOMACH, IT'S HARD TO GET AROUND A LARGE TUMMY. OUT HERE AT OHSU THEY GIVE YOU ONE WHEN THEY GIVE YOU YOUR JUGS. IN FACT RIGHT NOW I HAVE ONE OF THOSE AND A COUPLE EMPTY JUGS IN MY CLOSET WAITING TO BE USED. FUN TIMES!!
  10. msmith3033

    Surgery Date Set

    Earlier this week I went to the doctors again. And I can honestly say that I actually left the doctors office with a smile. I had to meet with both Dr. Fleseriu and then the surgeon. First I met with Dr. Fleseriu. She informed me that I have Full-Blown Cushing's. Whatever that means I'm not quite sure. She wouldn't give me a script for sleep because she doesn't want me to be on very many medications prior to surgery. She also told me that I will HATE her after surgery along with the rest of the staff. And that I might even REGRET even having the surgery afterwards. I guess because of the withdraws that I will experience from not having so much cortisol. But living with Cushing's isn't something that I can do. She also said that within a couple of weeks after surgery I'd start to lose weight and the swelling in my face will go down. Then I met with Dr. Delashaw's assistant. He was really nice and actually quite comical. He pretty much went over the risks, the surgery, blah, blah.... I had to sign some paper saying that I'm aware of the risks and that I give the OK for medical students to observe. Like I'm gonna care who watches the procedure, I'll be knocked out. Finally I met with the surgeon Dr. Delashaw. He seems like a nice guy. He even sorta sounds like a down-to-earth type of guy. I don't know what exactly I was expecting, maybe a serious old dude or something. But the first thing that he started to talk about was whether or not I was aware that Michigan lost to Oregon in football. I told him that I don't watch football anymore or really any sports for that matter. Then he just told me that they'd be going in through the left nostril to remove the tumor. My dad was tempted to keep the surgery date a secret for the rest of the day because the lady came in with a set of instructions and asked who to give them to and he stuck his hand out, so she gave them to him. And he wouldn't tell me when I was gonna have surgery but then gave in once we were in the parking garage. Dr. Fleseriu said that I HAVE to quit smoking. I really don't take orders very well but I HAVE to quit. Only because of the hormone replacement drugs and the fact that smoking alone increases your risk for stroke and heart attacks or something and having Cushing's alone puts me at a high risk for both. Which I already figured that I'd HAVE to quit before surgery but wow, it's gonna be difficult. I'm sort bummed since just last weekend I bought a carton and have like eight packs left. What a waste of money. If I'd known that I'd HAVE to quit smoking I would have just bought me a new hobby or something to do while I enjoy insomnia. My mom, grandma, Aaron, & my dad from Harrison are going to be leaving Michigan on the 6th of October to come out here. Which means that they will be here on or around the 8th. So we'll be able to spend some time together before surgery. And my mom said that they will be staying for the surgery and then a few days after I get out of the hospital but if the withdraws are really bad then she'll stay longer to help take care of me. I'm trying to stay positive about the whole idea of recovery and hopeing that it won't be too bad. Maybe I'll start to watch THE SECRET and SECRETIZE myself into a quick and painless recovery. Although Dr. Fleseriu did say that recovery is a long process. But I guess in the end it'll be worth it. Because eventually I'll be CUSHING'S-FREE. And I cannot wait for that day to come. I'm really looking forward to surgery but at the same time a little scared. But who wouldn't be? I mean it's BRAIN SURGERY. I mean for real I just got use to the whole idea of getting blood-work done and now I have to have BRAIN SURGERY. I don't know what I'm gonna do about college now. I think my first class starts on like the 5th of October. My advisor or whatever is suppose to call me on Monday morning so that I can tell him the surgery date and we can work out some sort of plan. Well that's enough for now I guess. Only 25 DAYS until GOOD-BYE CUSHING'S!!!
  11. msmith3033

