OK, been out down the library this morning to pick up my nursing books and went off to have my Hep B antigen test. Blood flowed freely from the only point in my arm that allows them to take blood!! I don't bother with them looking for a spot now - I just point to where they can get it and then it saves a whole bunch of time faffing around!I spent yesterday moving a whole load of furniture, trying to make space in the house as it was a bit like a furniture shop, dodging bits of furniture to get u
7:47am - Up early again as usual, been up for a while...everyone else is in bed. Last day everyone is home and so I think they're making the most of it. Tomorrow we are all starting on our healthy eating and exercise plans - Steve will be cycling to work again..I have 12 days to try and shift a few pounds and get this back to feeling a lot less stiffer than it is...its a pain in the morning...literally.Its Bank Holiday here in England today in lieu of the 1st...not sure what we're doing to day..
Well, its the mornign after the night before...feeling a little hung over...toasted int he New Year with Steve and a bottle of champagne...we didn;t go anywhere, just stayed at home and watched Jools Holland. Mum and Harry went to bed early. I was proud of myself as this is the first year in 3 years that I have managed to stay up to see the New Year in - I have been too ill all previous years and had no energy to keep awake. Start as I mean to go on.I have got so many goals this year - I won't
Well it Friday december 30 well actually it saturday morning early. and yet again another sleepless night again the more i think about the endo not calling me with those results i mean of all people he knows I doon't fight infection well but yet he let this get so bad and ven with the swelling issue the causing of the congestive heart failure he fails me to infrom me that my kidneys were infected he knows my kidney are already damge by the steroids but yet he can just let it sit there in his of
I had my MRI yesterday...I really don't like having them done and would gladly have fallen asleep inside the machine had it not been for that bloody noise!!!!I don't know how to feel right now...so much going on in my life that I just feel tired more than anything else....roll on 2006! Every Christmas I say to Steve "Next Year will be out year..." I went to say that again this year and had to stop myself because each year things get worse and all I can do now is live in hope of a reprieve and so
So, when you take about 10 pills in the morning, every morning? Yeah. And, three of those pills are to be taken [1] in the morning; and [2] every eight hours after that? Don't put them in the same little pill box. Really. Here's why:I realized within 10 minutes of my taking my morning pills today that my pill box for today was empty. Yeah. Meaning, i had take three times the dose of my methadone than i normally would. Three pills, 5mgs each; for a total of 15mgs per day. Every eight hours or so.
Steve called last night to say he should be home today pending the weather...severe snow in his area right now, so hopefully it will clear today and he can come home - I have my MRI tomorrow and was hoping he would come with me. Sounds like he had an eventful time at his families house. His brother ended up apologising for the way he has been acting in the past 3 years. He finally told us he was gay a few months ago. We are so supportive of him and are firm believers that you choose your own pat
Had a lovely peaceful morning...and a lie in!!!! The house is quiet, its' snowing outside...I have been reading my book and listening to music of my own choice...I haven't had a day like this in, well I can't remember...as much as I love my boys...boy do I love my own time too ! Not sure if they're coming back today or tomorrow...so I am makeing the most of the time I do have left... ! They have not even been gone a day and Steve has called me 3 times already! :wacko:4:20pm - well, I have bee
Well, I am home with Mum - Steve and Harry have headed off down south to my in-laws and I am having a nice break with Mum...we have been complete and utter slobs today - and it is so quiet...very strange...too quiet...but it has been lovely - had two calls already from Steve to let me know they're OK and that he misses me - they've only been gone a few hours!! Apparently Harry has been spoilt rotten and has been given a couple of toys my Mum is just going to love having in the house - Steves you
Taking a break and a breather from all of the Christmas food drink and frivoloties...its been such a wonderful day...last night I cut out white reindeer paw prints and Santa foot prints and put them all over the living room floor near the chimney by a half-eaten plate of mince pies and a carrot that Harry had left out for Santa and the reindeer...the look on his face this morning was truly magical when I told him they were snow prints left by Santa and Rudolph...!!Steve and I kept waking up at H
Merry Christmas .... I finally sitting for a few minutes its christmas eve here and the family are watching a movie.... a shi -fi movie I watched it with Ken Last night and now he is watching it with the kids and their b/f and g/f .... So I thougt I steal a few minutes to myself... I told Ken Last night what the endo said about getting my affarirs in ordrer... He said that he knew there was something more to it that I had not told him but he was going to give me my space for a few days until I w