    CSS Procedure

    Well I'm very proud of myself. I went in and had the CSS Procedure done without being knocked out. I was originally scheduled for an IPSS Procedure but then on Thursday they called and said that they wanted to do the CSS Procedure instead. They didn't say why exactly the change but who cares, at least I'm getting somewhere. The procedure itself wasn't all that bad. All I really felt was when they put the numbing stuff in my leg (which burned just a little) and then I could feel them moving the catheter around up until they got past my hip bone (yes I do still have one of those). Then I really felt it when they started taking the samples from my pituitary gland. And that wasn't all that pleasant, it was a sharp, piercing headache. But through out the whole thing they had me pretty drugged up, so it was OK. I really felt the pain from it when they took me back to the recovery room. My legs were killing me at first, to where I was actually in tears. I of course tried to hold it in because I didn't wanna cry in front of my dad. Which seems to be the normal thing now-a-days. I hold in the tears a lot from the pain that I go through because I don't want anyone to think that I'm a baby or something. But anyhow they gave me an Oxy for the pain. Nobody here has actually seen the extent of the amount of pain that I go through some days because I don't tell them and I won't cry out in front of them. I'm just taking it like a champ. But deep down I'm terrified of this whole disease and the treatment. Also last Thursday OHSU called me with my new appointments, on Friday, September 7th I meet with Dr. Deshaw or something for surgery and then after that I meet with Dr. Flesurie to go over all of my test results or something. I'm so scared but I'm not gonna show anyone because I have to be strong through this. I'm still going through the messed up sleeping patterns. Which really gets annoying after awhile. I just get so bored being up all night long and then sleeping most of the day, if I'm lucky. But last night/this morning wasn't so bad, I didn't really spend all that much time alone. Once I woke up we ate dinner and then I took a shower and watched a movie with Barb on LifeTime while I studied algebra. Then I called Grandpa Smith to do my weekly check-in and then I came back in here at about 9:30pm and was watching TV and checking my Email when Shawn came in to get me to go in their room room to watch a movie. Shawn, Marissa, & I watched 'Meet the Robinsons' and that got done at around 12:30am/1:00am. So then I went outside for about an hour or so and watched my dad sand/stain the deck but got bored and came back in. Then I went in the living room and was watching the 'Flintstones' with Marissa when Shawn came out and said that I need to watch some movie with my dad. So then I went in their room and lied down and watched 'The Pirate Movie.' So it wasn't all that bad this time. The only thing that is really irritating me about the whole messed up sleeping thing is that now when the insomnia like things start happening every night I get this really gross taste in my mouth that is pretty much impossible to get rid of. Nothing seems to work. But I have some strong gum which seems to help a little bit. I should be falling asleep relatively soon, I hope. It's almost 8:00am here and I think this is close to the time that I sometimes am able to fall asleep. Yesterday I don't think I feel asleep until around 12:30pm but thats only because AIU gave me a new adviser or whatever that has no idea of what I'm going through and kept calling me to go over stuff that I already had done. But whatever I guess. Well that's enough for one journal entry.
  12. msmith3033

    Insomnia Again

    Once again I'm a victim of insomnia. Damn it I was really liking sleeping like NORMAL people. You know going to bed one day and waking up the next, but now I'm going to bed one day and waking up the same day. And that's only if I'm able to sleep at all because when this happens I only sleep a little bit and not very restful either. Since I've been keeping track of my sleeping patterns I've noticed that everyday it's getting later and later before I'm able to fall asleep and the amount of time I spend sleeping is decreasing. Yesterday I woke up at 2:30 in the afternoon and didn't go back to sleep until 10:30 this morning and that was after I was forced to take four Tylenol PMs in hopes to fall asleep. Then at around 1:30 this afternoon my dad came in and woke me up to feed me. He's really being super supportive of this. It was nice to have someone actually go out of their way to make me a plate of food and deliver it to me in bed without being asked. Luckily once I was finished eating I was able to fall back to sleep relatively quickly by 2:30pm. And was able to sleep until about 4:30. So today I'm going on only 5 hours of sleep. I was once again forced to accept the physical problems associated with this illness. First while taking a shower I noticed that the stretch marks on my upper left arm are gradually getting closer to my elbow. And while rinsing my hair I accidentally pulled out two handfuls of hair. I'm really surprised that I even have any hair anymore. I don't even use adult shampoo anymore. I've been using that kids suave 2-in-1 shampoo. Mostly because I like to use conditioner and since it's 2-in-1 I only have to rinse my hair once, so then I won't lose so much hair. I also made the horrible mistake of looking in the mirror while I was undressed. It's so embarrassing and disgusting to look at myself now-a-days. On Monday I have an appointment with an internal medicine doctor to get some medications to help deal with the pain management. One thing I'm definitely going to ask for is Ambien for sleeping. I'm still waiting on the results from OHSU. I emailed them earlier so hopefully they will respond soon because I'm really curious to knowing what my results are from my tests and stuff like that. I already know that they found a 2.5mm tumor on my pituitary gland but I don't know what the results are from all of my other tests that I took.
  13. msmith3033

    The Worse Cushings Day Yet

    Yesterday was probably the worse Cushing's day I've ever experienced so far. It all started out with sleeping a lot. I pretty much spent the entire day asleep. Once I finally woke up I woke up with a terrible headache (scale 1 to 10 - probably a 9). And my entire body was so sore, I was literally unable to get out of bed. I tried unrepeatable to watch a movie but feel asleep each time. It was just a horrible day in general. It was so bad that my dad even brought me home dinner and brought it in my room for me because I was just unable to move about like usual. I'm not sure why I felt so bad today but it just wasn't fun at all. The muscle soreness and I guess overall soreness was so bad to where I wasn't even able to sit down for an entire cigarette with out feeling pain from sitting up. I didn't even spend that much time on this thing which is very unusual since this is where I spend the majority of my time. I didn't even have the energy to talk on the phone with my mom, which is yet another unusual thing since usually I spend on average a good four to five hours on the phone with her a day. I really need to take a shower but I'm still a little sore and it hurts to just raise my arms for the most part, it's amazing that I'm even able to type (which I'm doing so very slowly). I hate it when I know I want to take a shower but I just don't have any energy to do so. I'm hoping that tomorrow will go better because I truly hate getting stuck in bed all day long. It just doesn't work out for me. My concentration is also really low for some reason. I keep trying to watch Deju Vu or whatever with Denzel Washington but I just can't seem to grasp the concept of the movie at all. It seems to confuse me more and more each time I watch it. Maybe tomorrow I'll be able to sit and watch it and hopefully comprehend the movie in general.
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