Trying to have happy Thoughts it Friday and christmas is upon us and it dosn't even seem like christmas to me.... I am trying to be postive esp for the kids because if this is my last christmas I want the girls to have good memories of the last christmas with me... My health has gotten so bad I can longer hide my head in the sand I beleive I must face what the endo said this week He told me to put my affairs in order becasue I don't have much longer.. I havn't even had the heart to tell Ken that
Well it Thursday early in the am and I can't sleep even though I took two sleeping pills... Nothing seems to help me sleep lately ... Well i seen the heart Doctor today and he says my heart is not causing the problem but becasue of the swelling my heart is getting enlarge so he says we must find out why I am swelling to prevent any further heart damage... He beleives the pit tumor is producing something and that my body is reacting to it so that it swelling so he is sending back to neuro surgero
Been on the computer since 4am, can't sleep...dex keeping me up - have to leave in 3 hours to go to hospital to have my blood draw...thank god when this is all over...MRI next week then hopefully that will be me done until the new year...lol!!3pm - went for my blood draw this morning...asked if I could have my last blood results but computers are down and not up till next week. Shame, I would have liked to have known before the new year. Steve got paid today so we are doing a bit of Christmas sh
I had a good morning...took a tour of a prospective nursery for Harry which was absolutely lovely and I am registering him on Thursday. I was so pleased that I had found one so quickly that had spaces and had an outstanding record from OFSTED. Harry and I went and got a few more Christmas bits. Came home, looked at Steves assignment and corrected it - his tutor said he should get someone to hel him out on this, he is doing fantastic and I can see his writing is growing. His last mark was 98% - f
Well I see the heart doctor on wednesday so still waiting but my swelling is getting worst even on the lasik. So I sure hope he has another plan of action and I know he said no stress it seems when they say that. Stress comes out of the woodwork. I guess i need to lock myself in my bedroom away from everyone and everything... My famaily is so stress out and i understand that they are but I am also stress out and they are making it worse I know I am always verybody safe person no matter who they
Went into the hospital this morning to have bloods taken and hand in the 24hr UFC's - Carol, my nurse said I bet I was sick of doing tests again...yes, I am...its just a pain in the you know what and I just didn't expect to be doing them again a year after surgery. We also shook our heads that they didn't call me in for a blood draw on day one as a baseline. Probably another set of tests to be done in the future I guess. So I am now on the 4 a day dex...9am, 3pm, 9pm, 3am - will be sleeping on t
Well it is Sunday afternoon and ken just left to go back on the road, This weekend was hard as everyone is having a hard time with me being so ill. Brittany is scared so she is acting out she has a type A personility add that to Ken type A personality and him being scared sometimes that can lead to a very stressful place. THey had a blow up today I don't even know about what it was something little but it became a major battle. These stress sitition takes so much out of me emtiomaly. It take me
My ?me? time is pretty good. I write a lot mostly. And read a ton. Online and in books. I splurge on my internet for cable access and group memberships that I really enjoy. It allows me to be social without talking physically, which is stressful to me. I get too excited and happy! But writing causes no stress for me, unless it?s fiction that seems to be hella stressful because I am not so confident with it. So I am not pushing myself. Reading is such a pleasure for me. It really is. But, anywa
Well Finally heard from the endo and he made me come in the office then rushed me off to the heart doctor where they learned I have a enlarge heart and congestive heart failure all i sure due to the steriods. I was swollen another 20 pounds in a week that up 60 pounds in 2 months it no wonder I can't hardly get out of bed They ran some test and I have to go back next week for more test they put me on fluid pills which always screws up my levels and i end up in a adddssions crisis so to say I not
Started the dex test today. Taking 1/2 a tablet twice a day for 3 days...24hr urines on days 2 & 3 and then taking a full tablet four times a day for 2 days with 24hr urines - with bloods in between and after. What joyFelt rough after taking the dex tablet this morning...major headaches, feeling exhausted, cheeks on fire and feel like walnuts are back - squirrel has buried his nuts in my cheeks...Its now 10am and I am feeling a bit better although lips are now going numb (?), head is still f
Been busy sorting out Dex tests, 24hr urines...getting it right...thanks Liz!! Nearly sorted out a place for Harry's childcare, have a tour on Tuesday...nearly sorted out what I may be entitled to with bursaries....booked appointment for Hep B injection so I can start my course....writing endless lists for what I need to do over Christmas, presents, food etc and whether we can afford it...in between looking after the little monster and trying to keep fit...Well off to do some washing up, cook a
